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Personal stories

06 December 2018

Is there a funny side to MS? We talk to stand-up comedian Will Berard who has MS, about life with the condition, getting diagnosed and raising awareness through comedy.

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13 November 2018
Woman smiling at camera in a garden

What do you do when the disease modifying drug (DMD) you've chosen isn't working? In this guest blog, Lauren shares her thoughts around choosing an MS treatment and what it is like having to change to a new one. 

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16 October 2018
lady with an owl on her arm

Choosing a disease modifying drug (DMD) is an individual decision and it can be important to weigh up your options and think about what might work best for you. In this guest blog, Toni shares her experiences of choosing an MS treatment and explains what it was like to start on Plegridy. 

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09 October 2018
Jane Biggart

Choosing which disease modifying drug (DMD) to start is not always easy and sometimes you'll find that you don't get on with the drug you have chosen. In this guest blog, Jane shares her experience of making a decision about treatment. 

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18 September 2018

In a new blog, a person with MS chronicles her journey taking part in a clinical trial for the drug bexarotene. Part 10, where Hellie starts taking the drug again, but then has to stop again.

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18 September 2018
Woman smiling at camera next to a bunny statue

Guest blogger Emily, also known as the wibbly dinosaur, writes about her life after being diagnosed with MS, and why she started blogging to help others who are new to MS.

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10 September 2018

In a new blog, a person with MS chronicles her journey taking part in a clinical trial for the drug bexarotene.  Part 9, where Hellie gets to see her "impressive" yet alarming liver values.

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08 August 2018

In a new blog, a person with MS chronicles her journey taking part in a clinical trial for the drug bexarotene. Part 6, where Hellie ponders what it feels like to be a part of a clinical trial

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07 August 2018

Anne and Jim Thompson have organised many fundraising events and challenges over the years, from Easter egg tombolas to open water swimming. Anne tells us why they support the MS Trust and about her husband Jim’s latest challenge to trek the length of the UK

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06 August 2018
James

“I want to encourage people who are not confident in the kitchen to stick on that apron and get cooking”  James Coke, diagnosed with MS over 20 years ago, tells us about the inspiration behind his blog The Disabled Chef and shares some top tips for cooking with a chronic condition. 

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06 August 2018
Miles for MS

During the month of May, over 100 people walked, ran, swam, jogged, rowed, arm cycled, wheeled and more as part of Miles for MS. We find out why they wanted to get involved and how exercise has helped them live well with MS. 

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06 August 2018
Lisa

 Having hidden her MS for a number of years, Lisa Murray-Lang decided to put pen to paper and write a book about her life with the condition as a way of letting others know. This is Lisa’s inspiring story.

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06 August 2018
Jenna and Jon

Last summer, thanks to our incredible supporters, the first MS Trust-funded MS specialist nurses arrived at Leicester Hospitals. Since then, we’ve also helped to bring new nurses to Bradford and Lanarkshire, and soon Hull. Together, they’ve made a world of difference to thousands of people living with MS.  We caught up with Leicester nurse Jon Maisey to find out about his first year in post, and Jenna Chudasama, to hear about the invaluable support he’s given her. 

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25 July 2018

In a new blog, a person with MS chronicles her journey taking part in a clinical trial for the drug bexarotene. In part three of Hellie's Clinical Trial Adventures, Hellie gets an MOT at the hospital and officially joins the trial.

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18 July 2018
Dressage

When Diane Green was diagnosed with progressive MS, she thought her riding days were over. But now, 17 years later, Diane and her horse Winnie have their sights set on the Paralympics in 2020.

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20 June 2018
Woman behind wheels of a car

Many people with MS experience 'cog fog', which is when you sometimes struggle with things like memory, attention span and concentration. In this blog, Helena, who was diagnosed with MS 11 years ago, talks about her own experience of the dreaded cog fog, and why she's determined those 'fuzzy brain days' won't stop her doing the things she loves. 

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04 May 2018
Skydive

Last year, 64 daring MS Trust supporters took a leap of faith and jumped out of a plane with a parachute, raising over £44,000 to help others affected by MS. Adventure lover Sarah Harper explains why she wanted to take part in a sponsored skydive.

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02 May 2018
Izzy

When Isobel was diagnosed with MS aged just 22, she vowed it would “make me not break me”. Determined to help other young people in a similar situation, she decided to start vlogging about her journey with MS. Over a year later, Izzy’s YouTube channel, Izzy MS (youtube.com/izzyms), has thousands of subscribers and her videos have proved an invaluable source of support for people with MS from all over the world. We caught up with Izzy to find out more. 

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02 May 2018
Lucy

Following a shock diagnosis in 2015, Lucy Pritchard decided to take on a remarkable running challenge to raise vital funds for the MS Trust and show that MS doesn’t have to mean the end of your world. This is her story. 

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16 March 2018
Wheelchair

A few years after her diagnosis of multiple sclerosis, Elaine had to come to terms with using a wheelchair. In this inspirational guest blog she discusses her own journey of acceptance, the reaction of others, and the positive and negative sides of life in a wheelchair.

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25 January 2018
Joe and Debbie

When Debbie’s husband Joe took part in a half marathon in Malta, it inspired her to give running a try for herself. Since then she’s really got the bug for running and is now inspiring others to get involved with some fantastic fundraising challenges.

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13 September 2017

When Wayne first started experiencing tingling and weakness in his hand and wrist, he ignored it "like a typical bloke". But then six months later, in May this year, he was diagnosed with relapsing remitting MS. Here he tells us about coming to terms with the diagnosis, starting treatment, and why he's determined to "keep smiling".

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10 August 2017
Andy Merry

Former Royal Marine Andy Merry works as a Yeoman Warder at the Tower of London. He was diagnosed with MS last year and has since raised over £27,000 to support the work of the MS Trust by climbing the highest mountain in the Alps. We caught up with Andy just after he returned from his challenge in June to ask him about his experience of climbing Mont Blanc for MS.

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24 July 2017

When Denise Stephens was diagnosed with MS at the age of 24, she was disappointed to find that a lot of equipment recommended to her, made her feel like she was “living in a hospital”. Determined to find things that worked for her, and share her discoveries with others, she founded Enabled by Design, a community of people passionate about design for all

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02 May 2017
Maureen

Maureen has supported the MS Trust for many years, having lived with MS for over 40 years herself. Last autumn, she decided to do a skydive – aged 72 – to fundraise for the MS Trust and she has also left a legacy gift to us in her will

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27 April 2017
Jon and Allison

The MS Trust and University Hospitals of Leicester NHS Trust are working together to make a difference for local people living with MS with the recruitment of the first new nurse placements in the MS Trust’s Specialist Nurse Funding Programme. We went to Leicester to speak to Allison, one of the existing MS nurses, and Jon, who has been living with MS for almost ten years, about the difference the new nurses will make. 

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22 March 2017
Parenting and MS

First comes the crying and the sleepless nights, then there’s the troublesome toddler years, and then, before you know it, your house is shaking from the door-slamming of a surly teen. Parenthood, whatever stage you’re at, is never easy, and definitely never dull. But when you’re attempting to raise a child while coping with the unpredictability of MS, it throws up a whole new set of challenges. Here are five top tips for juggling parenthood and MS. 

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06 January 2017
Andrew Langley

Author and MS Trust supporter Andrew Langley was diagnosed with MS after going blind with optic neuritis on the eve of his 30th birthday. In this guest blog, he talks New Year’s resolutions, coming to terms with his diagnosis and channelling his musical hero David Bowie. 

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14 November 2016
how to keep the brain active

Juggling having MS and having a small child isn't the easiest at times. For the blogger of poorlyparents it was very important to try to keep her brain as active as possible. In this guest blog she explains how she is getting on with her blog and how technology can help you to be creative.

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07 November 2016
Penman family

Melissa tells us about her family's involvement with Tae Kwon-Do and why they are holding a sponsored kick to support the MS Trust.

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01 August 2016
Amelia* was diagnosed with MS two years ago when she was 14. *Names have been changed

Amelia talks about her diagnosis with multiple sclerosis (MS) two years ago at the age of 14 and how she has become more positive and optimistic for the future

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12 July 2016

Being diagnosed with MS is the beginning of a long, unpredicatable journey. In Denmark, people are offered a two-week residential course on adjusting to their new life with MS. Tim Wardman went on one and reports back on what he learned.

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08 June 2016
Pia Reynolds

Pia Reynolds, advisory group lay member for the MS Trust’s project MS Forward View, explains what it’s like to represent people with MS in this innovative project.

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05 May 2016
Mags Lewis

Mags Lewis was diagnosed with MS in 1994. After a career as a manager in the NHS, she’s now the Green Party disability spokesperson, and hopes to stand as the party’s candidate for Leicester at the next general election. She tells Open Door why she thinks it’s important for people with MS to get involved and make a difference.

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27 April 2016
Hayley Budge Orkney

Hayley Budge from Orkney tells us about her winning Tulip necklace design, which has inspired a jewellery collection that is on sale now to raise funds for the MS Trust.

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11 February 2016
Plane in field

At the age of 62 and living with MS, Judi Hall decided she wanted to seize every opportunity for adventure. This prompted her to sign up for a sponsored skydive as part of our Jump in June campaign last summer. In this article she tells us all about her jump and the inspiration behind it.

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05 November 2015
Choosing a disease  modifying drug:  Anna's story

Anna is 29 and was diagnosed with relapsing remitting MS in 2012. She has been taking Avonex, but is now reconsidering her options. She volunteered to test drive the new MS Decisions and was very impressed.

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29 September 2015
Finding the disease modifying drug that's right for me

Rosanna Cook shares her experiences around choosing a disease modifying drug: "Don't rush into anything, take time to weigh up the pros and cons and don’t ever feel like you are alone, there are people who can and want to help."

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28 September 2015
Choosing my disease modifying drug; Kate's story

Kate Milne, who was diagnosed with MS in 2012, blogs about choosing a disease modifying drug: "I think anybody else facing this decision needs to look at what is important for them."

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21 October 2014

Yesterday we reported on our survey which found that only 12 per cent of people with MS felt they got all the information they needed when they were diagnosed. The impact of this information gap can be profound. Many people who took part in our survey told us that they felt they had to do their own research on the internet. What they found was often overwhelming, sometimes misleading and certainly not tailored for them.

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11 August 2014

Graham and Nicki Law got married in 1997. Since then they’ve discovered that they are one of only a handful of couples in the UK where both partners have MS. Here they share their story and explain how they’ve found that mindfulness can help them deal with their symptoms and support each other.

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08 May 2014

Gemma Berryman was diagnosed with MS when she was just 16 years old. Six years on, she has decided not to let her condition stop her following her dreams and she hopes to inspire other young people with MS by sharing her story here.

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20 February 2014

Jill Lovell has lived with MS for over 30 years and has been involved in the work of the MS Trust since the early days. Here she looks back on some of the big changes of the last 21 years.

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21 August 2013

With a glittering career as a chef, restaurant owner and lecturer, Jonathan Reen was in the prime of his life. Then, at the age of 46, he was diagnosed with primary progressive MS. For six months, as his symptoms got worse, he had to give up the work he loved. But now, after a period of readjustment, he’s set up Urban Chefs, a new business offering cooking lessons to people in their own homes. Here he explains how his lifelong passion for food has kept him going through the ups and downs.

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17 May 2013

Diane Evans on the inappropriate and unthinking ways that some people talk to a person with multiple sclerosis and why it’s best to stop, look and listen before holding forth on MS

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23 January 2013
Snow and trees

Read our guest Blog from Steve Woodward about how to stay safe and tackle the snowy weather.

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06 July 2012

Are you healthy? Pretty much? Imagine you’re standing, there, wherever you are just now – living room, office, street – and someone runs over and gives you a shove. Of course, you’re shocked. Sure, your arm might hurt a bit where they pushed you. But basically, you’re OK. Your feet are firmly planted on solid ground.
But it’s different for me and other like me: people with dreadful, crippling fatigue caused by a long term illness such as MS, CFS/ME, lupus, cancer etc.

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29 November 2011

After disclosing my MS in a pretty unabashed fashion in a national broadsheet (The Independent) last November  I thought I was done with ‘coming out’ about my disease.  Then this summer a BBC researcher got in touch about a series for Radio 4 and wondered whether I’d be interested in telling my story for their series.

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