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MS in the media - 23 September 2016

10 - 23 September 2016

These are links to news stories from the last fortnight that may be of interest to people in the UK. The link beneath each item will take you to the original story.

Please note that the MS Trust did not write the original items and does not endorse their content nor any claims made in them.

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MS at the Paralympics

Team GB athletes with MS did well at the Paralympics. 

Kadeena Cox won four medals and the first Briton to win golds in different sports at the same games since 1984.   

Source: Guardian
Source: Daily Telegraph
Source: Press Association/Daily Mail

MS Trust link: Grit and determination - interview with Kadeena Cox


Swimmer Stephanie Millward also collected four medals including two golds

Source: Bath Chronicle

MS Trust link: Childhood MS - Stephanie Millward talks about developing MS in her teens


Archer David Phillips competed in the Mixed Team Recurve and the Men’s Individual Recurve but finished outside the medals.

Gene research for progressive MS questioned

Researchers trying to replicate a Canadian study that said it had identified a gene associated with progressive MS are questioning the original findings, which seem to have been caused by a statistical error.

Source: STAT

MS Trust link: MS research updates

Natural history of people on disease modifying drugs

US research looking at the long-term course of MS in people taking disease modifying drugs found that after 12 years, just over one in ten had developed secondary progressive MS.  Studies in people not on disease modifying drugs suggested that a figure of between one in two and one in three might be expected

Source: MSIF

MS Trust link: MS Decisions - a guide to the disease modifying drugs for relapsing MS

MPs support call for medical cannabis

The All Party Parliamentary Group on Drug Policy Reform has called for the reclassifying of cannabis to allow it to be made available for medical reasons.  Their decision is based on a report that found good evidence that it helps manage symptoms including pain, spasticity and anxiety.

Source: BBC
Source: Independent
Source: Guardian (article by the author of the report)

MS Trust link: Cannabis

Film about footballer with MS released on DVD

The 1980s BBC film Go Now, starring Robert Carlyle as a footballer with MS, has been released on DVD.  It includes an interview with former Southampton and Manchester United player Danny Wallace talking about how MS affected his career.

Source: Fan Carpet

MS Trust link: Personal stories of people living with MS

Older people with MS

Research shows that younger people can learn from older people with MS about how to age well with the condition

Source: MD Magazine

Ageing with MS

Discussion of Canadian research published in August that looks at aspects of growing older with MS.  Picks up on social connections, attitude and outlook, and lifestyle.

Source: MS News Today

MS Trust link: Lifestyle

Progressive MS research funding

The International Progressive MS Alliance has announced large grants for international projects looking at biomarkers and drug discovery methods for progressive MS

Source: National MS Society (USA)

MS Trust link: The new focus on progressive MS

Guidelines on more than one long-term condition

NICE has published guidelines on the management of people with more than one long-term condition (multimorbidity). It calls for a tailored approach that puts the individual at the heart of decisions about their care. 

Source: NICE

MS Trust link: NICE MS Guideline

ECTRIMS round up

The ECTRIMS (European Committee for Treatment and Research In Multiple Sclerosis) annual conference is the largest annual international conference devoted to basic and clinical research in multiple sclerosis.  The 2016 meeting took place in London from 14-17 September and covered drug treatments for relapsing and progressive MS as well as a variety if non drug topics

MS Trust link: MS in the Media - ECTRIMS 2016