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The future is bright..the future is planned?

23rd August 2010 by Hellie

I went to see the Neuro today, nothing exciting to report, I asked a bit about Vitamin D. But in all honesty I don’t think he was too bothered, I am walking, I am working, so off you go see you in a years time. Later I met a friend of mine and she asked me if we had discussed treatment at all, to which I said no.

The future is tricky to plan when it comes to treatment. My son is now 16 month, at the moment I don’t don’t to have another child because it feels to early. But say in a few years time, I probably will do, and to start treatment just to stop it is fiddly. Or even worse if I would start one of the oral drugs that would maybe even make me sterile. All these things I don’t want to think about right now. I just want to live, work and enjoy watching Tycho grow up.

I guess where I am going with this is that most people in their 30′s do think they are going to live forever anyway, and don’t want to think ahead so much. Unless for maybe planning a holiday next summer…But as a person with MS I guess sometimes you should think ahead a little bit sometimes, like with treatment. Or like with another hot topic at the moment…respite care. I don’t think any of us wants to think about these things, and when we do often very negative things are thought. It really doesn’t have to be like that. I just read a post on the MS Society’s forum which I thought very good,talking about the need for respite care. I know you probably don’t want to think about it, but at least I would urge you if you are a member of the MSS to go and vote, as whether you want to think about it or not, you’d hope that if you’d end up needing respite care that there would be one centre there for you! So go Vote!

xoxo

Hellie

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Burning Tongue Syndrome?

2nd August 2010 by Hellie

Ok I am fed up with sicknesses and what nots! My husband ended up in hospital over the weekend with a quinsey. I had never heard of them…and they are not pleasant…at all! Me I seem to have developed some strange tongue thing. It felt like I had eaten too hot food yesterday, and today they whole tongue is burning. WTH! I felt really weird today, very close to puking. Had an unset stomach all weekend, so god knows what is going on. Maybe my imune system has had enough?

Haven’t looked up burning tongue and MS, so easy to think everything has something to do with that. But really I am just fed up of picking up every single weird thing that is thrown at me!

MEH!

xoxo

Hellie

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Hello again!

22nd July 2010 by Hellie

Hi all!

Sorry I have been so bad at updating! Since my last post I have gone back to work again for 3 days a week, while Tycho is at nursery. I have also managed to have 3 colds, 1 flu and one hand, foot and mouth virus. Yes..for me not Tycho. He has gotten colds from nursery but that has been it. Me I am a magnet when it comes to these things, and nursery children are cesspits filled with them. So it is a match made in heaven…or maybe hell. Anyway! Sickness aside I have been doing ok!

I am glad to be back at work, get the old noggin active again. Thinking of other things than what to make for lunch and when was the last time I changed a nappy. But having the 2 extra days with Tycho every week is gold worth so I am very happy. I think I got the balance right!

MS wise I haven’t been to bad. When I had the flu, I was floored by fatigue, but as I rarely get a temperature, it really messed up my system. Some of the colds also brought on tingly arm and leg. Had one day of feeling pain in my arm. That alarmed me as one of the longest relapses I have ever had, started with that same pain in that arm. But after a day of it, it stopped. Think also it could have been hormone related.

On that note, my body seems to be functioning normal again. I breastfed for 13 months. Ok I have to take a little moment and brag here 13 months!!! After that GP told me to back it in after 8 weeks! Ha! But mother nature was kind to me during those 13 months and things didn’t return until normal until well actually my first week back at work….maybe not a welcome that you wanted but hey ho. But as my symptoms always have flared up a little close to my period I guess I just have to get used to it again.

In August I am going to see the Neuro again. Should be good, but I don’t think I will have much to tell him since last time. Doubt that he will be wanting to put me on any DMT’s any time soon…touch wood!

Tycho is doing well, in true Tycho fashion he is taking things in his own pace. He walks well if you hold his band, or if he is holding onto a walker or a wall. But letting go all together is still scary. We tricked him a bit yesterday, by giving him two toys to hold on to and off he went. Manged to catch some on camera.

I still do think about the risk of him getting MS, I know I shouldn’t but it is hard not to. I try to make sure we go out and get plenty of sunshine as much as we can. As we walk to nursery with the pushchair everyday that is a good start. And yes I do put sun-factor on him and no I don’t take him out if the sun is crazy. But I am trying to drill in the idea of fresh air in his head, and he loves being outside. His favourite place is however in costa coffee downtown. Where he flirts something terrible with a barista, and shouts happily at all guests. He has been dubbed their youngest regular and favourite customer. Not bad for a 15 month old!

xoxo

Hellie

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Nursery

20th April 2010 by Hellie

Hello Hello,

So sorry that I haven’t written in ages! Live is good! We been to Sweden and survived the plane without much issues, a bit of crying when he got tired but with a bit of breastfeeding and he was sound asleep! Now we are back and trying to settle in to life again. Well it will change again soon! On Monday I go back to work! Crazy that it has been over a year! Ohh many exclamation marks

Yes, on Monday I go back to work for 3 days a week, I am looking forward to it and also dreading it a bit. Looking forward to returning to my job and my colleagues who I have missed a lot, looking forward to thinking about other things than nappies and milk. But dreading missing Tycho, but mostly dreading him not settling in at nursery.

Last week we spent two settling in appointments at the nursery, first one was for one hour and he was a gem, the nursery worker in charge said he was a delight to look after. The second time he went for 4 hours, half of it was good but come nap time and after he was so sad, cried and cried. When I showed up he flew into my arms and he was very upset. Tycho is not extremely cuddly when he is sad, more like he gets so mad he pushes you away, so it was little they could do. Later that evening I could tell he was both teething (poor boy got 2 new ones coming to add to the 8 he already got) and gotten a cold so I guess that was the reason mostly, he has been quite sad during the weekend too.

Tomorrow he is going for 3 hours. Not during nap time this time, I really hope it goes well! I can tell he likes his keyworker, she is lovely, so I know he is in safe hands, I just hate the idea of him crawling around sad and angry pushing her away and working himself into that state he was in last week :( Well I am keeping my fingers crossed!!

Apart from that things are good. I am still breastfeeding, I wanted to try and give up for when I go back to work, but maybe that is just being too cruel to the boy. Too much too soon. I am just doing it first thing in the mornings anyway, so I reckon we can do it for a few more weeks.  Hopefully giving up wont make me relapse or anything silly like that. I also hope returning to work will not make my fatigue come back with a vengeance, but I suspect it will, at least in the beginning.

Well in risk of sounding very corny a new adventures starts! This past year has been the most amazing in my life so far, I know us MSers are all different but for me motherhood and pregnancy has been almost as good as a cure of sorts.

xoxo

Hellie

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More sick

20th March 2010 by Hellie

After 3 weeks of colds and winter vomiting bug. Me and Tycho have had a lovely week. However today he has been vomiting again. First we thought it was due to the jar of pesto and pea pasta, that he really turned his nose up on. But it is more likely he caught something at the tumble tent, a soft play area, we went to yesterday. He was chomping away at the toys and balls on the floor. And it is Vomiting season after all. Now I just hope me and Steve wont catch whatever he got this time too. Last time it totally wiped us out.

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