25 November - 1 December 2017
These are links to news stories from the last week that may be of interest to people in the UK. The link beneath each item will take you to the original story.
Please note that the MS Trust did not write the original items and does not endorse their content nor any claims made in them.
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Shortage of neurology services
The BBC's 5 Live Investigates programme covered problems with number of NHS consultant neurologists, long waiting lists and lack of local services. This was prompted by results from a survey by the Neurological Alliance that looked at people's experiences of using neurology services. The programme is available to download until 24 December.
MS Trust link: Map of MS services
Diet affects gut bacteria and modulates immune system
A small Italian study compared ten people following a diet low in protein and high in vegetables with a ten people on an unrestricted Western diet. All participants had relapsing remitting MS. After a year, the diet group had better EDSS scores and has fewer relapses
MS Trust link: Diet
Cognitive symptoms in early-stage MS
People with a first symptomatic episode had their EDSS measured and cognition tested for ten years. After the first year, one in ten had been affected by cognitive problems before any obvious physical problems became apparent. After ten years the figure was about four out of ten
Source: MS News Today
MS Trust link: Cognition and cognitive symptoms
High number of people with MS turned down for PIP
Since 2013, almost a third of claims for PIP (Personal Independence Payment) by people with MS have been turned down, according to Freedom of Information figures published by the MS Society. One in twenty who were initially awarded PIP had the benefits withdrawn on review. Two thirds of people who appeal the decision are successful.
MS Trust link: PIP and benefits
Biotin may affect medical tests
The FDA, the US drug regulator, has issued a warning that biotin (vitamin B7) can cause affect some medical lab tests to give false results. This may lead to inappropriate treatment or misdiagnosis. Biotin is also being investigated as a potential treatment for MS
MS Trust link: Biotin (MD1003)
MS in the Media
17 May 2019
- Statin has potential as SPMS drug
- EastEnders MS storyline
My Vespa adventure for the MS Trust
13 May 2019
For his next fundraising adventure, our supporter Nick Jolly will be riding 2,500 miles to Hungary on his Vespa scooter. He tells us about the inspiration behind his challenge.
"When you lose something, it makes you appreciate what you have"
13 May 2019
Danielle MacGillivray stars in our new film, Danielle. Here she tells us about her MS diagnosis, why she wanted to share her story in the film and learning to "appreciate the little things" every single day.