The original impetus for GEMSS was our 2012 report Defining the value of MS Specialist Nurses. This report identified that MS specialist nurses (MSSNs) are highly valued by people with MS, but that there was little robust published evidence about their value and effectiveness. MS specialist nurses were not routinely evaluating their services due to a lack of time, skills and tools to do so.
In 2012 we launched the GEMSS programme and began working with MS specialist nurses to co-develop an evaluation framework and a set of tools and metrics for MSSN services. The aims are to build the skills and capabilities of the nurses whilst developing a culture of continuous improvement in the services evaluated.
The GEMSS work has now expanded beyond MS specialist nurses and you can read more in the following pages.
GEMSS work with Allied Health Professionals
Allied Health Professionals (AHPs) play a hugely important role for people with MS. Our recent publications demonstrate the need for them to be supported in their expert roles.
The GEMSS I and II Evaluation Projects
Over 2012/13 and 2014/15 we worked with sixteen MS specialist teams with a combined caseload of over 15,000 people with MS to evaluate their services.
MS Forward View
Building on the work undertaken in the GEMSS programme, the MS Trust has launched an innovative one-year project to look at how MS services can provide greater access to care, making best use of current resources and skills, and measure equity of access to services for everyone with a diagnosis of MS.
Policy reports and publications
Find out more about what we think by reading our policy submissions and reports.
You can also find a selection of reports from other organisations relating to MS or neurological services.