7 - 13 April 2018
These are links to news stories from the last week that may be of interest to people in the UK. The link beneath each item will take you to the original story.
Please note that the MS Trust did not write the original items and does not endorse their content nor any claims made in them.
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Lemtrada and possible new side effects
Possible new side effects of Lemtrada have been identified. Although the side effects have only affected a small numnber of people, each is potentially serious. There have been eight cases of acute acalculous cholecystitis (AAC) (inflammation of the gall bladder), two of hemophagocytic lymphohistiocytosis (HLH) (an inflammatory blood disorder) and one of cardiac ischemia (poor blood flow to heart muscles).
Source: MedPage Today
MS Trust link: Lemtrada (alemtuzumab)
Tysabri study in SPMS
Results from a study of Tysabri (natalizumab) found that whilst the overall outcome showed the drug was no better than placebo as a treatment for secondary progressive MS, it did slow progression of upper-limb disability. These previously announced results have just been published in a medical journal
Source: Neurology Advisor
MS Trust link: Drug in development for secondary progressive MS
Fighting for housing rights
James Coke, who has MS and uses a wheelchair, was unable to get out of his first floor flat when the lift in the building was broken. Claiming a breach of his human rights, he refused to pay rent whilst the lift was out of order and successfully sought compensation. He encourages others in a similar situation to do the same.
MS Trust link: Personal stories of life with MS
Risk of infections when on DMDs
A Canadian study found that the beta interferon drugs and glatiramer acetate weren't associated with a higher risk of infections. More recent disease modifying drugs (DMDs) did raise the risk of an infection. The most common infections experienced were upper respiratory tract, urinary tract (UTI), skin-related, bronchitis, and pneumonia.
Source: MS News Today
MS Trust link: MS Decisions - a guide to the disease modifying drugs for relapsing remitting MS
MS in the Media
17 May 2019
- Statin has potential as SPMS drug
- EastEnders MS storyline
My Vespa adventure for the MS Trust
13 May 2019
For his next fundraising adventure, our supporter Nick Jolly will be riding 2,500 miles to Hungary on his Vespa scooter. He tells us about the inspiration behind his challenge.
"When you lose something, it makes you appreciate what you have"
13 May 2019
Danielle MacGillivray stars in our new film, Danielle. Here she tells us about her MS diagnosis, why she wanted to share her story in the film and learning to "appreciate the little things" every single day.