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Newly diagnosed

06 August 2018
Jenna and Jon

Last summer, thanks to our incredible supporters, the first MS Trust-funded MS specialist nurses arrived at Leicester Hospitals. Since then, we’ve also helped to bring new nurses to Bradford and Lanarkshire, and soon Hull. Together, they’ve made a world of difference to thousands of people living with MS.  We caught up with Leicester nurse Jon Maisey to find out about his first year in post, and Jenna Chudasama, to hear about the invaluable support he’s given her. 

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12 April 2018
Work and MS

Our day job is an important part of our identity, and being diagnosed with MS shouldn't mean giving up the things that make us who we are. Carla, who was diagnosed with MS in 2008, suggests some simple changes you could make to help manage work life and MS. 

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21 September 2017
Maisie

Maisie, who was diagnosed with MS in June, aged just 14, hosted a My Garden Party in the summer, and raised thousands of pounds to help us make a difference for people with MS. Here she tells us what it meant to fundraise for the MS Trust and why she's determined to live her life like "any other teenager". 

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13 September 2017

When Wayne first started experiencing tingling and weakness in his hand and wrist, he ignored it "like a typical bloke". But then six months later, in May this year, he was diagnosed with relapsing remitting MS. Here he tells us about coming to terms with the diagnosis, starting treatment, and why he's determined to "keep smiling".

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31 July 2017
Kimberley

When Kimberley was diagnosed with MS in February, she was scared to open up about the condition. But then a few months later, on World MS Day, she decided to ‘come out’ about her MS in a rather public way – and was overwhelmed by the support she received from friends and strangers alike.

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08 December 2016
Heather and her brother Chris

Heather tells us how she and her family are dealing with her recent MS diagnosis and why she has decided to take on the Bath Half Marathon.

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10 June 2016
Friends having a My Garden Party

Sarah was still getting to grips with her own MS diagnosis when she decided to throw a garden party to raise awareness and funds.  

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05 May 2016
Mags Lewis

Mags Lewis was diagnosed with MS in 1994. After a career as a manager in the NHS, she’s now the Green Party disability spokesperson, and hopes to stand as the party’s candidate for Leicester at the next general election. She tells Open Door why she thinks it’s important for people with MS to get involved and make a difference.

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24 June 2015

Eve Darwood is a philosophy teacher at a secondary school in Lincolnshire. Last year she was diagnosed with MS. In this blog post she explains how her job, helping young people make sense of the world, has affected how she makes sense of MS (and vice versa).

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21 October 2014

Yesterday we reported on our survey which found that only 12 per cent of people with MS felt they got all the information they needed when they were diagnosed. The impact of this information gap can be profound. Many people who took part in our survey told us that they felt they had to do their own research on the internet. What they found was often overwhelming, sometimes misleading and certainly not tailored for them.

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11 August 2014

Amelia Southard is a writer and blogger who lives in Devon. She was diagnosed with MS in 2002. Earlier this year she took part in the MS Trust Continence Question Time, a series of short videos looking at some common MS bowel and bladder problems.

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