In a new blog, a person with MS chronicles her journey taking part in a clinical trial for the drug bexarotene. Part 6, where Hellie ponders what it feels like to be a part of a clinical trial
In a new blog, Hellie chronicles her journey taking part in a clinical trial for the drug bexarotene. Part five, where Hellie waits for drugs, for a loooong time..
The MS Trust only has a small team of staff, based in Letchworth in Hertfordshire, so we rely on our volunteers to act as our representatives around the UK. Our volunteers act as the face and voice of the MS Trust in their local area, raising funds and awareness of MS and our services.
Anne and Jim Thompson have organised many fundraising events and challenges over the years, from Easter egg tombolas to open water swimming. Anne tells us why they support the MS Trust and about her husband Jim’s latest challenge to trek the length of the UK
In a new blog, a person with MS chronicles her journey taking part in a clinical trial for the drug bexarotene. Part 4, where Hellie takes some massive pills for the first time.
“I want to encourage people who are not confident in the kitchen to stick on that apron and get cooking” James Coke, diagnosed with MS over 20 years ago, tells us about the inspiration behind his blog The Disabled Chef and shares some top tips for cooking with a chronic condition.
It’s that time of year when everyone is jetting off on holiday, but when you have MS there’s often a bit more planning involved before you can pack up your suitcase and head to the beach. Where can you find accessible accommodation and attractions? How do you organise travel insurance? What are the rules around travelling with medication? These are just some of the many questions you may face. So whether you’re planning a holiday overseas or a last minute trip somewhere in the UK, this article goes through a few key things to think about in advance.
During the month of May, over 100 people walked, ran, swam, jogged, rowed, arm cycled, wheeled and more as part of Miles for MS, our brand new accessible distance challenge. We caught up with some of those who took part to find out why they wanted to get involved and how exercise has helped them live well with MS.
Having hidden her MS for a number of years, Lisa Murray-Lang decided to put pen to paper and write a book about her life with the condition as a way of letting others know. This is Lisa’s inspiring story.
Last summer, thanks to our incredible supporters, the first MS Trust-funded MS specialist nurses arrived at Leicester Hospitals. Since then, we’ve also helped to bring new nurses to Bradford and Lanarkshire, and soon Hull. Together, they’ve made a world of difference to thousands of people living with MS. We caught up with Leicester nurse Jon Maisey to find out about his first year in post, and Jenna Chudasama, to hear about the invaluable support he’s given her.