Read more about the latest developments in MS research, treatments and specialist care, plus the latest updates on our work and the efforts of our amazing supporters
The MS Trust sends out a weekly news alert which includes the latest updates from the MS Trust, latest news, blogs and a news feed from MS in the Media.
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As I write I’m preparing for Glastonbury 2014. This will be my twelfth time at the most famous music festival in the world. As a 19-year-old student in 1993, bumbling along to something I’d barely heard of with a ticket I’d bought the week before, I had no idea what I was getting myself into.
Graham and Nicki Law got married in 1997. Since then they’ve discovered that they are one of only a handful of couples in the UK where both partners have MS. Here they share their story and explain how they’ve found that mindfulness can help them deal with their symptoms and support each other.
Amelia Southard is a writer and blogger who lives in Devon. She was diagnosed with MS in 2002. Earlier this year she took part in the MS Trust Continence Question Time, a series of short videos looking at some common MS bowel and bladder problems.
When I was first diagnosed, the most frustrating thing was that I could no longer wear high heels. I was also worried I may no longer be able to drive my lovely classic car. Fortunately I was still ok to drive but the heels went to the back of the wardrobe.
There really isn’t anything better than live performance. Many of us are in our 20s-30s when we get our diagnosis, and, speaking personally, I was right in the sweet spot of my musical fanaticism. I’m 40 now and I was diagnosed with MS around 10 years ago. I’ve continued to attend gigs, and occasionally play in them too. Like many things which people with any form of disability do, they invariably require a certain level of planning. I’m also more selective about the gigs I go to, but I think that’s mostly to do with having a three-yearold daughter rather than a decrease in mobility.
In the May issue of Open Door we covered pregnancy and MS. In this issue we look at some of the questions mums with MS ask about childbirth and caring for a newborn baby.
A recent article in the Irish Times explores the role of language in the diagnosis of life-challenging conditions including multiple sclerosis.
The MS Trust and MS Society are working together to highlight continuing concern that recommendations in the NICE Clinical Guideline for MS may set back the availability and quality of care for people with multiple sclerosis.
This study looked at how often people reported their relapses and what effect their relapses had on their health, work and relationships.
We’re constantly inspired by the amazing work of our community fundraisers. Now some of you are joining together to make supporting the MS Trust even more fun, more social and more effective. Donna from our fundraising team introduces the new Friends of the MS Trust groups.
A large study has shown that people with HIV appear to be at a significantly lower risk of developing MS.
Towersey Morris are long term supporters of the MS Trust having donated over £10,000 to our work for people with MS and they are now featured on the big screen appearing in Pudsey the Dog: The Movie (showing now at all good cinemas).
Peginterferon beta 1a (Plegridy), a new treatment for relapsing remitting MS, has been licensed by the European Commission.
Living with MS can generate lots of questions.
Being diagnosed generates the first batch.
The MS Trust has worked together with other organisations to ask people with MS and MS specialist nurses how bowel problems are currently being managed and how this can be improved. The report is published today.
One of our supporters has kindly donated a pair of tickets to see McBusted this Sunday (6 July) at Hyde Park in London.
Today is the start of World Continence Week 2014, the annual global campaign to raise awareness about incontinence issues.
Andy Porter from Chester has run the Great North Run five times in aid of the MS Trust, raising more than £5,700 to help people with MS. He reflects back on his fond memories of the world’s greatest half marathon.