Open Door
A free, quarterly newsletter for people with multiple sclerosis, their family and friends and supporters of the MS Trust.
Join the Open Door mailing list to receive your copy by post (UK addresses only) or by email
Click on a title below to read the full article.
When I opened Open Door I realised that I wasn't on my own. Your magazine is like a friend coming to visit.
Carol, Open Door reader
I receive Open Door and because of this I have access to the latest research information and it gives me a sense of hope. The MS Trust looks at many issues that we humans tend to ignore (such as bladder and bowel) and it reassures me that I am not alone. Thank you!
Susan, Open Door reader
May 2013
Read Open Door May 2013 as a PDF (1.36Mb)
Latest news from the MS Trust including reports on:
- MS Trust funds research into experience of secondary progressive MS
- International collaboration to tackle progressive MS
- MS Research Day
- New drugs on the way for relapsing remitting MS
- Policy update
Practical tips for better sleep
Tips on sleep hygience from the MS Trust book Living with fatigue.
Alison Wiesner, Occupational Therapy Clinical Specialist at Hertfordshire Neurological Service, explains how people with MS can manage fatigue.
NHS Shetland physiotherapists Margaret Gear and Ruth Mahood report on an innovative way of making exercise accessible for people with MS.
Why not try...?
Jane Dunham on rediscovering horseriding after being diagnosed with primary progressive MS.
MS Trust fundraiser Kenny Smith on how he came up with the idea for the MS Circuit Challenge at Goodwood.
Get involved with the MS Trust
- On your marks!
The MS Circuit Challenge at Goodwood on Sunday 12 May is a great way to be active this summer. Take part in the morning cycle challenge, or take a more relaxed approach in our family fun event in the afternoon. - Sky's the limit - Sky dive for the MS Trust
- My garden for MS
- Secret Art Show
If you are interested in buying art but don't know much about it, the MS Trust's Secret Art Show is a great place to start - Illness doesn't have to mean the end of our ambitions
Mr Motivator answers questions from the MS Trust Facebook and Twitter communities.
February 2013
Read Open Door February 2013 as a PDF (1.36Mb)
Research update - February 2012
Changes to walking and balance
Alison Clarke, Clinical Specialist Physiotherapist, Mobility and Specialised Rehabilitation Centre, Northern General Hospital, Sheffield
Christine Moran
Dawn Banton
Fighting the corner for MS nurses
Laura Percival talks to MS nurse Judith Brassington, winner of the 2012 My Super Nurse award
November 2012
Read Open Door November 2012 as a PDF (1.4Mb)
Making choices about treatments
Research update - November 2012
Living well with MS: a role for psychology?
Lorraine Maher-Edwards, counselling psychologist, Liz Wilkinson, MS nurse, Annette F Schwartz, consultant clinical neuropsychologist, Central Surrey Health.
The transition to secondary progressive multiple sclerosis
Stephen Wilson, cognitive behavioural psychotherapist Wendy Hartland, MS specialist nurse, Coventry and Warwickshire NHS Trust
The information needs of people newly diagnosed
August 2012
Read Open Door August 2012 as a PDF (1.4Mb)
Rehabilitation in MS: conference report
Neuropathic pain - the 'invisible illness'
Dr Steve Allen, Consultant in Chronic Pain Management, Oxford University Hospitals Trust
Remyelination in MS
Anna Williams. MRC Centre for Regenerative Medicine, University of Edinburgh
This sporting life
Tim Worner
May 2012
Read Open Door May 2012 as a PDF (800KB)
Supporting specialist MS services
Amy Bowen, Director of Service Development, MS Trust
Epidemiology and the natural history of MS
Professor Helen Tremlett, University of British Columbia
Capturing the moment
Jennifer Willis
Raising awareness of MS
Ishbel MacKinnon
Smoothing out the ride
Lindsey Barley
How we made a difference for people living with MS in 2011
February 2012
Read Open Door February 2012 as a PDF (1.4Mb)
I didn't even know to ask: meeting the information needs of people with MS
Your food, your diet
Anne Payne, dietitian
Dating
Kevin Ward
Rock bottom and back
Marcus Smith
From test tube to medicine cabinet
November 2011
Read Open Door November 2011 as a PDF (1.2Mb)
Research activities undertaken by the MS Trust to improve services for people with MS
Nicola Russell, MS Trust
Intrathecal baclofen - who for and when?
Val Stevenson, neurologist
My baclofen pump
Carmel Mackey
Exercise resources from the MS Trust
Tremor in MS
Angela Davies Smith, Tania Burge, physiotherapists
Audrey's story
Audrey Finlayson
August 2011
Read Open Door August 2011 as a PDF (1.7Mb)
MS and access to services
Nicola Russell, MS Trust
Oral disease modifying treatments in the management of MS
Richard Nicholas, neurologist, David Wilkie, trial administrator
Men, MS and sex
Alan Beevers
MS Trust comes of age!
Pam Macfarlane, MS Trust
May 2011
Read Open Door May 2011 as a PDF (1.2Mb)
What does policy mean to people with MS?
Nicola Russell, MS Trust
A new chapter
Leonie Martin
Mindfulness training for people with multiple sclerosis and their carers
Vanessa Hope, Bangor University
Relapses
Fiona Barnes, MS nurse
Sportability
David Heard, Sportability
February 2011
Read Open Door February 2011 as a PDF (1.3Mb)
2011 - What will the year bring for people with MS?
Coping with primary progressive MS
Alan Beevers
Working with people with primary progressive MS
Alison Smith, rehabilitation nurse
Core stability training in MS
Margaret Gear, Helen Hunter, Dr Jenny Freeman, physiotherapists
Running alongside MS
Sarah Mead
Wildlife of a garden
Jennifer Owen
November 2010
Read Open Door November 2010 as a PDF (1.3Mb)
What is the MS service like in your area?
CCSVI theory: an update
Dr Lucy Matthews, Dr Jacqueline Palace, John Radcliffe Hospital, Oxford
Standing in the management of MS
Wendy Hendrie, physiotherapist
Dropping unwanted baggage
Martin Baum
Constipation - a difficult story to tell
Amelia Southard
Never give up never give in
Alun Jones
August 2010
Read Open Door August 2010 as a PDF (1.7Mb)
Health care priorities for the next decade
Inspiring the researchers of tomorrow
Dr David Colthurst, Simon Langton Grammar School
Making treatment choices
Dr David Footit, neurologist
Sativex
Chris Jones
Voyage of discovery
Mike Laver
May 2010
Read Open Door May 2010 as a PDF (1.9MbKB)
MS and me - not just waffle!
Nikki Embrey, Carole Chance, Sandra Evans and Liz Gumbley
Yoga and MS
Alison Potts
Bowel management
Noreen Barker, MS nurse
The bank that gives hope
Dr George Gveric, UK MS Tissue Bank
Rambling for wheelchair users
Eva McCracken
Gliding down
Katie Priest
February 2010
Read Open Door February 2010 as a PDF (1.2Mb)
The nice things in life
Anne Brennan
Staying smart and staying afloat
Jeffrey N Gingold
Fatigue management in MS
Alison Nock and Vicky Slingsby, occupational therapists
Standing up for MS
Emma Taylor
November 2009
Hope for all aspects of MS
A report from the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS)
Living with MS
Adrian Goodman
The Disability Law Service
Aidan Crook, Disability Law Service
Palliative care - a real choice to live and die with dignity
Jill Lovell
August 2009
American Academy of Neurology 61st annual meeting
Lost in information
Simon Webster, MS Trust
Are you sitting comfortably..? Posture and MS
Wendy Hendrie, physiotherapist
Stem cells: the hope and the hype
Professor Neil Scolding, neurologist
Peddling hope and stem cells
Linda Oatley
Living with progressive MS in the family
Dr Ceri Bowen, research fellow, Anna MacLohose, research psychologist
Depression in MS
Dr Martin Duddy, neurologist
May 2009
What is important to people with MS?
Nicola Russell, MS Trust
Talking to children about MS
Carole Bennett
Twenty something and MS - alternative views
Sally Young and Sarah Ransley
Blokes talking
Chris Manners
Losing concentration
Helena Jidborg-Alexander
February 2009
Department of Health Risk-sharing Scheme: six years on and some
Tracy Nicholson, MS Trust, and Mike Boggild, neurologist
Twenty something and MS
Gus Alexiou
shift.ms
George Pepper
Out and about on my tricycle
Sarah White
Managing stress in multiple sclerosis
Gail Kinman, Reader in Occupational Health Psychology
November 2008
Managing and treating spasticity and spasms
Louise Jarrett, spasticity nurse specialist
Stay active writing competition
Treating MS bladder symptoms
Prof Clare Fowler, urologist
Life with continence problems
Nick Beedle
August 2008
Spasticity and spasms
Louise Jarrett, spasticity nurse specialist
Audit of MS services
Chris Jones, MS Trust
The Red Wheelies
Jackie Weedon
Can the monster shrink?
Jo Johnson, consultant neuropsychologist
A 63rd birthday surprise
Ann Minshull
May 2008
The MS Trust: the early years
Chris Jones, MS Trust
Everybody needs good neighbours
Arli Miller, MS Australia
Benefits of a standing wheelchair
Sarah Morris
From the end of the world to the end of the Wall
David Eliot
February 2008
Blooming marvellous
Paula Barrett
Social networking online - you are not alone
Helena Jidborg
Vertigo in multiple sclerosis
Anne McGlynn, neuro-rehabilitation specialist physiotherapist
Botulinum toxin
Michael P Barnes, Professor of Neurological Rehabilitation
Information prescriptions and getting the most from appointments
Lynn Fox, information officer
November 2007
A design for my Dad
Emma Shavick
Risk - what your clinician should tell you
Richard Thomson, Professor of Epidemiology and Public Health
August 2007
Access to effective help and support
Working with MS
Gail Townsend, research occupational therapist
At work with MS: managing life and work
Move it for MS
Tim Worner
May 2007
Patient centred care - myth or reality?
The cost and quality of life and MS
MS and relationships
Catherine Allen, Relate
My MS
James Buxton
February 2007
MS and neurological services in the UK
Nicola Russell, Director of Services, MS Trust
Ten years of making a difference
Incontinence pads and beyond
Jenny Henderson
MS research - theories and areas for progress
Professor Alasdair Compston
Primary progressive multiple sclerosis
Dr Valerie L Stevenson
FES and me
Graham Rimington
Sculpture from wire
Edward Netley
November 2006
For knowledge itself is power
The MS Trust Information Service - an evaluation
Stem cells and the future of MS research
How much fluid does an incontinence pad hold?
Continence advisory services and the provision of continence pads
Ian Pomfret, Continence Adviser, Chorley and South Ribble PCT
Not all bladder problems are MS
Climbing up the wall with MS?
David Parsons
August 2006
MS services: who takes responsibility?
The young person's guide to MS
IT can change lives
Carrie St Freedman, AbilityNet
Accessibility features built into Windows
Ruth Loebl, Royal National Institute of the Blind
MS, doctors and disappointment
Sarah Martin
May 2006
Stem cells - evidence and risk
The value of a good diet
Rita Greer
The Italian job
Ken Dickson
Hippotherapy - a new movement experience: what fun!
Lesley Furnell, physiotherapist, Revive Scotland
Conquistador horses - a therapeutic ride
Alexander Burnfield
February 2006
The Lady Mayoress and MS
Sarah Joiner
A reasonable approach to diet
Allen Bowling and Thomas Stewart, Rocky Mountain MS Center, Colorado
November 2005
Complementary and alternative medicine and MS
Vicki Gutteridge, MS specialist nurse, Southampton
To move or not to move? That was the question...
Carol Felton
August 2005
Revisiting my home - Uganda
Sarah Bourne
Belly dancing a therapeutic tool - or just a belly laugh?
Vanessa Hall, sometime dancer, enthusiast and neuro-physiotherapist
Connections and Reinventions- art and MS
May 2005
Functional electrical stimulation
Geraldine Mann, Physiotherapist, Salisbury
Rehabilitation
Barbara Chandler, Consultant in Rehab Medicine, Newcastle Upon Tyne
Where there's a will (or always read small print in insurance policies!)
Kathryn Higham
February 2005
Patient involvement in the NHS
Nicola Russell, MS Trust
Living with MS
Steve and Beth McGowan
Exercise by the Aga... how I'm trying to beat MS
Edith Rifkind
October 2004
MS - my journey so far
Alison J Dunsmore
10 tips for coping when you have MS
Dawn Langdon, Psychology Department, Royal Holloway College, London
Bladder problems in MS
Annette Leach, MS Nurse Specialist, Reading
August 2004
Tapping the potential of community pharmacies
Melanie Smaus, PSNC
Coming to terms with MS - a partner's perspective
Lesley Crawford
Aquafit
Ellie Hollingsworth
May 2004
Fatigue management
Jacqueline Toff
Speech and language therapy and MS - beyond the glottal stop
Steven Bloch, Speech and Language Theraspist/Lecturer, UCL, London
March 2004
Direct Payments - tool for independent living
Jill Lovell, Mel Thompson, Robin Maxted
MS in the family
Kerry Mutch, MS specialist nurse, Walton Centre, Liverpool
November 2003
Aromatherapy for pain in multiple sclerosis
Amanda Howarth, clinical nurse spcialist - pain, Chelsea and Westminster Hospital
Gather jewels from the week: women talk about their positive strategies for living with MS
Frances Reynolds and Sarah Prior, Brunel University
August 2003
MS, pregnancy and parenthood
Kate Watkiss, MS specialist nurse, Shrewsbury
Sexual dysfunction in MS
Nicki Ward, MS specialist nurse/lecturer, Birmingham
May 2003
The information needs of people with MS
Diet and MS?
Bernice Chiswell, dietician, Bedford
The healing value of sex
David Spero
February 2003
Tips for living with MS: work, rest and play
Get into it! - Get involved!: new patient organisations and the NHS
Jonathan Russell, MS Trust
Wellness
Jill Lovell
Well-being in MS
Michelle Ennis, MS clinical specialist occupational therapist, Walton Centre, Liverpool
Jenny Craig, physiotherapist, Walton Centre, Liverpool
November 2002
How I went into care and lived!
John Major
Functional electrical stimulation in multiple sclerosis
Catherine Johnson, Department Of Medical Physics, Salisbury District Hospital
Exercise experience in the context of MS
Kath Cuthbert
August 2002
Wheelchairs - a health professional's perspective
Gail Townsend - MS specialist occupational therapist, Aylesbury
What is your opinion of your wheelchair?
Members Of MS People UK Discussion List
Wheelchairs - depressing black cloud or handy labour saving gadget?
Liz Betts, physiotherapist, Newmarket
May 2002
Conversations, observations, and exclamation
Gerald Levy, former university lecturer
MS: issues around the diagnosis
Alexander Burnfield, consultant in child and adolescent psychiatry, Hampshire
Does early treatment of multiple sclerosis prevent the progression of disability later on?
Alisdair Coles, Wellcome Advanced Fellow Neurology, University Of Cambridge
Amanda Cox, research fellow, Addenbrooke's Hospital Cambridge
November 2001
Being a father with MS
Gary Hetherington
A partner with MS
Frank Norman
Defining boundaries
Lynda Hind, neurological nurse specialist, Holt, Norfolk
August 2001
Homoeopathy and multiple sclerosis
Dr Tom Whitmarsh, Glasgow Homoeopathic Hospital
Finding disability equipment
Sally Atkinson, senior physiotherapist, Berkshire MS Therapy Centre
May 2001
Personal views of rehabilitation services
Personal exercise training for people with MS
Michael Hills, sport and exercise science consultant, Bridgwater
Physiotherapy for people with MS
Liz Betts, senior physiotherapist, Newmarket Community Hospital, Suffolk
August 2000
Pain in multiple sclerosis
Amanda Howarth, clinical nurse specialist in pain management, Sheffield
Fatigue in multiple sclerosis: an occupational therapy perspective
Jane Streeter, senior occupational therapist, National Hospital, London
Miriam May, formerly senior occupational therapist, National Hospital, London
Reflections upon communication and MS
Steven Bloch, speech and language therapist, Worthing
Acupuncture and MS
Jill Brookes, acupuncturist, Tyne and Wear
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