Open Door: February 2014
A free, quarterly newsletter for people with multiple sclerosis, their family and friends and supporters of the MS Trust.
Every issue we report on our work, aiming to make life better for everyone affected by MS, and suggest ways you could get involved.
We also round-up the most relevant MS news and research projects; share the real-life stories of people living with MS; and introduce advice from healthcare professionals that could make a practical difference to you today.
- Looking for previous issues of Open Door? Visit our Open Door archive to browse every article since 2001.
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Read the latest issue of Open Door exactly as in appears in print:
Latest news from the MS Trust including reports on:
New drugs for relapsing remitting MS
- Teriflunomide (Aubagio) - NICE confirms approval in final guidance
- Alemtuzumab (Lemtrada) - NICE gives initial "no" decision
- Tecfidera gets European licence
- Laquinimod (Nerventra) turned down for European licence
The failure to publish all clinical trial data may be putting people at risk according to MPs.
A poll of disabled people's experiences of the changes in the welfare system has found that two thirds of people with MS report anxiety about their access to benefits and half said the anxiety was affecting their health.
Our joint response to threats to specialist nurses will include a new online resource to be launched this spring.
Our GEMSS programme has helped safeguard the role of an MS nurse at Northumbria NHS Trust. The programme is now entering its second phase with ten new teams from around the UK.
MS Life 2014, the world's biggest lifestyle and information event for people with MS, will take place at the Manchester Central convention centre on 26 and 27 April and we're pleased to announce the MS Trust will be there.
A round up of the latest MS research:
Research in Sweden suggests the risk of a relative of someone with MS also getting the condition is lower than previously thought.
A recent study found that people with the early symptoms of MS who had higher levels of vitamin D in the blood were less likely to experience relapses, had fewer active lesions on MRI and a slower rate of progression.
Short bursts of moderate exercise can reduce fatigue and improve quality of life for people with MS according to recently published research.
As the MS Trust enters its 21st year we're taking this opportunity to look back at some of the advances in MS support and care since we were founded in 1993.
That was the headline on the very first issue of our newsletter Open Door. Simon, who joined our information team in 2000, reports on how our service has developed in response to changing needs over the years.
Jill Lovell has lived with MS for over 30 years and has been involved in the work of the MS Trust since the beginning. Here she looks back on some of the big changes of the last 21 years.
Nicki Ward-Abel has been an MS nurse since 1997. Here she remembers how the MS Trust helped transform MS nurse training for the benefit of everyone affected by MS.
Getting a handle on MS can be hard enough when you live with it yourself. But it can often be just as tricky for children and young people to understand why their mum or dad is too tired to play or why they might have to help out more at home.
People with MS have an increased risk of developing osteoporosis, which means thinning of the bones and susceptibility to fractures. What can you do to keep your bones healthy and strong?
When Liz Hilland from Country Durham found out she had multiple sclerosis in 1999 she knew very little about it and feared it was an end to the life she knew. Since then she become involved in raising funds and awareness and last year she took part in a zip slide from the Tyne Bridge as part of our Be Bold in Blue campaign.
This year's MS Awareness Week takes place from 28 April to 4 May and we hope that lots of you will get involved. This year we're also introducing Be Bold in Blue Goes Large, which gives you a chance to really think big and plan a fundraising and awareness event on a larger scale.
Over the last 10 years Anne Thompson, whose son has MS, has been one of the MS Trust's most dedicated fundraisers. All in all she's raised almost £15,000 that's enough to pay for the writing and production of our new guides to managing MS bowel and bladder problems.
Visit our Open Door archive to browse every article since 2001.