No one should have to face MS alone. For children and young people who have MS or who have a loved one with MS, life can be particularly tough.
A diagnosis of MS is becoming much more common in childhood. Around 5% of adults with MS say they experienced their first MS symptoms before the age of 16.
“After my diagnosis I cried every day for a month because I did not know what to do”, says Amy, who was diagnosed with MS when she was 14. Her friends didn’t believe she had MS because the information she'd found online said it affected older people.
“I cried so much in private, I was so scared of what was happening. I’m crying as I am writing this, remembering the loneliness and terror that I felt”, says Carole, who was 13 when her mother was diagnosed with MS.
It is only by getting answers to questions, in the right way, at the right time, from a trusted source, that children and young people can begin to make some sense of the puzzle of living with MS.
You can help us make a difference for young people today.
Working with young people aged 11-17, we are making a set of videos to help them have a better understanding of MS. You can watch all of these videos on our new YouTube channel, MSTV. All factual content will be researched and produced by our Information Team in collaboration with health professionals.
No one should be facing MS alone. We need your help.
Thank you for your support.