24 - 29 March 2018
These are links to news stories from the last week that may be of interest to people in the UK. The link beneath each item will take you to the original story.
Please note that the MS Trust did not write the original items and does not endorse their content nor any claims made in them.
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Scottish MPs told of neurology recruitment crisis
The Scottish Parliament’s Health and Sport Committee heard from Prof Malcolm Macleod, head of neurology at NHS Forth Valley about difficulties in recruiting new neurologists. Tanith Muller, vice chair of Neurological Alliance Scotland commented on the problems caused by use of locum neurologists who are not familiar with local support services for conditions like MS, leaving people struggling following diagnosis.
MS Trust link: Health professionals involved in the management of MS
MS nurses criticise cumbersome disability benefits system
An MS Society survey of more than 100 MS nurses found that 90% said they provided patients with evidence for benefits applications, with many of them doing so outside working hours. MS nurses report they are under increasing pressure to help people with benefit applications, as well as helping them cope with anxiety and stress before their assessments.
MS Trust link: Benefits
Fears that funding for independent living may be under threat
Article covers concerns that severely disabled people being cared for at home may be forced into residential care due to funding cuts. Includes case study of Jean Almond who has MS and is cared for at home with her husband, now 70, filling in the gaps between carers. Both are concerned that as her needs increase and her husband’s ability to support her decreases, funding for care packages may be reduced and she may be forced to move to a care home.
MS Trust link: Social care
MS in the Media
17 May 2019
- Statin has potential as SPMS drug
- EastEnders MS storyline
My Vespa adventure for the MS Trust
13 May 2019
For his next fundraising adventure, our supporter Nick Jolly will be riding 2,500 miles to Hungary on his Vespa scooter. He tells us about the inspiration behind his challenge.
"When you lose something, it makes you appreciate what you have"
13 May 2019
Danielle MacGillivray stars in our new film, Danielle. Here she tells us about her MS diagnosis, why she wanted to share her story in the film and learning to "appreciate the little things" every single day.