Open Door: March 2015
A free, quarterly newsletter for people with multiple sclerosis, their family and friends and supporters of the MS Trust.
Every issue we report on our work, aiming to make life better for everyone affected by MS, and suggest ways you could get involved.
We also round-up the most relevant MS news and research projects; share the real-life stories of people living with MS; and introduce advice from healthcare professionals that could make a practical difference to you today.
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Read the latest issue of Open Door exactly as in appears in print:
Latest news from the MS Trust including reports on:
Interim results from a five year stem cell study suggest the treatment could eventually be an effective way to manage relapsing remitting MS.
The Scottish Medicines Consortium (SMC) has approved peginterferon beta-1a (Plegridy) as a treatment for relapsing remitting multiple sclerosis on the NHS in Scotland.
Researchers have started to recruit 440 people with secondary progressive MS across the UK for a trial that will look at drugs that may limit the progression of MS.
Can you help us develop a website for people choosing a disease modifying drug?
MS awareness campaigner, Trishna Bharadia, is featuring in the new BBC series for Comic Relief
A report finds 'significant variation' in neurological services and that more than half of people with a neurological condition experience problems accessing treatment or care
A round up of the latest MS research:
There are no medications that are specifically approved to treat MS fatigue. This study looked at whether alfacalcidol, a synthetic version of vitamin D, had an effect on MS fatigue
This study looked at data from people with MS around the world to see if the number of relapses varied by season
About half of all people with MS have problems at some time with aspects of thinking such as memory, concentration or problem solving, often referred to as cognition. This study looked at whether smoking could make these problems worse
The human papillomavirus (HPV) vaccine (Gardasil) protects against cervical cancer. This study looked to see if being vaccinated against HPV could cause someone to develop MS
- MS specialists understand how MS affects everyone differently
- MS specialists understand the physical and psychological symptoms of MS
- MS specialists have strong links with local neurology departments
- MS specialists are aware of all the latest treatments and therapies
- MS specialists see the whole person rather than just the symptoms
At the MS Trust, we believe that people living with MS deserve the best possible care.
There are over 100,000 people living with MS in the UK today. But MS Trust research shows that there is a shortage of MS specialist nurses and an urgent need to raise the profile of the physiotherapists and occupational therapists with special expertise in MS.
Leonie lived with MS for two years before finding an MS specialist nurse
This year the MS Trust will be campaigning to make sure MS specialists are at the heart of MS care. But we need your support.
We've all heard stories about miracle cures for MS; these days they often involve stem cells. Neil Scolding is the Burden Professor and Director of the Bristol Institute of Clinical Neurosciences, and he has a special interest in MS and cell therapy. He's also a trustee of the MS Trust and is leading research we've helped fund into bone marrow cell therapy. We asked him to explain the significance of the latest research and help sort the hope from the hype
The MS hug sounds quite benign but can be a shock if it happens to you. Jane from the MS Trust information team looks at what it is and how you can manage it
David Middleton and his friends Charlie, Joe and Matt (right) are the Atlantic Lions. Together they have entered the 2015 Talisker Whisky Atlantic Challenge, which will see them row across the Atlantic Ocean. By doing so, the Lions hope to raise £100,000 to support the work of the MS Trust. David explains why they've set themselves this huge challenge
Emma Rogan was diagnosed with MS in 2007 and since then has worked tirelessly to raise awareness of the issues that affect people with MS. In 2012 she entered the Vodafone World of Difference competition and worked with MS Ireland on advocacy, policy and information. She now works for the European MS Platform, and is leading their Believe and Achieve campaign, creating paid internship opportunities for young people with MS through partnerships with businesses across Europe
Visit our Open Door archive to browse every article since 2001.