Lots of you share your views on issues affecting people with MS in the letters, and emails you send us, your phone calls and on our social media channels. Here we we focus on a couple of burning issues that have got many of you talking.
When you’re experiencing MS fatigue, everyday tasks like cooking can leave you feeling completely drained. We asked our Facebook community to share their tips and ideas for cooking with MS.
"I chop everything with scissors, even chicken breasts. I’ve even converted a non MS’er husband!" Joanne
"Buy chopped onions, and other chopped veg, and keep in the freezer. And cook in the morning while you still have a brain!" Alison
"Plan ahead. When I’m feeling good I cook job lots and then freeze it." Jane
"Frozen veg saves the agony of chopping and cutting fingers. The slow cooker is your friend and cook more than you need and freeze the extra for the ‘it ain’t happenin’ days." Nicola
"I’ve delegated all cooking responsibilities to my SO. Hoovering and cooking are his areas of responsibility. I get the washing up, ironing and cleaning. Oh, and shouting at the kids to come and pick up their mess from wherever they’ve left it." Harriet
"I put vegetables into a washing up bowl to peel, taking them into the living room to prepare while sitting on the sofa. Later I take them into the kitchen to wash and slice. Zip lock bags are good for storing sauces and casseroles as they lay flat in the freezer. Battery operated one touch jar openers are great if your hands /wrist don’t work so well." Vanessa
After being diagnosed with MS, it’s natural to experience a whole range of emotions. We asked you to share your experiences of MS diagnosis and the emotions you went through
"I felt fear for the future, but also relief that I wasn’t just being lazy or making up my weird symptoms." Emma
"I felt relief that I wasn’t dying of a brain tumour, but tearful for about two weeks after . . . as a nurse I knew what it could mean. Now totally OK with it all and looking at getting a trendy whizzy scooter which I can fold and fit in my car." Chantal
"After being passed around like a pass-the-parcel gift for close to 3 years, I was relieved to finally be told by a neurologist that it is MS. Sure, there are concerns regarding what the future may have in store for me, but at this point I’m too busy coping with today’s symptoms to devote any time thinking about the future. No one knows what the future has planned for them, so I won’t allow the unknown to impact today." Martin
"Shock, relief, anxious, worried. Had convinced myself it was a brain tumour due to sudden onset of double vision and balance problems. Now just get on with life and take each day as it comes." Sarah
Back in November, Channel 4 showed a documentary about Mark Lewis’s experience taking part in a radical new MS stem cell trial in Israel. Here’s what some of you thought about it. . .
"I watched the programme and thought it was very interesting, but a bit miffed that right at the beginning the person narrating stated that MS is a disease that attacks the brain and didn’t mention anywhere else. It’s bad enough that people I know don’t really understand MS, surely channel 4 should have said that it’s a disease that attacks the central nervous system and the brain." Vicki
"The programme was riddled with inaccuracies. I found it quite upsetting." Liz
Heartbreaking and depressing. Wish I hadn’t bothered watching. Total lack of content." Nixi
"I was sceptical before I even watched it. They say the programmes are about miracle cures when in reality they are only about treatment research which may in 20 years be a cure. They didn’t show results of the other people we “glimpsed”. Jenni
"Thoroughly enjoyed the programme. I found it very interesting." Karyn
"I’d have liked it to be a lot more informative and to have compared this treatment to other stem cell treatments carried out elsewhere. Brave man with a great attitude." Steve
MS Trust launches 'Move it For MS' exercise campaign for MS Awareness Week
25 April 2019
This MS Awareness Week, we are calling on people with MS to pop on their pumps and introduce a little activity into their daily routine. Staying active doesn’t need to mean running marathons or going to the gym, it’s about doing it at your own level, at your own pace. Doing it YOUR way.
Don’t judge a book by its cover – Becky’s books help the MS Trust
24 April 2019
Our supporter Becky is raising money for the MS Trust with the sale of her beautiful handmade notebooks.
EMA recommends temporary restriction on use of Lemtrada
12 April 2019
The European Medicines Agency has recommended a temporary restriction on people who should start treatment with Lemtrada while a review of side effects is carried out.