The Helen Ley Trust was originally set up to create a care home at which people affected by Multiple Sclerosis could enjoy a holiday, giving their carers at home a much-needed break. It was the first Respite Home in the UK that specialised in the care of the most complex and severe cases of MS. This could not have happened without the support, volunteering commitment and fundraising within the local community. “The trustees wish to thank everyone who put in such fantastic hard work and assistance over the past 40 years,” says Ann Crossley, chair and founder member of the Helen Ley Trust.
In recent years the ownership of the Helen Ley Centre passed from the MS Society to Castell Froma, a local charity that offers long term residential care and respite for people with neurological conditions as well as MS. This change in direction enabled the release of funds to power the new bursary, which is being organised by the MS Trust and will ensure that more people with severe MS can access the high quality care they deserve
“For 42 years we have been active in respite care for people with severe and complex MS,” says Mrs Crossley. “This care continues to a degree at Helen Ley Care Centre. But we feel that the time has now arrived to make more positive use of funds, specifically targeting severe and complex MS requirements. We welcome the opportunity to create these new bursaries and fund other training events organised by the MS Trust.”
Accepting a cheque on behalf of the MS Trust, Pam Macfarlane, chief executive, said
“The MS Trust has long recognised the commitment and dedication of the volunteers, fundraisers and Trustees of the Helen Ley Charitable Trust. Their generosity has made a tremendous difference for many families living with MS. We are delighted that they have chosen to work with us to establish bursaries for health professionals to ensure they can access training and education to improve the care of people with severe MS. For over 20 years the MS Trust has been the primary provider of MS education for those working with people affected by MS and we believe this is a wonderful way of preserving the legacy of the Helen Ley Charitable Trust.”