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- Our GEMSS programme helps safeguard the role of an MS nurse at Northumbria NHS Trust
- The programme enters its second phase with ten new teams from around the UK
When Liz Hilland from Country Durham found out she had multiple sclerosis in 1999 she knew very little about it and feared it was an end to the life she knew. Since then she become involved in raising funds and awareness to help others understand more about MS and show that life goes on after diagnosis. Last year she took part in a zip slide from the Tyne Bridge as part of our Be Bold in Blue campaign.
Over the last 10 years Anne Thompson, whose son has MS, has been one of the MS Trust’s most dedicated fundraisers. All in all she’s raised almost £15,000 – that’s enough to pay for the writing and printing of our new guides to managing MS bowel and bladder problems.
Getting a handle on MS can be hard enough when you live with it yourself. But it can often be just as tricky for children and young people to understand why their mum or dad is too tired to play or why they might have to help out more at home.
People with MS have a greater risk of developing thinning of the bones (osteoporosis). As there are often no symptoms, it may only be discovered when you break a bone in a minor accident. MS nurses Pauline Shaw and Debbie Quinn put together these tips for keeping your skeleton healthy and strong.
Georgina Goddard is the youngest member of our 2014 London Marathon team. She’s also the youngest of all the women running this year! Here she tells us why she chose to run for the MS Trust.
I wish I could give a simple answer to this question but I can’t. Strictly speaking, the answer is “No, it’s not inherited” but it isn’t quite that simple. This is the way the science goes.
Brothers James and Chris Wyatt will be holding some fundraising events in Taunton this spring in aid of the MS Trust.
The statistics for being in any kind of employment if you are disabled are grim. The government knows this and has decided, rather late in the day, to accompany its plan of reducing the benefits bill for all disabled people with some ideas to improve opportunities for getting into and staying in, work.
Research in Sweden suggests the risk of a relative of someone with MS also getting the condition is lower than previously thought.
A study at Kings College Hospital in London has found that people with MS of Caribbean descent had more rapid progression than white people.
As winter approaches, advice has been published about remaining healthy and warm during the cold weather.
- What counts as disability in MS?
- How should we discuss the possibility of disability, especially with people who are newly diagnosed?
- Is “disability” the right word to use?
These are difficult questions and I find my thoughts going round in circles.
Over the past few months, the MS Trust has been approached by a number of MS specialist nurses whose services are under threat.
The threats range from downgrading of their posts, cuts to the number of nurses in the team or withdrawing funding for the service.
There are now 2.3 million people with MS around the world according to a report that accompanies the new edition of the Atlas of MS published by the Multiple Sclerosis International Federation (MSIF).
Bowel problems are common in MS but they can be difficult to talk about, so people don’t always share positive experiences.
We’d really like your help – if you’ve found ways of managing bowel problems that have really worked for you, we’d like to share them more widely in a publication we are working on.
Research published in the journal Nature Genetics has identified 48 new genes that may play a part in susceptibility to MS.
Here at the MS Trust we’re currently working on information designed to help people with MS manage their day-to-day symptoms. The first booklets in the series will look at common bladder or bowel problems and suggest practical ways you can work together with your health professionals to deal with them simply and effectively.
For the next issue of our newsletter, Open Door, we’re going to be focusing on MS in the family. MS is typically diagnosed when people are in their twenties and thirties – that is, when many people are thinking about settling down and starting families.
With a glittering career as a chef, restaurant owner and lecturer, Jonathan Reen was in the prime of his life. Then, at the age of 46, he was diagnosed with primary progressive MS. For six months, as his symptoms got worse, he had to give up the work he loved. But now, after a period of readjustment, he’s set up Urban Chefs, a new business offering cooking lessons to people in their own homes. Here he explains how his lifelong passion for food has kept him going through the ups and downs.