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MS in the media - 7 July 2017

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1 - 7 July 2017

These are links to news stories from the last week that may be of interest to people in the UK. The link beneath each item will take you to the original story.

Please note that the MS Trust did not write the original items and does not endorse their content nor any claims made in them.

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Living with hidden disabilities

An article on the impact of living with conditions without visible symptoms includes a video of Erika North, a Radio Kent presenter who has MS. She talks about memory issues and reactions to her using her Blue Badge

Source: BBC

MS Trust link: Invisible symptoms: the unseen side of MS

Small study of lipoic acid for SPMS

A pilot study in the USA found that taking lipoic acid a daily for two years reduced the rate of brain tissue loss (atrophy) in people with secondary progressive MS. A larger trial is planned for later this year

Source: Medical News Today

MS Trust link: MS research updates

Types of vitamin D

Research at the University of Surrey has highlighted that vitamin D3 is a better source than vitamin D2.

Source: Daily Mail

MS Trust link: Vitamin D

Stem cell tourism

An international group of 15 researchers (including the universities of Oxford and Edinburgh) have called for tighter regulation of the advertising and provision of unproven stem cells treatments around the world. The group isn't specifically warning about treatments for MS, though MS is mentioned as one of the conditions affected

Source: Daily Mail
Source: Independent

MS Trust link: Stem cell therapy

Carers' mental health

The importance of care for carers is demonstrated in a Canadian study that found people with neurodegenerative conditions (including MS) who were being cared for by a family members whose mental health has been affected are more likely to die sooner than those with mentally healthy carers

Source: MS News Today

MS Trust link: Carers

Neurological conditions and mental health services

The Neurological Alliance has published a report highlighting the absent or poor mental health services for people with a neurological condition

Source: Neurological Alliance

MS Trust link: Depression

Access to MS treatments in Wales

MS specialists have raise concerns with members of the Welsh Assembly about the difficulty in getting people onto Sativex. Variation between health boards and lack of capacity are the main issues. This latter is also affecting disease modifying drugs for relapsing MS and the problem is likely to get worse as new treatments come along

Source: Wales Online

MS Trust link: Treating MS symptoms

Smell and progressive MS

A small study found that impaired sense of smell occurred in more frequently in people with MS than in a healthy control group, and was much more common in people with primary progressive MS and in those with relapsing remitting MS

Source: MS News Today

MS Trust link: How MS can affect the sense of smell