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Information for carers

Often the role of carer falls on family members, either voluntarily or because service providers and family members assume that this should be the case. Adopting the role of a carer should be a choice and people with MS and their families are entitled to decide that this is not something that they would like to take on. The following links are for people who are acting as carers.

Carer charities

Carers Trust
Provides information, support and practical help to carers through more than 100 independently-managed Carers Centres. This new charity was formed in April 2012 from the merger of Crossroads Care and The Princess Royal Trust for Carers.
In Scotland the organisation is still be known as the Princess Royal Trust for Carers.


Carers UK
Provides information and advice about caring and practical and emotional support for carers. Also campaigns to make life better for carers.


Young Carers
A site for people under 18 who who are caring for someone.

Other sources of information

Multiple Sclerosis: friends and family experiences
A collection of videos in which family members and friends of people with MS talk about their experiences and the effect the condition has on their lives


Carers Direct
A section within the NHS Choices website with information on well-being for carers, claiming benefits, advice for young carers and contact details of local authorities


Expert Patients Programme (EPP) Looking After Me course
Self management UK run free courses for adults in England who care for someone living with a long-term health condition or disability.


Carers Week
Annual awareness raising week.

MS Trust links

Books for people caring for people with specific symptoms

Are you sitting comfortably..?
Simple changes in posture can have a great impact on anyone who spends most of their day sitting down and help them to remain as healthy as possible. The aim of this book is to provide basic information on helping people maintain good posture when sitting.


Falls: managing the ups and downs of MS
This book looks at factors that increase the risk of falling and includes tips and suggestions for reducing the dangers.


Full list of MS Trust publications