Talking with your kids about MS
Further information from the MS Trust:
MS: what does it mean for me?
For people newly diagnosed with MS - a practical introduction to MS to help answer questions at a time of uncertainty and maintain a positive attitude
MS Explained
A guide to what MS is and to help people understand the mechanisms of the disease.
The young person's guide to MS
Written with the help of 10-16 year olds who know what it is like to have a parent with MS and who share their experiences, worries and emotions about living with MS in their family.
Kids' guide to MS
Aimed at 6-10 year olds who have a mum or dad with MS. Fuly illustrated in bright colours with engaging characters, this is a book that children can read on their own or with a parent.
Other organisations:
Parentline Plus
A charity which offers support to anyone parenting a child.
T: 0808 800 2222
E: parentsupport@parentlineplus.org.uk
MS Society of Canada
The Growing Up Strong project was undertaken by the MS Society of Canada in 2002-2004 to support children of parents with MS. A report of the findings is available on the website.
MS Society UK
Provides a variety of publications and web-based resources to help explain MS to children.
T: 0808 800 8000
The Princess Ropyal Trust for Carers - Yong Carers site
An interactive website with information, discussion boards and live webchats for young people.
T: 0844 800 4361
- Talking with your kids about MS
- Contents
- Talking with your kids about MS
- What if we don't talk?
- What if we do talk?
- Talking about MS for the first time
- Keep talking
- Will they be upset?
- What should I tell my kids about MS?
- Should I get my kids to help?
- What can I do to help my kids?
- When should I ask for help?
- Finding the positives
- Further information
