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Working with other organisations for better outcomes in MS

Much of the MS Trust's work to influence government and decision makers in health is done by working with other voluntary organisations, with professional bodies, and with Government bodies.

Why do we do this?

  • to use our everyday contact with people with MS to make other organisations aware of what people really need and want
  • to give people with MS a voice, particularly at a national level; for example, working with NICE for the best possible outcomes from their decisions.
  • many voices together can attract more attention – by working in partnership we can speak more loudly and to more people
  • to make best use of limited resources: small organisations gain benefits from pooling resources

Who we work with

Umbrella groups

  • Neurological Alliance - an umbrella group for organisations working with people with neurological conditions
  • Urology User Group Coalition - an political lobbying group working in Westminster for organisations representing people with bladder and bowel problems
  • Specialised Healthcare Alliance - a broad coalition of patient groups to campaign on behalf of people with rare diseases and complex conditions which require specialised medical care. These conditions tend to be expensive to treat
  • Patient Information Forum - an umbrella organisation that campaigns to ensure that health information is central to high quality, patient centred care

Government bodies

  • NICE - as an individual charity representing the voice of people with MS in decisions on drugs and quality standards

Professional bodies

What we are doing now

Current work with other organisations includes:

NICE

Specialised Healthcare Alliance

  • lobbying behind the scenes for commissioning for specialised conditions in England through the new NHS Commissioning Board