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Policy and campaigning
Information Team, MS Trust
Overview of the new policy document on health from Scotland, the Darzi review in England, better self-management strategies in Wales, natalizumab availability in Northern Ireland, the Health Select Committee review of NICE and a campaign that the Neurological Alliance is involved in around the information needs of people with neurological conditions.
Prescribing assistive devices to people with MS: how do the views of patients and professionals compare?
Brian Buckley, Cochrane Fellow and Researcher in Primary Care, National University of Ireland, Galway
Effective provision of assistive devices, including aids for mobility, everyday tasks and personal care, can maintain or improve functional capacities of people with disabilities. Underuse, misuse or abandonment of such devices is a significant problem which constitutes both a failure in provision of care and a waste of resources. This article describes a study carried out to compare the perspectives of health professionals and patients with MS regarding factors which affect the provision and use of assistive devices.
The sexual experience: the lived experience of women whose partners have been diagnosed with multiple sclerosis
Shaniff Esmail, Associate Professor, Department of Occupational Therapy, Faculty of Rehabilitation Medicine, University of Alberta, Canada
This article is the fourth in a series of articles that explore the experiences of couples in which one partner has been diagnosed with MS. This article explores the second phase of the study focusing on couples in which the male partner was diagnosed, particularly looking at the woman's experience of the relationship and how it has changed since their partner's diagnosis.
Working with MS: experiences of people with MS and professionals
Gail Townsend, Research Occupational Therapist, Buckinghamshire PCT, Aylesbury
An extensive literature review in 2004, found that very little research into the experiences of people with MS at work had been carried out in the UK. This article describes a project developed to explore the experiences of people with MS, and the professionals who may be supporting them, in employment.