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With a glittering career as a chef, restaurant owner and lecturer, Jonathan Reen was in the prime of his life. Then, at the age of 46, he was diagnosed with primary progressive MS. For six months, as his symptoms got worse, he had to give up the work he loved. But now, after a period of readjustment, he’s set up Urban Chefs, a new business offering cooking lessons to people in their own homes. Here he explains how his lifelong passion for food has kept him going through the ups and downs.
Telling your nearest and dearest that you’ve just been diagnosed with MS can be tough. People’s reactions will vary from being stunned into a very long silence to wanting to wrap you in cotton wool and do everything for you.
Explaining MS to people can be really difficult at the best of times. Explaining MS to people when you are newly diagnosed is even harder.
We spoke to Steve and Cat, who trekked Kilimajaro in 2008, for their advice on preparing for the challenge
Kenny Smith, one of our most loyal supporters, is currently busy training and fundraising in preparation for his Kilimanjaro trek in October 2013. Here he shares some of his training tips.
This was my second year taking part in the MS Trust’s cycle race at Goodwood and I knocked 20 mins off my time – 2hrs 15mins to beat next year then! I support the event for several reasons and it has been great fun to attend with my family and friends. My younger brother suffers with secondary progressive MS so I like to try and do something for an MS charity each year.
Rachel Coffey-Brittain has raised more than £1,100 for the MS Trust by taking part in a sponsored skydive as part of our Jump in June campaign. As our skydiving month draws to a close, Rachel tells us about her experience and how her own MS diagnosis led her to try something new.
Diane Evans on the inappropriate and unthinking ways that some people talk to a person with multiple sclerosis and why it’s best to stop, look and listen before holding forth on MS
Fate tapped me on the shoulder in a room at the National Gallery in London’s Trafalgar Square.
It was the room where the Titians are, and, even if it sounds like Pseuds Corner in Private Eye, I was analyzing Titian’s late masterpiece “Diana and Actaon”.
Although Friday is the end of the working week, MS Awareness Week continues right through to Sunday 5 May – and Bold In Blue events will continue right through the month and beyond. So there is still plenty of time to to get involved and make a difference!
We’re very grateful to our patrons Jackie and Laurence Llewelyn-Bowen who appeared on ITV’s Lorraine show this morning, talking about MS Awareness Week. Both Jackie and Laurence’s mothers were diagnosed with MS, so they have a real understanding of the day-to-day reality of the condition.
I'd always wanted to do a triathlon, but being diagnosed with MS makes you wonder, is it something I can do? It made me question many things about my life and what the future has in store.
People with MS often experience strange sensations in the skin. They can be really hard to describe and feel downright weird.
What is it like to have fatigue (it is really awful) and how can we explain fatigue to others who have never experienced it? (almost impossible)
An MS Nurse from Sheffield who is in training for a sponsored cycle from London to Paris, has been nominated for our Super Nurse Award. This award recognises nurses who make a real difference for people with multiple sclerosis.
Vitamin D (vitamin D3) is created in the skin when exposed to ultraviolet B radiation in sunlight. In the UK, between May and September, about 20 to 30 minutes a day spent outdoors in direct sunshine in the middle of the day will meet vitamin D needs for most fair skinned people. Factors such as darker skin, the use of sunscreen, levels of pollution and the unpredictability of the British summer can all lower availability and between October and April, the level of ultraviolet is too low for vitamin D to be made.
Many people are intensely interested in what is happening in MS research. On Saturday, I was lucky enough to go to a Research Day held by Barts and The London School of Medicine and Dentistry, with UCL Partners, to hear what research they are doing and what it might mean for people with MS. This research group includes some of the top researchers in MS in the UK and they are keen to get people involved. The audience were mostly people with MS, their friends and family.
Why multiple sclerosis is classed as a life long condition and not as a terminal illness.