23 - 29 March 2019
These are links to news stories from the last week that may be of interest to people in the UK. The link beneath each item will take you to the original story.
Please note that the MS Trust did not write the original items and does not endorse their content nor any claims made in them.
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Drug for relapsing and SPMS approved in USA
Mayzent (siponimod) has been approved by the FDA, the US drug regulator, for both relapsing remitting MS and 'active' secondary progressive MS. The FDA definition suggests that active SPMS means that people are still experiencing relapses. A licence application in Europe is still being consider
MS Trust link: Siponimod
Cells age quicker in PPMS
Finances and change of retirement age
New neurology standards in Scotland
Healthcare Improvement Scotland have published new standards for neurological health services. These include recommendations for how organisations work together, training, and guidance on diagnosis, assessment of needs, treatment and management, and person-centred care. The guidance relates to neurological services and care in general, not specific conditions
Source: NICE/NHS Evidence
Source: General Standards for Neurological Care and Support (full document - pdf)
MS Trust link: Map of MS services
MS in the Media
17 May 2019
- Statin has potential as SPMS drug
- EastEnders MS storyline
My Vespa adventure for the MS Trust
13 May 2019
For his next fundraising adventure, our supporter Nick Jolly will be riding 2,500 miles to Hungary on his Vespa scooter. He tells us about the inspiration behind his challenge.
"When you lose something, it makes you appreciate what you have"
13 May 2019
Danielle MacGillivray stars in our new film, Danielle. Here she tells us about her MS diagnosis, why she wanted to share her story in the film and learning to "appreciate the little things" every single day.