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Talking with your kids about MS

Published March 2010


Contents

Talking with your kids about MS cover
Talking with your kids about MS

What if we don't talk?

What if we do talk?

Talking about MS for the first time

Keep talking

Will they be upset?

What should I tell my kids about MS?
How did you get MS (and will I get it)?
Can you die from MS?
What's going to happen?
Is it my fault you've got MS?

Should I get my kids to help?

What can I do to help my kids?

When should I ask for help?

Finding the positives

Further information

Authors

Jo Johnson
Consultant Neuropsychologist

Jo Johnson has specialised in neurology since 1995. She has worked extensively with families over the last ten years and facilitates groups for the partners and children of people with MS and brain injury in Sussex.

Janice Sykes
Information Officer, MS Trust

Thank you to

All the parents with MS who have made this book possible through sharing their experience.

For their help in preparing this publication

  • Dr Alexander Burnfield
  • Kerry Mutch
  • Vicki Matthews