I went to see the Neuro today, nothing exciting to report, I asked a bit about Vitamin D. But in all honesty I don’t think he was too bothered, I am walking, I am working, so off you go see you in a years time. Later I met a friend of mine and she asked me if we had discussed treatment at all, to which I said no.
The future is tricky to plan when it comes to treatment. My son is now 16 month, at the moment I don’t don’t to have another child because it feels to early. But say in a few years time, I probably will do, and to start treatment just to stop it is fiddly. Or even worse if I would start one of the oral drugs that would maybe even make me sterile. All these things I don’t want to think about right now. I just want to live, work and enjoy watching Tycho grow up.
I guess where I am going with this is that most people in their 30′s do think they are going to live forever anyway, and don’t want to think ahead so much. Unless for maybe planning a holiday next summer…But as a person with MS I guess sometimes you should think ahead a little bit sometimes, like with treatment. Or like with another hot topic at the moment…respite care. I don’t think any of us wants to think about these things, and when we do often very negative things are thought. It really doesn’t have to be like that. I just read a post on the MS Society’s forum which I thought very good,talking about the need for respite care. I know you probably don’t want to think about it, but at least I would urge you if you are a member of the MSS to go and vote, as whether you want to think about it or not, you’d hope that if you’d end up needing respite care that there would be one centre there for you! So go Vote!
xoxo
Hellie
Recent Comments