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Policy and campaigning
Information Team, MS Trust
Information about how the MS Trust is campaigning to save MS specialist posts, the Department of Health review on wheelchair provision in England and the publication of the NHS Knowledge and Skills Framework guideline by the Mental Health Nurses Association.
Exploring the relationship between people with MS and their confidants
Jane Springham, Post-Graduate Research Student, Peninsula Post-Graduate Research Institute, Plymouth
The term confidant applies to a relationship that includes emotional ties and psychosocial support. Research has shown that having a confidant increases wellbeing in diseases such as cancer and heart disease. This article describes research that intends to explore how confidant relationships affect the experience of living with multiple sclerosis.
Working with children and adolescents with MS in the US
Maria Milazzo, Pediatric Nurse Practitioner, National Pediatric MS Center, New York, USA
Multiple sclerosis is typically thought of as a disease that affects young adults. However, between 3.5-5% of patients are diagnosed prior to the age of 18, with an estimated 100,000 – 200,000 youngsters affected worldwide. This article looks at services available to children and adolescents with MS in the USA, including the National Pediatric MS Center’s Teen Retreat Weekend.
The value of information: for knowledge itself is power
Lynn Fox, Information Officer, MS Trust
The MS Trust Information Service provides evidence based health information to people who have multiple sclerosis, their friends and family, as well as the health professionals who support them. This article describes the results of research that was commissioned to evaluate the MS Trust Information Service.
Health and social care pathway for people with multiple sclerosis living in West Berkshire
Annette Leach, MS Nurse Specialist, Royal Berkshire and Battle Hospital Trust, Reading
People living with MS need clear information as to how and where they can get services. The multidisciplinary approach in West Berkshire encompasses primary, secondary and social care working together to ensure individuals get the right care at the right time. The following article describes the development of a health and social care pathway to formalise the process.
Highlights from the 2006 MS Trust annual conference
Information Officer, MS Trust
Overview of the key plenary and seminar sessions from the 2006 MS Trust annual conference.