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Open Door: February 2014

A free, quarterly newsletter for people with multiple sclerosis, their family and friends and supporters of the MS Trust.

Every issue we report on our work, aiming to make life better for everyone affected by MS, and suggest ways you could get involved.

We also round-up the most relevant MS news and research projects; share the real-life stories of people living with MS; and introduce advice from healthcare professionals that could make a practical difference to you today.


Read the latest issue of Open Door exactly as in appears in print:


Download the latest issue of Open Door as a PDF (3.8 MB)


Or read the original articles as they appeared on our website:


News

Latest news from the MS Trust including reports on:


Research update

A round up of the latest MS research:


21 years of the MS Trust

As the MS Trust enters its 21st year we're taking this opportunity to look back at some of the advances in MS support and care since we were founded in 1993.

  • "A positive approach to multiple sclerosis"

  • That was the headline on the very first issue of our newsletter Open Door. Simon, who joined our information team in 2000, reports on how our service has developed in response to changing needs over the years.

  • The power of personal contact

  • Jill Lovell has lived with MS for over 30 years and has been involved in the work of the MS Trust since the beginning. Here she looks back on some of the big changes of the last 21 years.

  • It used to be "diagnose and adios"

  • Nicki Ward-Abel has been an MS nurse since 1997. Here she remembers how the MS Trust helped transform MS nurse training for the benefit of everyone affected by MS.


Explaining MS

  • Helping kids understand MS

  • Getting a handle on MS can be hard enough when you live with it yourself. But it can often be just as tricky for children and young people to understand why their mum or dad is too tired to play or why they might have to help out more at home.


Practical tips

  • Lovely bones

  • People with MS have an increased risk of developing osteoporosis, which means thinning of the bones and susceptibility to fractures. What can you do to keep your bones healthy and strong?


Get involved

  • Going boldly through the blue!

  • When Liz Hilland from Country Durham found out she had multiple sclerosis in 1999 she knew very little about it and feared it was an end to the life she knew. Since then she become involved in raising funds and awareness and last year she took part in a zip slide from the Tyne Bridge as part of our Be Bold in Blue campaign.

  • Be Bold in Blue goes large for this year's MS Awareness Week!

  • This year's MS Awareness Week takes place from 28 April to 4 May and we hope that lots of you will get involved. This year we're also introducing Be Bold in Blue Goes Large, which gives you a chance to really think big and plan a fundraising and awareness event on a larger scale.


15 minutes with...

  • MS Trust fundraiser Anne Thompson

  • Over the last 10 years Anne Thompson, whose son has MS, has been one of the MS Trust's most dedicated fundraisers. All in all she's raised almost £15,000 – that's enough to pay for the writing and production of our new guides to managing MS bowel and bladder problems.


Open Door archive