Supporting people affected by MS
At the MS Trust we believe one of the best ways to help people with MS is to support them to take more control of their MS. Our information team produces practical, evidence based information so you can:
• make choices that are right for you
• decide how best to deal with your health
• have better informed discussions with your health professionals.
If you have questions about MS we’re here to listen and help find the right answer for you.
We focus on health information but you, your friends or family can ask us about anything to do with MS. If we can’t find the answer ourselves we’ll try to suggest the best people to help.
We also produce a range of free resources for everyone affected by MS:
- books – on topics including living with MS, symptom management and information for families
- factsheets – including up-to-date information on drugs in development
- DVD – an exercise DVD for people with MS
- Open Door a newletter for people affected by MS
Supporting specialist services
The MS Trust is committed to supporting and developing MS specialist services in the UK because we believe that this will result in the best care for people living with MS.
Access to specialist services, and in particular MS nurses, is essential if people living with MS are to receive the full range of support they might need.
We work hard to produce evidence to identify what is required and demonstrate the value of specialist services.
Once services are in place, we provide specialist education and continuing professional development for health and social care professionals to ensure high quality services are maintained. Many people assume that this will be provided by the NHS. Sadly it is not, which is why the MS Trust’s education programme is a vital factor in building MS specialist services in the UK.
The MS Trust has long campaigned to increase the number of MS nurses in the UK, but there are still not enough.
Worse still, some existing MS nurses are at risk. The MS Trust’s MS Nurse Support Programme plays a crucial role in protecting and developing these specialists. We offer one to one mentoring, advocacy to specialists facing reviews of their services and a range of tools to help them audit their own services and to demonstrate their own value.