Eden, 15, first noticed symptoms of MS when she experienced double vision during a game of netball
I went to catch the ball during a netball match and remember seeing double. It was a few days before I said anything but I eventually told my parents, they took me to the GP and then I was transferred to Queen’s Hospital. They didn’t know what it was at first, but I was given steroids and that got rid of the double vision. I had to stay in hospital for a week.
I was diagnosed with MS in April 2016. I had an MRI scan to see if I had any lesions on the brain and that was quite scary! I didn’t know what MS was at first, so I didn’t really think anything of it, but the doctor explained it as being a bit like an electrical cable that gets damaged and so doesn’t always work properly, and that helped me understand it better.
I started treatment about a month after I was diagnosed. I was on Rebif at the beginning; it was quite hard to inject myself at first, but then I got used to it. I then changed medication about four months ago to Tysabri because my hair started to fall out. I am finding that much better – I haven’t experienced any symptoms since.
I didn’t tell my friends and teachers straight away, but now I do try and explain to people what MS is. I am doing a speaking and listening exam on MS at school soon. We have to give a three-minute speech on anything we want, and then you get asked questions for six minutes in front of the class.
To anyone diagnosed with MS I would say ‘Don’t panic’. It’s not the end of the world and you will get help.
MS Trust launches 'Move it For MS' exercise campaign for MS Awareness Week
25 April 2019
This MS Awareness Week, we are calling on people with MS to pop on their pumps and introduce a little activity into their daily routine. Staying active doesn’t need to mean running marathons or going to the gym, it’s about doing it at your own level, at your own pace. Doing it YOUR way.
Don’t judge a book by its cover – Becky’s books help the MS Trust
24 April 2019
Our supporter Becky is raising money for the MS Trust with the sale of her beautiful handmade notebooks.
EMA recommends temporary restriction on use of Lemtrada
12 April 2019
The European Medicines Agency has recommended a temporary restriction on people who should start treatment with Lemtrada while a review of side effects is carried out.