MS News

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Open Door

Our free, quarterly newsletter for people with multiple sclerosis, their family and friends and supporters of the MS Trust.

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24 May 2016

Why Jenny lost pounds to raise pounds

Jenny Shackleton may be afraid of heights, but that hasn't stopped her from signing up for a sponsored skydive. But in order to do the jump, she first had to take on another challenge.

20 May 2016

MS in the media

  • Neurological Alliance unhappy with government response to report
  • Relapses and disease modifying drugs
  • Progressive MS treatments review
  • Vitamin D levels in Orkney
  • Gut bacteria in children with MS
  • Viruses and onset of MS
  • Pregabalin and birth defects
  • Inequalities in multiple sclerosis care
  • Potential treatment for PML
13 May 2016

MS in the media

  • Long-term use of disease modifying drugs
  • Symptoms during relapses and progression
  • The potential of ocrelizumab
  • AAN meeting round up
  • Diet and inflammation in the brain
  • Cancer risk and MS
  • Mitoxantrone and cancer risk
  • Carers and the Care Act
  • Palliative care services patchy
10 May 2016

A refreshing way to buy art

Helen French tells us why she loves to support the MS Trust's Secret Art Show.

09 May 2016

The really Great North Run!

Debbie Worthington tells us about her experience of taking part in the Great North Run for the first time in 2015.

06 May 2016

MS in the media

  • Zinbryta (daclizumab) nears approval in Europe
  • Ocrelizumab and progressive MS
  • Too much sitting is bad for you
  • Yoga or aquatic exercise help MS symptoms
  • CCSVI symptoms not unique to MS
  • Gilenya (fingolimod) rebound risk
  • Suicide rates higher in MS
06 May 2016

Taking control

Life can be unpredictable, and having a long-term health condition brings with it even more uncertainties. As an ex-palliative nurse, and as someone living with a neurological condition herself, Diane Shenton knows this more than most. Here she explains how she found reassurance in taking control and proactively planning for her future

06 May 2016

How can palliative care help?

People with MS aren’t always aware that palliative care might be available for them. Research by Marie Curie last year concluded that people with MS are missing out on care that can make a real difference to their quality of life because there is limited understanding from both health professionals and the public of what palliative care can offer, who can benefit and when the time is right time to access it.

06 May 2016

A small idea that grew

For the past six years, MS Trust supporters have been opening their gardens and holding outdoor events to raise funds as part of our summer My Garden Party campaign. 12-year-old Megan Cass tells us about the garden party she held to support families like hers that are affected by MS, and why she’ll be doing the same again this summer.

06 May 2016

15 minutes with MS Trust volunteer Amy Mackelden

Amy Mackelden writes plays, poetry and pop criticism. Her most recent book is Adele: the other side, published by Eyewear Press. She was diagnosed with MS in 2014 and this year volunteered to join the advisory group of our MS Forward View project. Here she explains why she got involved and what inspires her

05 May 2016

How can occupational therapists help people with MS?

Occupational therapists (OTs) can help people overcome everyday difficulties and stay independent for longer. However MS specialist OTs are still rare in the UK. We spoke to Gilly Burdon, an MS specialist OT working for Wye Valley NHS Trust in Hereford, about her work, the difference she makes, and how she’s supported by the MS Trust

05 May 2016

Why I'm cycling London to Paris for the MS Trust

Gilly Burdon, an MS specialist occupational therapist, tells us why she is cycling London to Paris for the MS Trust.

05 May 2016

How can occupational therapists help people with MS? - Steph's story

Steph is a music and performing arts manager at an FE college. She was diagnosed with MS in 2008. Here she talks about how Gilly Burdon, an MS specialist occupational therapist, helped her.

05 May 2016

How can occupational therapists help people with MS? - Katie's story

Katie was diagnosed with MS in 2008. Here she tells us how Gilly Burdon, an MS specialist occupational therapist helped her.

05 May 2016

Making our voices heard

Mags Lewis was diagnosed with MS in 1994. After a career as a manager in the NHS, she’s now the Green Party disability spokesperson, and hopes to stand as the party’s candidate for Leicester at the next general election. She tells Open Door why she thinks it’s important for people with MS to get involved and make a difference.

04 May 2016

Daclizumab moves closer to approval for relapsing MS

The European Medicines Agency's Committee for Medicinal Products for Human Use has recommended that a licence should be granted for daclizumab for the treatment of relapsing MS.

29 April 2016

MS in the media

  • Engaging with MS services
  • Vitamin D review
  • Tysabri and progression study
  • Review of current research
  • Monitoring MS with mobile devices
  • MS affects moral cognition
28 April 2016

Calling all MS health professionals: enter or nominate colleagues for the 2016 QuDos in MS awards!

We're pleased to announce that, after a hugely successful first year, the QuDoS awards, highlighting innovation and excellence in MS services, are now open for nominations for 2016.

28 April 2016

Cycling from North Wales to Southern France

Having loved cycling since childhood, Justin Kendell was devastated when he found himself unable to ride due to symptoms of MS. Now he is back on his bike and planning a ride of over 1,300 miles to raise funds for the MS Trust.

27 April 2016

How can we make MS care fair for people with progressive MS?

MS Forward View is our project working with NHS experts, MS teams and people living with MS to shape fairer specialist services. Daisy Doncaster, the project co-ordinator, explains how we exactly we intend to make a difference, particularly for people with progressive MS