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MS Trust staff, MS health professionals and people with MS offer their perspectives on hot topics in the world of MS
Our free, quarterly newsletter for people with multiple sclerosis, their family and friends and supporters of the MS Trust.
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At the MS Trust, we are often surprised by the amazing things people do to raise money to support those living with MS, but when Caitlin's mum got in touch we were particularly delighted!
NICE has published a draft of the revised clinical guideline Management of multiple sclerosis in primary and secondary care and has invited comments from registered stakeholders.
A letter to The Telegraph today suggests that more than half of people with MS in the UK may not be getting access to treatments they need.
A free app (SymTrac) that enables people to track their MS over time was launched yesterday.
If you would like to run the Virgin Money London Marathon on 26 April 2015 to support people affected by multiple sclerosis, don't forget to enter the public ballot for a place when it opens on Tuesday. You can also contact the MS Trust to apply for a Gold Bond charity place.
Fantastic fundraiser Kenny Smith followed up his 2012 Sahara Trek and London to Paris cycle ride by going on to conquer Mount Kilimanjaro last October, and he's written an amazing article about his trip.
John Nicholson took part in the first ever RideLondon-Surrey 100 event last year. John shares his top tips for anyone considering taking part cycling events.
Get your tickets now for a Charity Night at The Beat Nightclub in Edinburgh, in aid of the MS Trust and the MS Therapy Centre Lothian.
The Scottish Medicines Consortium (SMC) has approved dimethyl fumarate (BG-12, Tecfidera) as a treatment for relapsing remitting multiple sclerosis on the NHS in Scotland.
The MS Trust welcomes the decision by SMC.
Dont forget that it's Mother's Day this Sunday (30th March). Why not send a card with a difference this year?
Brain volume loss and progression of the condition were both slowed and quality of life was improved
140 people with secondary progressive multiple sclerosis took either high dose simvastatin (80mg/day) or placebo in this two year, phase II clinical trial. MRI scans measured brain volume during the course of the study, disability was measured using the EDSS scale and participants completed questionnaires to measure the impact of MS on day-to-day living. Simvastatin was well tolerated by the participants.
Reports of preliminary findings from a study due to be presented at the American Academy of Neurology meeting in April suggests that the contraceptive pill may be a risk factor for developing MS.
That was the headline on the very first issue of our newsletter Open Door. Simon, who joined our information team in 2000, reports on how our service has developed in response to changing needs over the years.
Jill Lovell has lived with MS for over 30 years and has been involved in the work of the MS Trust since the early days. Here she looks back on some of the big changes of the last 21 years.
Nicki Ward-Abel has been an MS nurse since 1997. Here she remembers how the MS Trust helped transform MS nurse training for the benefit of everyone affected by MS.
- Our GEMSS programme helps safeguard the role of an MS nurse at Northumbria NHS Trust
- The programme enters its second phase with ten new teams from around the UK
When Liz Hilland from Country Durham found out she had multiple sclerosis in 1999 she knew very little about it and feared it was an end to the life she knew. Since then she become involved in raising funds and awareness to help others understand more about MS and show that life goes on after diagnosis. Last year she took part in a zip slide from the Tyne Bridge as part of our Be Bold in Blue campaign.
Over the last 10 years Anne Thompson, whose son has MS, has been one of the MS Trust’s most dedicated fundraisers. All in all she’s raised almost £15,000 – that’s enough to pay for the writing and printing of our new guides to managing MS bowel and bladder problems.
At the MS Trust we believe that everyone with MS should have access to an MS specialist nurse. We believe that MS specialist nurses are the best people to help you manage the whole range of health issues around MS.
Getting a handle on MS can be hard enough when you live with it yourself. But it can often be just as tricky for children and young people to understand why their mum or dad is too tired to play or why they might have to help out more at home.