News

In light of today's news on ocrelizumab for primary progressive MS (PPMS), Ian Daly writes about the day to day reality of living with PPMS. 

The MS Trust is hugely disappointed that NICE is unable to recommend ocrelizumab as an NHS treatment for early primary progressive MS.

In a new blog, a person with MS chronicles her journey taking part in a clinical trial for the drug bexarotene.  Part 9, where Hellie gets to see her "impressive" yet alarming liver values.

• Adapted gaming control launched
• How common are sexual problems?

In a new blog, a person with MS chronicles her journey taking part in a clinical trial for the drug bexarotene. Part 8, where Hellie suddenly encounters a bunch of issues.

Being, a short film directed by Devlin Crow, tells the story of a young boy who cares for his mother who has MS. 

• Ibudilast slows atrophy in progressive MS
• Sleep affects MS symptoms
• Tecfidera and Gilenya compared
• Managing functional illness

Ibudilast slowed down the loss of brain volume in primary and secondary progressive MS by almost one half compared to placebo according to results published in the New England Journal Of Medicine.

Rich from Dorset tells us why he is taking on a 50-mile tandem cycle challenge in aid of the MS Trust.

In a new blog, a person with MS chronicles her journey taking part in a clinical trial for the drug bexarotene. Part 7, where Hellie gets chatting to someone who is finishing the trial

• The meaning of exercise
• Frequency of swallowing problems

• New mum diagnosed with MS
• Rare genetic changes linked to primary progressive MS
• Early termination of pregnancy increases risk of relapses

• Congratulations to Trishna Bharadia
• Smoking and relapses
• Travelling with disabilities
• Long delays for neurologist appointments in Northern Ireland
• Botox for bladder problems

In a new blog, a person with MS chronicles her journey taking part in a clinical trial for the drug bexarotene. Part 6, where Hellie ponders what it feels like to be a part of a clinical trial

In a new blog, Hellie chronicles her journey taking part in a clinical trial for the drug bexarotene. Part five, where Hellie waits for drugs, for a loooong time..

The MS Trust only has a small team of staff, based in Letchworth in Hertfordshire, so we rely on our volunteers to act as our representatives around the UK. Our volunteers act as the face and voice of the MS Trust in their local area, raising funds and awareness of MS and our services. 

We’d like to thank everyone at Captify’s London office for choosing MS Trust as their charity of the year and working so hard to raise £30,000 in support of people with MS. 

Anne and Jim Thompson have organised many fundraising events and challenges over the years, from Easter egg tombolas to open water swimming. Anne tells us why they support the MS Trust and about her husband Jim’s latest challenge to trek the length of the UK

 The MS Trust will be coming together with 200 charities to raise awareness of what can be achieved thanks to people leaving gifts in their wills.

In a new blog, a person with MS chronicles her journey taking part in a clinical trial for the drug bexarotene. Part 4, where Hellie takes some massive pills for the first time.