16 - 22 December 2017
These are links to news stories from the last week that may be of interest to people in the UK. The link beneath each item will take you to the original story.
Please note that the MS Trust did not write the original items and does not endorse their content nor any claims made in them.
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NICE recommends restricting choice of MS drugs
NICE has published a draft recommendation that Extavia be available on the NHS in England but not the other four beta interferon drugs (Avonex, Betaferon, Plegridy, Rebif) or Copaxone (glatiramer acetate). NICE found that all six drugs were effective and the decision is based on cost effectiveness. To help with our response, the MS Trust is collecting comments from people affected by this proposed change
Having MS and other conditions
A Canadian study found that people with three or more other conditions (comorbidities) were more likely to have relapses in the next two years. The most common comorbidities were anxiety, depression, high blood pressure, migraine and hyperlipidemia (high cholesterol). Migraine and hyperlipidemia were particularly associated with increased relapse risk
Source: MS News Today
MS Trust link: MS research updates
Criteria for diagnosing MS updated
An updated version of the McDonald criteria for diagnosing MS have been published in the Lancet. The new criteria allow for more use of data from lumbar punctures and increase the type and location of lesions seen on MRI scans that can be considered
Source: National MS Society (USA)
MS Trust link: McDonald criteria
MS Trust launches 'Move it For MS' exercise campaign for MS Awareness Week
25 April 2019
This MS Awareness Week, we are calling on people with MS to pop on their pumps and introduce a little activity into their daily routine. Staying active doesn’t need to mean running marathons or going to the gym, it’s about doing it at your own level, at your own pace. Doing it YOUR way.
Don’t judge a book by its cover – Becky’s books help the MS Trust
24 April 2019
Our supporter Becky is raising money for the MS Trust with the sale of her beautiful handmade notebooks.
EMA recommends temporary restriction on use of Lemtrada
12 April 2019
The European Medicines Agency has recommended a temporary restriction on people who should start treatment with Lemtrada while a review of side effects is carried out.