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Tips for living with MS - medical matters

MS is a complex and unpredictable condition. Symptoms can come and go and treatments may need to be adjusted from time to time. Be prepared to adapt to changing circumstances.

These tips may help you make the most of your medical appointments:

Liaising with healthcare professionals

  • Try to develop a positive relationship with your GP, who can be fundamental to ensuring that you receive the best possible care
  • Ask if there is an MS specialist nurse in your area and, if so, ask to be referred
  • Be honest with your doctors and specialists about your symptoms. If you are having a good day when you see the doctor, describe your symptoms on a bad day. Don't forget to tell them how you feel
  • Write down any questions you have before your appointment and take a pad of paper so that you can make notes. It can also help to take somebody along with you
  • If you disagree with your GP or neurologist, speak up! Your viewpoint is valid and you are the expert in your MS
  • Don't immediately reject any treatment suggested by your doctor. Talk through your concerns and take time to consider each option carefully
  • When you have an appointment with your doctor or nurse, try not to feel pressurised or rushed. Take your time and make sure that you get the most out of your appointment

Managing symptoms

  • Try not to panic if symptoms change or new problems arise.
  • Don't assume that every new symptom is caused by MS Keep a record of when symptoms appear and how long they last
  • Ease swollen feet and legs by raising them above waist level, using pillows or a recliner. Work your calf muscles by pulling your foot upwards to reduce fluid
  • Manage spasticity by 'breaking up' and changing rigid body posture, for example by bending the legs. When in bed, another good tip is to place a pillow lengthways just under the hip. This will roll the angle of the hips a few degrees, thus varying the pressure points. Bolster cushions can also be useful
  • Do a few simple stretching exercises in bed before you get up in the mornings. Done regularly, this will make a real difference
  • Regular physiotherapy can often be helpful. Ask your doctor
  • If you have double vision, wear glasses (plain glass is fine) and cover one lens with tape or ask about plastic prisms for your glasses
  • Be aware that fatigue is a symptom of MS and not just a sign of being unfit
  • If you experience bladder or bowel problems, ask to be referred to a continence advisor - these problems can be successfully managed and a continence advisor can provide a great deal of valuable advice and support
  • A cradle or cage to keep bed covers off your feet can help to relieve sore heels
  • If you have regular injections (for example beta interferon treatment) but hate needles, ask your GP about hypnotherapy or auto-injectors
  • The solution to your problem may be unexpected. Singing lessons can help relieve the symptoms of choking!

Next page - Complementary therapies