14 November 2016

Today, a group of MPs and members of the House of Lords has launched a report on the barriers people with MS face to finding and staying in work. The report by the All Party Parliamentary Group for MS makes a series of recommendations on how best to support people with MS in the workplace.

03 October 2016

The government are to scrap repeat assessments of people claiming ESA (Employment Support Allowance) if they have a condition that is unlikely to have improved.

30 June 2016

A national survey of people living with a neurological condition, including multiple sclerosis, launches today. The Neurological Alliance, representing 80 organisations working across England to improve life for people living with a neurological condition, is running their second neurological patient experience survey.

Latest news from the MS Trust
20 April 2016

According to a new report published today by the MS Trust, growing pressures on NHS services mean people with progressive MS get much less support from specialist health professionals than people with relapsing remitting MS. As well as seeing health professionals less frequently, many people with progressive MS report being ‘abandoned’ by specialist services just as they enter the progressive phase of the disease, marked by complex symptoms and increasing disability.

01 March 2016

Last week the Public Accounts Committee has published its report into services for people with neurological conditions. The report by the influential parliamentary committee recognises the ongoing challenges facing neurology services finding that, despite a similar review in 2012, there is still “wide variation across the country in access, outcomes and patient experience.”

18 January 2016

Last night (Monday 18 January 2016) you may have seen that BBC1 broadcast an episode of Panorama called “Can you stop my multiple sclerosis?”. The programme explored the use of stem cell therapy at Sheffield Teaching Hospitals to treat people with multiple sclerosis. The MS Trust was glad that the programme took a considered, unsensationalist approach to what has sometimes proved to be a controversial issue.

Latest news
13 January 2016

The MS Trust was closely involved in the development process, contributing to all stages of scoping and consultation. We welcome elements of the standard, in particular statements 2, 3 and 6 which, if implemented, will be a real step forward in ensuring that people with MS get the specialist input they need (see below). But, after careful consideration, we decided we could not endorse the final document.

22 December 2015

Plymouth Hospital NHS Trust is currently advertising for a Band 8 Lead MS Nurse on NHS Jobs. A great opportunity working as a member of the MS team, the post holder will provide leadership to the MS nurses and look for new and innovative ways to meet the increasing demands of the service.

20 November 2015

A judge from the Court of Protection has ruled that doctors can withdraw treatment from a woman with MS described as being in a "minimally conscious state" and having little awareness of the outside world.

09 October 2015

According to topline results released by the manufacturer, ocrelizumab reduced the risk of increased disability in primary progressive MS by 24% compared to placebo. In relapsing remitting MS, ocrelizumab reduced the number of relapses by 50% compared to interferon beta 1a (Rebif)

14 September 2015

People with relapsing remitting MS should be considering starting disease modifying treatment as early as possible and be active partners in treatment choices according to newly revised guidelines published today by the ABN.

03 August 2015

The Scientific Advisory Committee on Nutrition (SACN), an independent body which advises the Government on diet, nutrition and health matters, have published their draft recommendations on vitamin D which are now out for public consultation until 23 September.

25 June 2015

Triggers for palliative care, a report by Marie Curie, suggests that people with neurological conditions including MS are missing out on care that can make a real difference to quality of life. It shows that there is limited understanding from both health professionals and the public of what palliative care can offer, who can benefit and when the time is right time to access this holistic care.

22 April 2015

Laboratory studies have shown two treatments currently used to treat skin conditions may have the potential to be developed into therapies to repair myelin in people with MS. However, this is very early research in animals and human cells, so the press coverage reporting the treatments as a 'cure', or 'reversing' or 'stopping' MS is somewhat premature.

02 April 2015

Results of the analysis of the 6 year data of the Department of Health (DH) MS Risk-sharing Scheme (RSS), published in the Lancet Neurology today, show that the disease modifying drugs Avonex, Betaferon, Copaxone and Rebif are cost effective and are clinically effective in reducing the progression of the disease in people with relapsing remitting multiple sclerosis (MS).

03 March 2015

In the last couple of days, several of the national newspapers have reported "miraculous" results from stem cell treatments for people with MS. Headlines included "Stem cell reboot has MS patients dancing", "'Miracle' stem cell therapy reverses multiple sclerosis". But what are the facts behind these headlines?

29 January 2015

Having multiple sclerosis unfortunately doesn't prevent people from developing other health conditions and these may have an impact on MS symptoms and treatment. An international study is trying to identify the most common conditions (comorbidities) experienced by people who have MS.

14 January 2015

The Invisible Patients, a new report published today by the Neurological Alliance has found that people with MS in England are unknown to their local Clinical Commissioning Groups. The Neurological Alliance sent Freedom of Information requests to all CCGs, to ascertain how aware they are of neurological conditions in their patch.

21 October 2014

This new study found no long term association between any vaccines, including hepatitis B and HPV (human papillomavirus), and an increased risk of developing MS, for up to three years following vaccination.

14 October 2014

The Scottish Medicines Consortium (SMC), which issues guidance on whether treatments should be funded by NHS Scotland, has announced that fingolimod can now also be prescribed for people with rapidly evolving severe relapsing remitting MS (RES RRMS).

04 September 2014

With less than a year to go before the next general election, the Neurological Alliance has launched its manifesto. This sets out some key policy ‘asks’ that are applicable across the full spectrum of neurological conditions including MS. 

12 June 2014

The European Commission has approved the extension of the licence for fingolimod to allow greater access to the drug for people with highly active relapsing remitting multiple sclerosis.

19 March 2014

Brain volume loss and progression of the condition were both slowed and quality of life was improved

140 people with secondary progressive multiple sclerosis took either high dose simvastatin (80mg/day) or placebo in this two year, phase II clinical trial. MRI scans measured brain volume during the course of the study, disability was measured using the EDSS scale and participants completed questionnaires to measure the impact of MS on day-to-day living. Simvastatin was well tolerated by the participants.

17 January 2014

Research in Sweden suggests the risk of a relative of someone with MS also getting the condition is lower than previously thought.

08 November 2013

A study at Kings College Hospital in London has found that people with MS of Caribbean descent had more rapid progression than white people.

04 October 2013

There are now 2.3 million people with MS around the world according to a report that accompanies the new edition of the Atlas of MS published by the Multiple Sclerosis International Federation (MSIF).

18 June 2012

Jack Osbourne, the son of Black Sabbath frontman Ozzy and former X Factor judge Sharon, was diagnosed earlier this year after he lost 60% of the vision in his right eye.

29 May 2012

Tetrahydrocannabinol (THC), one of the active ingredients in cannabis, had no effect on progressive MS according to results reported on 29 May 2012.