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About half of all people with MS have problems at some time with aspects of memory, attention span or concentration. Dawn Langdon, Professor of Neuropsychology at Royal Holloway, University of London, looks at promising research into MS and memory.
A report published today by the MS Trust finds that 30,000 people with MS live in areas where their specialist nurses are managing twice the sustainable level. This may mean that these people are not receiving all the support that they need.
Why do we want to cross an entire ocean in a small rowing boat? Three reasons really. First, the sense of adventure that only the high seas can bring. Second, the challenge in pushing the human body to the endurance limits. But third, and most important, to make a real difference to a charity so close to our hearts.
Amy Bowen, the MS Trust’s Director of Service Development, explains what’s missing from the NICE Clinical Guideline.
MS Trust supporter Romy Langley has organised a Santa Walk in aid of the MS Trust, which will take place in London's Richmond Park on Sunday 7 December.
Making Sense of MS was only possible thanks to people living with MS. You filled in surveys, took part in focus groups and interviews, responded to blogs, reviewed the work in progress and raised the funds that have made the whole thing possible. You even helped us come up with a name for the whole thing!
The MS Trust is looking for volunteer collectors to help raise funds to support people with MS this December.
Jane from the MS Trust information team explains how, with the help of people with MS and health professionals, we developed Making Sense of MS.
The new resource will help people get to ask the questions that matter most to them and take all the time they want to understand the answers
A case of PML (progressive multifocal leukoencephalopathy) has been reported in a person who had been taking dimethyl fumarate (Tecfidera).
Angela J Simpson who is an artist specialising in animal portraits and wildlife, won a competition last Christmas with her beautiful sheep design 'Sophie' and chose the MS Trust as her charity of choice.
This new study found no long term association between any vaccines, including hepatitis B and HPV (human papillomavirus), and an increased risk of developing MS, for up to three years following vaccination.
Yesterday we reported on our survey which found that only 12 per cent of people with MS felt they got all the information they needed when they were diagnosed. The impact of this information gap can be profound. Many people who took part in our survey told us that they felt they had to do their own research on the internet. What they found was often overwhelming, sometimes misleading and certainly not tailored for them.
Earlier this year the MS Trust carried out new research into the effects of information on people’s experience of MS diagnosis. We surveyed 500 people living with MS and asked them whether they had been given information when they were diagnosed, and how this had affected their adjustment to living with MS.
Following the recent publication of the NICE Guideline for the management of MS in primary and secondary care (Clinical Guideline 186), NICE have now published their information for the public.
The Scottish Medicines Consortium (SMC), which issues guidance on whether treatments should be funded by NHS Scotland, has announced that fingolimod can now also be prescribed for people with rapidly evolving severe relapsing remitting MS (RES RRMS).
Today sees the publication of the first revision since 2003 of the NICE Guideline for the management of MS in primary and secondary care (Clinical Guideline 186).
Good luck to the six MS Trust supporters who are setting off to climb Mount Kilimanjaro on Thursday 9 October.
The seasonal flu vaccination is now available to people who fall into at-risk groups, which includes anyone with a neurological condition such as multiple sclerosis, those over 65, and the main carers of a disabled person.
The MS Trust strongly rejects claims published in a BMJ article on 29 September that the MS Trust and MS Society have failed to be transparent in reporting pharmaceutical funding for charitable activities.