In the latest issue of Open Door (August 2016)

News

Research update

The latest research on the effect of exercise on cognition and brain health, and how common daytime sleepiness is in people with MS.

Advanced MS Services

How can we design services that work better for people with advanced MS?

Back in April the MS Trust published a report that showed many people with advanced MS feel like they're missing out on access to NHS services. But how do we make MS care fair? As part of our MS Forward View project, we recently convened a meeting of MS specialists, carers and people with MS to look at different models of MS care and work out what are the most important factors to consider when designing services.

Stay active

  • Grit and determination- Since being diagnosed with MS in 2014, Kadeena Cox has become a successful para-athlete, competing on the track and also on the bike, and is part of Team GB going to the Paralympics in Rio in September.
  • Getting in the endorphins going- Judy Beveridge is 45 and has secondary progressive MS, which makes it hard to stay as active as she would like. But discovering tandem cycling last year has given her a whole new way to stay fit.

Practical tips

Keeping your balance: Balance problems are common in people with MS. Here we look at some of the reasons you might feel unbalanced and what you can do to deal with the problem including keeping a symptom diary.

My story

Light in the darkness - Mel Hopper explains how she found support online and started writing her own blog.

Get involved

  • Eurostars! - Eight friends from London took part in a 300 mile ride cycle to Paris in May and have raised more than £16,000 in honour of their friend who has MS. 
  • London to Paris Tour de France ride - If you or anyone you know would be interested in cycling from London to Paris from 19 to 23 July 2017 for the MS Trust, please get in touch as places on this special edition ride will go quickly.
  • Where there's a will... - The MS Trust is part of Remember A Charity, a consortium of over 140 charities set up to raise awareness of the importance of having a will and the difference you can make by leaving gifts to charities. 

There are lots of ways you can get involved and support our work helping everyone affected by MS. Here are just a few ideas:

  • Cambridgeshire Skydive Day - Join us on 3rd September at Chatteris Airfield near March for a day of skydiving in aid of the MS Trust. It's not too late to book your jump!
  • Send MS Trust Christmas cards - Order your cards from the MS Trust this year and every card you send will help to raise awareness of MS and the MS Trust.
  • Volunteers needed! - Could you spare a few hours a week in the run up to Christmas to help at a local Christmas card shop? 
  • Santa Run, London - Join our team for this accessible festive fun run. Dress up in your free Santa suit to run, walk or wheel around Victoria Park on 4 December.
  • London to Brighton bike ride - If you're quick there is still time to join this 54 mile on 11 September. It's a great day our and you only need to raise £100 in sponsorship!
  • Grand Canyon Trek - Join our team for the trip of a lifetime from 13-20 May 2017, trekking the magnificent Grand Canyon.

15 minutes with MS Trust supporter Tim Sorrell

Tim Sorrell is a Planning Manager living in Nottingham. Since being diagnosed with MS he has twice run the London Marathon, with his wife Caitlin, in support of the MS Trust. He tells us why he runs and why he believes it's important to support our work.

 

If you would like to receive a copy of Open Door in larger print, please get in touch.

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