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Action for MS

Action for MS outlines the specific areas in which we are currently involved to improve the services that people with multiple sclerosis receive from health services.

Action for MS showcases how the MS Trust works to improve access to specialist services, including disease modifying drugs and symptomatic treatments and therapies. We want everyone to have real choice in health services. As a small organisation, we work with other organisations to ensure that the voices of people with MS are heard.

Latest from Alice Hamilton, Policy Officer - Action for MS

Have your say about the NHS complaints process in Wales

2nd April 2014 by Nicola Pates

Mark Drakeford, Health Minister for Wales, has appointed Keith Evans, former Chief Executive of Panasonic UK, to conduct a review into how complaints and concerns are handled within the NHS in Wales. Keith Evans has asked anyone who has recently had a complaint handled by the NHS in Wales to send confidential feedback on their experience to the review team. They are asking for positive as well as negative experiences, to find out what worked well and why, as well as poor experiences and why these were negative. The review will:
  • review the current process to determine what is working well and what needs to improve
  • consider if there is sufficiently clear leadership, accountability and openness within the process
  • identify how the NHS in Wales can learn from other service industries
  • consider the wider cultural ‘patient’ service ethos and how staff are supported to deal with patient feedback
  • identify how the NHS can demonstrate it is learning from patient feedback
The deadline for comments is 21 April 2014. Individuals – both patients and the public – can email their confidential feedback to or write to: Keith Evans, Aneurin Bevan University Health Board Headquarters, St Cadoc's Hospital, Lodge Road, Caerleon, Newport NP18 3XQ Alice Hamilton, Policy Officer

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Scotland passes new law to make health and social care work better together

6th March 2014 by Shan Teo

  The snappily titled Public Bodies (Joint working) Scotland Bill  was passed by the Scottish Parliament at the end of February, which means it now becomes law. This new Act sets out the structure and legal framework for making health and social care work together. The aim is to change how services are provided in favour of preventive services, rather than reactive services - a good example for MS might be access to good community continence services, rather than admission to hospital with urinary tract infection. The Scottish government plans to disband Community Health Partnerships and replace them with integrated community partnerships, which will have pooled health and social care budgets and be responsible for providing both sets of services at a local level. What organisations have to do will be defined through regulations, which have not yet been published. There will be a ‘minimum scope’, which will include social care services, primary care health services, and probably some services provided by acute hospitals.  The implication is that successful organisations may include more services than the minimum. Regulations will also set out national outcomes for health and wellbeing. These are likely to be high level, general improvements in health such as reducing the number of premature deaths. No timescale has been given for publishing the regulations. Alice Hamilton, Policy Officer  

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View all of Alice Hamilton's Action for MS blog posts