Open Door: May 2015
A free, quarterly newsletter for people with multiple sclerosis, their family and friends and supporters of the MS Trust.
Every issue we report on our work, aiming to make life better for everyone affected by MS, and suggest ways you could get involved.
We also round-up the most relevant MS news and research projects; share the real-life stories of people living with MS; and introduce advice from healthcare professionals that could make a practical difference to you today.
- Looking for previous issues of Open Door? Visit our Open Door archive to browse every article since 2001.
- If you would like to receive a copy of Open Door in larger print, please get in touch.
- Sign up to receive your free copy of Open Door by post or email.
Read the latest issue of Open Door exactly as in appears in print:
Latest news from the MS Trust including reports on:
Thank you Trishna!
Avonex, Betaferon, Copaxone and Rebif found to reduce progression for people with relapsing MS
A study at the University of Nottingham is looking at ways to help people with MS who have difficulty with memory, planning and attention span.
There are still a few tickets available for comedian John Shuttleworth's star-studded show in support of the MS Trust at the London Palladium on 28 June. Book yours now at reallyusefultheatres.co.uk
We'd like to thank Trishna for her amazing performance in the People's Strictly TV programme that was broadcast as part of Red Nose Day back in March!
Recently several of the national newspapers have reported "miraculous" results from stem cell treatments for people with MS. Headlines included "Stem cell reboot has MS patients dancing" and "Miracle stem cell therapy reverses multiple sclerosis". But what are the facts behind these headlines?
A round up of the latest MS research:
This study looked at studies of swallowing in MS to find out just how common this problem is
Problems with aspects of thinking such as memory, concentration or problem solving are common in MS. This study compared tailored and general treatment to see which is the most effective
Research has shown that the ability of children to adjust to having a parent having MS depends partially on how much they know about MS. This study interviewed families to find out what they felt they needed when one parent is diagnosed with MS
There have recently been encouraging developments in understanding and treating progressive MS. In this issue of Open Door we report on MS Trust research into the experience of transition between relapsing and secondary progressive MS and hear from Dr Jeremy Chataway on his research into the effects of three drugs on people with secondary progressive MS. To introduce the feature, Professor Alan Thompson, who is co-chair of team that coordinates the International Progressive MS Alliance's research programme, explains how the focus has changed
Finding that the pattern of your MS is changing from relapsing remitting to secondary progressive can be a distressing experience. Many people report that it feels like being diagnosed with MS all over again. How can we improve the support available to people going through transition? Two years ago we commissioned a team of researchers at Cardiff University to explore people's experiences and look at ways support could be improved. Dr Freya Davies explains what they found out
Dr Jeremy Chataway is a consultant neurologist at the National Hospital for Neurology and Neurosurgery in London and has been involved in MS research for many years, most recently into the effects of simvastatin on progressive MS. He's now leading on the MS-SMART trial, looking at the effects of three drugs which are already used for other conditions on people with secondary progressive MS. The trial is recruiting throughout 2015. Dr Chataway spoke to Open Door about the state of progressive MS research, and the promise of his current research
We often focus solely on our physical health but looking after our mental health is also vital to our sense of wellbeing. Jo Johnson, a consultant neuropsychologist with a special interest in MS, introduces practical steps you can take to improve and maintain your mental wellbeing
The issue of vaccinations and multiple sclerosis raises a number of questions for people with MS. Are the treatments safe? Do they work in MS? Are they affected by other treatments? Here we look at some of the more frequently asked questions
Did you know that we received £1.1 million last year from people like you raising funds and donating? There are lots of ways you can get involved and support our work helping everyone affected by MS.
Tracy Nicholson is the Research Manager at the MS Trust. She was diagnosed with MS in 2000. To celebrate their 50th birthdays, she and her friend Katrina decided to do a cycle, trek and kayak adventure in North Vietnam to raise funds for the MS Trust
Visit our Open Door archive to browse every article since 2001.