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Way Ahead Volume 13 Part 4 (September 2009)

MS Trust expands the map of MS services

Information Team, MS Trust

Outlines the expansion of the MS Trust map of MS services to ensure people with MS know where to find, and how to access, MS services.


MS services and the Risk-sharing Scheme

Nicola Russell, Director of Services, MS Trust

Only 12 years ago there were just a handful of MS specialist centres, around 35 MS specialist nurses, virtually no specialist therapists and only one drug licensed for MS, which in most parts of the UK the NHS was refusing to fund. This artcile looks at how the Risk-sharing Scheme has influenced MS management in the UK.


Neurological commissioning support: 'putting service users at the heart of commissioning'

Sue Thomas, Head of Neurological Commissioning Support, MS National Centre, London

Reforms to the commissioning process have set out a framework that shifts the balance of power putting the service user central to any plans, and a much greater role for clinicians in influencing commissioning. This artcile looks at the principles of the new framework, and explores the role of the Neurological Commissioning Support service.


A commissioning pathway for MS specialist services

Vicki Matthews, MS Specialist Nurse Advisor, MS Trust

Thsi article describes the development of a commissioning pathway for MS specialist services. The pathway was developed by the MS Trust using the Department of Health's 18 week pathway as a template. This web-based tool is a 'living' guide that informs commissioning services about the complexity and unpredictability of MS.


This one's personal

Brian Belle-Fortune, Student Practice Facilitator, Great Ormond Street Hospital for Children NHS Trust, London

Brian Belle-Fortune was working as an ICU nurse in the NHS when he received a diagnosis of MS. In this intensely personal account, he describes how he traversed the boundaries between patient and health professional to decipher the meaning of his diagnosis through a strangely surreal dual perspective.


Fatigue: an overview of causes and management

Helen Rowlands, Community Specialist Occupational Therapist, Stockport

Fatigue is one of the most common symptoms experienced by people with MS. Understanding the causes of fatigue is key to identifying the most effective management strategies. This article explores the complex nature of fatigue, and emphasises the importance of a multidisciplinary approach to its management.


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