Information Team news
Open Door - February 2009 page 16
- The importance of reliable health information
- New book
- Factsheets
- MS Trust online
- Chatroom
- Map of MS Services
- Keep up to date with MS
The importance of reliable health information
The MS Trust believes that people should be able to make decisions about the management of their condition based on information that has been reliably tested using robust scientific methods. However, we realise that this information is not always available.
If we can help you find the independent and impartial information you need about MS, email the MS Trust Information Service or ring us on 01462 466700
New book
A new version of the MS Trust's book Disease modifying therapy: what you need to know will be published in early spring. This includes updated information about the beta interferon drugs (Avonex, Betaferon and Rebif) and glatiramer acetate (Copaxone), a new section on natalizumab (Tysabri), and discussion about the use of unlicensed therapies in the treatment of MS.
- Until the new edition appears, the previous edition of Disease modifying therapy is still available to read online
The publication follows the relaunch of the MS Decisions website. MS Decisions is an independent source of advice for people deciding whether to embark on disease modifying therapy for MS and if so, which of the available drugs to choose.
Factsheets
The publication of Spasticity and spasms in November 2008 brought the number of MS Trust factsheets to 20. The regularly reviewed and updated factsheets cover a wide range of topics, including symptoms (pain, fatigue, cognition), treatments (natalizumab, alemtuzumab, mitoxantrone), non standard therapies (LDN, diet) and issues such as talking about MS with family or friends.
MS Trust online
There are now more ways to keep in touch with us and share your thoughts, ideas, experiences and photos with others. A new Interactive section brings together links to our Facebook, MySpace, Twitter and Flickr sites, as well as the MS People UK discussion list. A new feature is the Baby, Me and MS blog, following someone with MS through pregnancy and the birth of her first child.
Chatroom
We will be running two chatroom during MS Awareness Week - 27 April to 3 May
Cognition issues
Tuesday 28 April 2009
Another chatroom will allow people to discuss problems such as memory, concentration, attention span and mood.
Do you live with someone who has MS?
Thursday 30 April 2009
One chatroom will be for partners of people with MS. The session will allow people who share their life with someone with multiple sclerosis to bring their thoughts and ideas on the issues and problems that this can involve.
- For more information visit the Chatrooms page
- If you will be unable to visit the chatrooms as they happen, email us your questions in advance
- Transcripts will be added to the chatroom archive a few days after the events
Map of MS Services
The map of MS Services is an interactive source of information on services and support locally. Please let us know about services in your area that we can add to make the map even more helpful to people with MS.
Keep up to date with MS
Keep up to date with what's happening in the world of MS through your inbox.
- Sign up to receive MS Trust press releases
- The MS in the Media pages contains a wide variety of news items from sites around the internet. Sign up to receive the weekly digest
- If your receive Open Door by post or read it online, did you know it is also available as an email newsletter? Sign up here
Join the Open Door mailing list to receive your own copy through the post (UK addresses only) or by email.
- Articles in the current issue
- Vitamin D and MS
- The nice things in life
- Staying smart and staying afloat
- Fatigue management in MS
- Standing up for MS
