Anticipation builds for the new MS Clinical Guideline
Amy Bowen, Director of Service Development, MS Trust
Expectations about the new NICE Guideline have been running high within the MS community and many have been looking forward to an updated document to support the continued development of MS services. Based on what we have seen in drafts of the Guideline, we suspect the reality may fall short of that.
Policy and campaigning: More than just the cost of treatment? Value based assessment and NICE
Alice Hamilton, Policy Officer, MS Trust
We all know that NICE (National Institute for Health and Care Excellence) chooses which high-cost treatments for MS are 'value for money' and which are not. NICE approval makes the difference between treatments being available on the NHS and only being available on private prescription.
You may be less aware that NICE was set up to only consider the cost-effectiveness of a treatment in terms of 'health quality gained for the money spent' when making their assessments. Decisions are based solely on whether the cost to the NHS, or the improvement to the individual's health, will be greater than the cost of providing the drug treatment.
Adapting mindfulness courses to the needs of people with MS
Angeliki Bogosian, Research Fellow, Health Psychology, King's College London, London
People affected by multiple sclerosis are faced with uncertainty about the future; unpleasant and unpredictable symptoms, treatment regimens and drug side effects. Supporting people with who have difficulties adjusting to the challenges of MS is important. Mindfulness is an increasingly popular and effective way to help people relate to their thoughts and emotions in a different way. The traditional way that mindfulness courses are delivered can be prohibitive for people with MS who may struggle with concentration, fatigue and other physical constraints. This article looks ar how mindfulness courses may be adapted to better suit the needs of people with MS.
Auditing services: development of a standardised data collection tool
Olly Krouwel, Physiotherapist, Burrswood Hospital, Kent
Burrswood Hospital and the University of Brighton have successfully completed a standardised data collection audit of their physiotherapy and aquatic physiotherapy services for people with multiple sclerosis. This article gives a brief overview of how the tool was developed for the audit and how it is intended to benefit the larger MS population.
Experiences of UK health care services for people with MS: a systematic narrative review
Abigail Methley, PhD Student, Institute of Population Health - Primary Care, University of Manchester, Manchester
The NHS recently implemented a policy aiming to improve patient experiences through more flexible, patient led health care services. As part of a PhD investigating the experiences of UK health services by people with MS, a literature review was carried out on the topic. Systematic reviews on pharmacological treatments and rehabilitation for MS were located, however none had been completed on the health care experiences of people with MS in the UK and therefore that was the aim of this review.