Primary progressive MS exposed
Published January 2011
This publication will be reviewed in three years.
Contents
- Key information at a glance
- What is primary progressive MS?
- How primary progressive MS differs from the other forms of MS
- Clinical features
- Pathological features
- Diagnosing primary progressive MS
- Diagnostic criteria
- Tests that may be carried out to diagnose primary progressive MS
- Symptoms of primary progressive MS
- Symptoms commonly seen in primary progressive MS
- Other symptoms that may be experienced
- Complications and other concerns
- Progression
- Predicting how primary progressive MS might progress
- Management of primary progressive MS
- Drug treatment
- Rehabilitation medicine
- Prevention of complications
- General health and wellbeing
- Complementary and alternative therapies
- Trials in primary progressive MS
- Challenges to trials
- Past and current trials
- Questions still to be answered
- Future research priorities
- Living with primary progressive MS
- The MS journey
- Impact of diagnosis
- Coping with increasing disability and maintaining independence
- Working with primary progressive MS
- Maintaining social relationships
- Final thoughts
- Sources of support
Author
Alison Whittam
Information Officer, MS Trust
Thank you
The MS Trust would like to thank the following health professionals for their expert advice during the development of this book:
- Professor Alan Thompson, Consultant Neurologist, National Hospital for Neurology and Neurosurgery, London
- Professor Chris Ward, Consultant in Rehabilitation Medicine, Derby Hospitals NHS Trust, Derby
- Dr Belinda Weller, Consultant Neurologist, Western General Hospital, Edinburgh
- Mary Fraser, MS Specialist Nurse, Addenbrooke's Hospital, Cambridge
- Alison Smith, Rehabilitation Specialist Nurse MS, Derby Hospitals NHS Trust, Derby
We would also like to thank everybody with primary progressive MS who completed our questionnaire. Particular thanks go to Alan, Edith, Linda and Tony for reviewing the book and providing invaluable comments. Without your help this book would not have been possible.