Tips for living with MS - getting informed
When it comes to finding out about MS, everyone is different. Some people feel much more in control if they are fully informed while others prefer to gather information on a strictly 'need to know' basis:
- Not everyone wants to know everything about MS all at once - seek information when you feel ready to deal with it
- It is natural to fear the unknown. Learning about the processes involved in MS can help you to understand why you experience particular symptoms and allow you to make more informed decisions about treatment
- Do as much reading and research as you like but try to maintain a balanced view - MS takes many different forms so don't always think the worst
- Don't be fobbed off if people can't immediately provide the information you seek. If you want answers to questions or need specific support, be persistent
- Be prepared to do your own research and try and keep up to date with the latest findings. It is encouraging to see that progress is being made
- Contact as many MS organisations as you can - MS Trust, MS Society, MS Resource Centre, etc. They all have something different to offer.
- Take advantage of courses for newly diagnosed people with MS, if available
- Other people with MS are often the best source of information and support. If you have access to the Internet, join a chatroom or forum. It can be really comforting to share notes and tips with somebody who is in the same situation and understands what you are going through
- MS nurses and therapy centres are also an excellent port of call for information and support
- Don't always assume that others know more about MS than you do. You may well end up educating your doctor about this condition. They deal with many different illnesses while you are a real expert in one!
- Make sure that those around you, including family and friends, have a good understanding of what MS is and what it means. This will help them to provide appropriate support when you need it