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Way Ahead Volume 16 Part 2 (April 2012)

Supporting MS specialist nurses

Amy Bowen, Director of Service Development, MS Trust

Increasingly MS specialist nurses are being asked to demonstrate the value of their services, this article introduces some of the ways the MS Trust plans to support MS specialist nurses to do this over the coming months.

Celebrating ten years of the UKMSSNA

Sam Colhoun, MS Specialist Nurse, Queen Elizabeth Hospital, Birmingham

This article celebrates ten years of the UK MS Specialist Nurse Association (UKMSSNA) and looks at some of their key projects and developments over the years.

How many MS specialist nurses do we need – a caseload survey?

Alison Leary, Healthcare Analyst, London

It has been well documented in the past that there is a lot of variation between MS specialist nurse caseloads. This article describes a project being funded by the MS Trust to look at the current number of patients per MS specialist nurse and to try and determine the optimum caseload for MS specialist nurses working in different environments.

Setting the trend: a course in self-management

Emma Manchester, MS Specialist Physiotherapist, St Luke's Hospital, Bradford

This article describes a 'Living with MS' self-management course established in 2008 by a nurse and physiotherapist. Following the addition of an occupational therapist to the team in 2009, the course has evolved to better meet the needs of patients. The course was originally aimed at newly diagnosed patients, but has been further rolled out to a wider caseload with a primary focus on self-management.

Secondary progressive MS: the transition

Stephen Wilson, Cognitive Behavioural Psychotherapist, Burton and District Mind, Burton on Trent

This article discusses the experiences of living with the transition from relapsing remitting multiple sclerosis to secondary progressive multiple sclerosis and explores the role that cognitive behavioural therapy and mindfulness interventions may have in adjusting to, and managing, the transition satge.

Using the StayingSmart online resource in clinical practice 

Pauline Shaw, MS Specialist Nurse, Dulwich Community Hospital, London

Cognitive impairment prevalence rates have been reported in 40-70% of people with MS. Those affected are less likely to be in employment and engage in social activities. This article describes how an MS nursing team screens for cognitive problems, as well as a workshop they ran for patients with mild to moderate cognitive problems where interactive resources to help manage cognitive difficulties, including the MS Trust StayingSmart tool, were demonstrated.


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