Eden, 15, first noticed symptoms of MS when she experienced double vision during a game of netball
I went to catch the ball during a netball match and remember seeing double. It was a few days before I said anything but I eventually told my parents, they took me to the GP and then I was transferred to Queen’s Hospital. They didn’t know what it was at first, but I was given steroids and that got rid of the double vision. I had to stay in hospital for a week.
I was diagnosed with MS in April 2016. I had an MRI scan to see if I had any lesions on the brain and that was quite scary! I didn’t know what MS was at first, so I didn’t really think anything of it, but the doctor explained it as being a bit like an electrical cable that gets damaged and so doesn’t always work properly, and that helped me understand it better.
I started treatment about a month after I was diagnosed. I was on Rebif at the beginning; it was quite hard to inject myself at first, but then I got used to it. I then changed medication about four months ago to Tysabri because my hair started to fall out. I am finding that much better – I haven’t experienced any symptoms since.
I didn’t tell my friends and teachers straight away, but now I do try and explain to people what MS is. I am doing a speaking and listening exam on MS at school soon. We have to give a three-minute speech on anything we want, and then you get asked questions for six minutes in front of the class.
To anyone diagnosed with MS I would say ‘Don’t panic’. It’s not the end of the world and you will get help.
MS in the Media
17 May 2019
- Statin has potential as SPMS drug
- EastEnders MS storyline
My Vespa adventure for the MS Trust
13 May 2019
For his next fundraising adventure, our supporter Nick Jolly will be riding 2,500 miles to Hungary on his Vespa scooter. He tells us about the inspiration behind his challenge.
"When you lose something, it makes you appreciate what you have"
13 May 2019
Danielle MacGillivray stars in our new film, Danielle. Here she tells us about her MS diagnosis, why she wanted to share her story in the film and learning to "appreciate the little things" every single day.