We focus our influencing work on national health policies which affect people living with MS and the health professionals who support them.
We work on a range of policy issues which affect people living with MS. These include:
- Access to drugs and treatments
- Availability of the services and specialists people living with MS need
- Quality of services, including the development of national guidelines and standards about the care people with MS should receive.
We want every person with MS to:
- Have access to reliable, independent and personalised information to help make the choices that are right for them
- Be cared for by a multi-disciplinary team of trained health care professionals with expertise in managing MS, including an MS specialist nurse
- Be equal partners with professionals in making choices about their health care
- Be confident in managing their own health, and to be supported to do this through access to high quality self-management programmes and services.
We work in a number of different ways to influence health policy and achieve these goals:
- We conduct research to build the evidence base about MS services and the issues that are important to people living with MS
- We respond to consultations and calls for evidence
- We build relationships and meet with the people who make and influence health policy to raise key issues and share our expertise
- We work collaboratively with other organisations to push for change
- We share our learning through publishing reports, journal papers, and speaking at conferences
- We provide politicians, NHS managers and commissioners with evidence about the value of specialist services
- We work with healthcare professionals to help local services improve, and to defend services under threat