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Making Sense of MS helped 14-year-old Amy deal with diagnosis: we need your help to reach even more people

21st November 2014 by Stephen

Amy wearing her MS Trust wristband
Amy modelling her new MS Trust wristband

If you’re a subscriber you’ll have seen that the new issue of our free newsletter Open Door, out this week, leads on our new resource Making Sense of MS.

We hope Making Sense of MS will make a real difference to people at the moment they’re diagnosed, giving them the facts about MS in a discreet, accessible booklet, and helping them find more detailed information when it’s right for them.

It’s already helped Amy who got in touch on Twitter to tell us. Amy is 14 and was diagnosed in August this year.

“I found out I had MS after about a year of symptoms which my parents thought was muscle strain,” Amy told us. “I went to the doctor and was instantly referred to the hospital in March 2014. I was diagnosed with demyelination after a month of testing, an MRI scan and a lumbar puncture. Then after persisting on-and-off symptoms, I was diagnosed with relapsing remitting multiple sclerosis.”

Being diagnosed with MS is never easy, but it can be particularly hard news to take in if you’re a teenager. “I knew barely anything about MS at the time of diagnosis,” says Amy. “I thought I would go blind but my doctor said that wasn’t a symptom for me.”

When she was diagnosed Amy was given the MS Trust Young Person’s Guide to MS and told that the MS Trust website was a good place to go to find out more about MS.

“I had a lot to find out and the MS Trust website and Making Sense of MS helped me find all that me and my family needed for the time being,” says Amy. “I found the How to tell people section really useful. It helped me tell my close friends, as well as talking to my school in a meeting about MS. It gave me a boost of confidence to help talking openly about my illness. I also showed my parents as they were both struggling to come to terms with my diagnosis.”

We were only able to develop Making Sense of MS thanks to the support of people like you. Now we need your help to make sure we reach even more people like Amy.

On average, around 15 people are diagnosed with MS every day. A gift of just £15 will help us deliver the little blue book of MS to each of them, helping them find the information that’s right for them, when they need it most.

You can make a gift right now on our online donation form or by calling 01462 476700.

Find out more about how your donations support our work.

 

Loom bands in MS Trust colours

18th November 2014 by laura.percival

Fiona Grant from Cambridge tells us why she has decided to make loom bands to help support the work of the MS Trust.

Described by The Mirror as the tween craze that became a must-have fashion accessory, and spotted on the arm of more than the odd celebrity, loom bands have become increasingly popular. Their prevalence inspired me to make these friendship style bracelets, which can be worn by men, women and children, in MS Trust colours.

I wanted to raise awareness of MS and the work of the MS Trust. My Dad was diagnosed a few years ago now and currently lives with secondary progressive MS. He is very impressed with the work of the MS Trust and offers them financial support. I, too, would like to show my support for the valuable services the MS Trust provides.

I hope my loom bands will be seen as a stylistic alternative to the official MS Trust wristband. Similarly I hope they will serve the purpose of raising both money and awareness. 100% of proceeds go to the MS Trust. While there are only 30 loom bands currently available on my ebay listing I pledge to make more if demand dictates.

Visit Fiona’s ebay shop to buy a loom band for just 99p (plus P&P)

Loom band on wrist Three loom bands

Have your say about Northern Ireland’s ehealth and care strategy

14th November 2014 by Nicola Pates

If you live in Northern Ireland, the Health & Social Care Board (HSC) is asking for views about its new strategy to improve the use of electronic and digital information within the health and social care system in the province.

The strategy has six objectives:

  • Supporting people
  • Sharing information
  • Using information and analytics
  • Supporting change
  • Fostering innovation
  • Maintaining and improving what we have

Many of the outcomes are tied to concrete objectives, such as giving individuals better access to their own records, and reducing the amount of time health professionals spend entering information into notes. Some of the questions that the HSC would like responses to are as follows:

  • how far should the HSC be using eHealth technologies to help people look after their own health and wellbeing? This includes things like websites, mobile apps, online support tools, social media (eg Facebook and Twitter), and personal text or email messages
  • how far do you agree that options such as booking appointments, repeat prescriptions, email questions to doctors, texting care professionals and similar services would be useful?
  • if a health or care professional uses a computer to support their decision making whilst in a consultation, would that help, hinder or have no effect on the conversation?
  • how useful would it be to have access to your eHealth records (ie your electronically held patient records?)

They also ask about your opinion on sharing health information among health professionals, about security of health information and about whether expanding eHealth in Northern Ireland might foster economic development, for instance by encouraging new software companies to develop.

The MS Trust won’t be responding to this consultation but if you live in Northern Ireland and feel strongly about this, please do!  There is a paper list of the questions to the consultation at the back of the leaflet, or you can respond to the consultation electronically.

The consultation closes Friday 9 January 2015 at 5pm.

15 minutes with… TV journalist Stephanie Scawen

13th November 2014 by Nicola Pates

Stephanie Scawen

Last year the Al Jazeera TV journalist Stephanie Scawen presented MS and Me, a film about coming to terms with her MS and investigating the significance of the latest MS research. This year she was keynote speaker at the MS Trust Annual Conference, our event for MS healthcare professionals

What kind of feedback did you get after MS and Me was broadcast?

The feedback was amazing. Most comments were very supportive of me with lots of comments about how brave I was, which was very flattering as I personally don’t feel brave. Things are just the way they are. I had many offers of snake oil cures and treatments which I just ignored, and many links to an American woman MD’s online video about how she cured her MS by eating bucket loads of kale every day (yuck), which also seemed to be a bit of a scam to me as all she really seemed to be doing was trying to flog her book, rather than exposing her cure to scientific scrutiny. But overall the feedback was amazing.

You said your ambition for the film was “To show people with MS that they can do whatever they want to do. You just have to approach it slightly differently.” Do you think you succeeded?

I hope so. For people who are not disabled or who do not have first-hand experience of dealing with someone with disabilities, it’s very hard for them to imagine what life is like being unable to do things as normal. The idea, for example, of losing a leg in an accident, would be for many people unbearable. But when they are confronted with that reality they get on with it, because you just have to. Look at all the Paralympians who do such amazing things!

When we last spoke you were coming round to the idea of using a mobility scooter or a wheelchair. Did you go ahead with that? If so, how are you finding it?

When my left leg started spasming towards the end of last year it was the most sensible thing to do in the end, as my walking had become so slow and difficult and I was in a lot of pain, so a wheelchair just meant I could get around more quickly and safely. And the sky didn’t fall in as I had feared. Generally people have been very helpful with it. And I get to queue jump everywhere which is good. I’ve had a few ‘exciting’ episodes with my chair which I discussed in my speech. It certainly ain’t boring.

We’re delighted you agreed to speak at this year’s MS Trust conference. Having travelled the world as a journalist, reporting from war zones and scenes of disaster, did the prospect of speaking to a room full of MS professionals hold any fears for you?

No. I was more afraid no one would understand my sense of humour!

As a journalist do you have any thoughts on how MS – or potential cures – are covered in the media?

Most articles are reasonably balanced, but it annoys me that they pretty much always refer to MS as a crippling disease, as if a diagnosis instantly places you on the scrapheap. For the majority of people it’s not. There’s an old media phrase “if it bleeds, it leads”, so the headlines will always focus on the best or worst outcome. “Scientists find cure” or “MS drug kills patient”, for example.

And the headlines talk about a cure as if it will be on the shop shelves tomorrow. I wish I could say journalists should check their facts for accuracy or at least balance, but in this world of 24-hour media the critical details seem to get missed out.

The Reindeer Rally Run and more fundraising ideas

13th November 2014 by Nicola Pates

Reindeer Run poster

Are you a teacher, Brown Owl, Scout Leader or parent? We are looking for schools or groups to get involved this winter in the MS Trust’s first Reindeer Rally.

The Reindeer Rally is a great way for young children to get involved in raising money for the MS Trust. When you sign up you will receive a free fundraising kit which includes a reindeer mask for each child to design and wear for a short sponsored race.

It’s up to you when you decide to hold your Reindeer Rally. Race day will involve the children wearing their masks while taking part in either a short sponsored run or an obstacle course – the choice is yours! The children will use the sponsorship forms provided to raise money for the MS Trust.

To order your free fundraising kit which includes a reindeer mask for each child, sponsor forms, balloons, posters and a copy of our Kids’ guide to MS, please visit mstrust.org.uk/reindeer, email fundraising@mstrust.org.uk or call 01462 476707. GO REINDEERS GO!

More fundraising ideas…

There are loads of ways you can get involved and support our work helping everyone affected by MS. Here are just a few ideas. To find out more visit mstrust.org.uk/fundraising or call 01462 476707

Send MS Trust Christmas cards

MS Trust Christmas cards are on sale now with fantastic new designs to choose from. Every card you send helps to raise awareness of MS and the MS Trust.

DIFC Santa Run, London

Dress up in your free Santa suit and run, jog, walk or use your wheelchair or scooter to get around the 5km or 10km route in Victoria Park on 7 December.

Monster Ski, Chamonix

Ski or snowboard the height of Mount Everest every day in our exclusive Monster Ski challenge, taking place from 13–17 March 2015.

London to Paris Cycle Ride

Cycling through beautiful English villages and into the stunning countryside of rural France will be an experience you will never forget. Various dates available for rides in 2015.

Prudential RideLondon-Surrey 100

Cycle 100 miles on closed roads from London to Surrey on 2 August 2015. This event is getting bigger and better every year so get on your bike and join in!

“Engage real hope now…”: Jeffrey Gingold on the benefits of cognitive rehabilitation

13th November 2014 by Shan Teo

Jeffrey Gingold on the benefits of cognitive rehabilitation

Validation and hope are precious commodities when you have MS. Even with my optic neuritis, I could see the significance of the MEMREHAB study Professor Langdon talks about.

The study confirms that you should push back against your MS by engaging life. Just like with physical exercise, you need to do it for any direct benefit.

In the military they say that the best way to take a bridge is from both directions. For their part, people with MS must first acknowledge their cognitive challenges to better understand how they may cope with rehabilitation techniques. Then they can meet the MS health professionals on the other side of the bridge and welcome the strategies. Take the bridge from both directions.

Cognitive rehabilitation may not just improve your memory, but can also have a positive ripple effect on other MS symptoms, such as fatigue, emotional wellbeing, and overall quality of life. Future studies will better establish who will benefit from specific types of training. Don’t just think about it, engage real hope now.

Sometimes the most devastating MS symptoms are the ones that you didn’t see coming. Cognitive challenges should no longer be in that bucket.
Like many people diagnosed with MS, my limbs numbed and fatigued, my equilibrium threw me to the floor and my vision was failing. Then invisible cognitive symptoms delayed and confounded my thoughts, causing spoken words to be lost, trashing multi-tasking and blocking my ability to recall memories, familiar faces, tasks and locations. My MS cognitive fog leaves me feeling like pieces of my mind are inaccessible.

But when I tried to find out more about MS cognition issues I discovered a real lack of information. I found out that MS cognitive symptoms are under-recognised, and are often under- and mis-diagnosed. I felt like it was an unspoken and invisible disability.

My MS writings are borne from realising that the best way for me to cope with cognitive setbacks, was to first acknowledge and articulate how MS was interfering with my thoughts. I would never have discovered any coping strategies unless I first admitted these difficulties and found a support network that ‘gets it’.

While taking part in the worldwide discussion around MS and cognition, I have found that people with MS are resilient. Find your passion and fulfill it with complete MS treatment, including both your cognitive and physical symptoms. You should not accept less.

Jeffrey’s tips for staying smart:

  1. Unclutter your space and mind and use lists to keep track of daily tasks.
  2. Follow a personal wellness routine to keep your mind and body active.
  3. Enjoy learning new skills to enrich your cognitive reserve.
  4. Find out about successful MS cognition techniques, such as those found on the MS Trust’s StayingSmart pages. This site features quick cognition tips and tricks, including helpful videos and successful strategies from people living with MS.
  5. Rely on a trusted ‘safety person’ who understands when to pull you away to clear your mind and safeguard your body.
  6. Discover what works best for you to take care of yourself by getting answers and ongoing informed treatment for your cognitive challenges.

“My mummy’s got wheels!”: managing MS while bringing up my four-year-old son

13th November 2014 by Shan Teo

In the last issue of Open Door we featured an article about caring for a newborn baby when you have MS. This issue we hear from the BBC journalist Elizabeth Quigley, about how she finds managing her MS while bringing up her four-year-old son, Matthew.
elizabeth-quigley

“MY MUMMY’S GOT wheels!” Matthew says proudly to his friends and in a very matter of fact manner.

Apart from making me sound like I’m a character from the 1970s animation Chorlton and the Wheelies, I’m proud too.

Proud that he’s so accepting and proud that he’s not bothered that I have to use a stick or the aforementioned wheels – my walker with wheels.
Matthew is four now and I definitely think he knows something is different about his mummy. None of his friends’ parents use a stick or wheels. But he doesn’t question it. He just accepts it. And so do all the children of the same age. They have no concept of whether they’re supposed to be embarrassed or think something’s odd, they’re just, like: “Wow, what’s Matthew’s mummy got? That’s great! She has wheels to push along”.

The wheels and stick certainly help me to get around more easily but I haven’t yet found anything which makes it easy to keep up with a toddler with seemingly boundless energy!

Matthew races around endlessly, climbs on everything and can easily outrun me to raid the fridge – and he does. That’s not easy for any parent of a toddler; for a parent with MS it’s challenging to say the least.

I’ve learned new negotiating skills in my efforts to address this – although to be perfectly honest, Matthew is definitely better at this than me.

At the end of some particularly intricate discussion over the idea that only one yoghurt is allowed after dinner, I feel very pleased with how it’s turned out. Until I realise that I have agreed to him taking three in return for him getting his own spoon out of the cutlery drawer and waiting for me to get into the kitchen before he eats them.

I know which one of us would make the better UN negotiator – and he’s three feet tall.

I’ve learned we sometimes need to do things differently. I can’t run around hitting tennis balls back and forward with Matthew – but I can sit down opposite him in the garden and play swing ball with him quite happily. Of course I wish I could play tennis or kick a football around with him – but, to be honest, even without MS, I was pretty atrocious at those games.
And Matthew does seem to understand that I can’t run after him. He seems to realise that if he wants us to go anywhere, I’ll need my stick
or wheels.

In his early toddling days, though, he did give me a few potential scares – although he very quickly turned round and came back to find me when he spotted I wasn’t following immediately behind him.

Matthew is very independent which definitely has advantages. And disadvantages. He’s not keen on holding my hand but he’s probably being wise beyond his years.

I’m unsteady on my feet at the best of times, so I could easily be pulled over if he starts to go in a different direction. He might not hold my hand when we’re out – but he does hold firmly onto the side of my wheels when we’re near a road or we’re going somewhere unfamiliar.

And in future years, how will I explain to Matthew that his mummy has this baffling condition called multiple sclerosis?

I’ll tell him that my legs don’t work as well as they used to and that my hands can’t write or draw with pens and pencils as well as they used to, but that it doesn’t really matter.

Everyone has challenges to overcome whether or not they have MS. What matters is not what we can’t do, but what we can. And that is what I keep reminding myself.

Having MS certainly throws up challenges and obstacles. But through it all I try to remember these early years are a time of wonder, joy and frustration – for all of us.

And when I find I’m exhausted, after a night of broken sleep, brain befuddled by endless questions and juggling, I remind myself that that’s not being a parent with MS. That’s being a parent.

Tips for dealing with MS fatigue

Being a parent can be tiring at the best of times. But combine that with MS and you have a recipe for fatigue. Joanne Hurford is an Occupational Therapist (OT) at the National Hospital for Neurology and Neurosurgery and often helps mums and dads with MS learn ways of conserving energy so they can cope with the demands of work and parenthood. Here she shares some of her top tips.

  • OTs can’t magically give you more energy or time, but they can work with you to understand your choices and priorities and provide a structured and supportive approach to help you deal with everyday tasks. They can look at a particular task or the overall impact of having to juggle a busy life with MS. OTs focus on helping you adjust the way you do things, and can help you find equipment to make things easier. To find your nearest OT visit mstrust.org.uk/map or ask your GP.
  • Meals: Plan a one-pot meal for the family that can be reheated and eaten by different people at different times. Or better still, cook up a big pot and freeze some for another day. Also, think about using a slow cooker. They can really save on preparation and cooking effort.
  • Entertaining the kids: Identify your local playgroups, garden centres or soft play centres where the kids can let off steam and you can have a coffee. Having other kids over to play can also take the pressure off you as a parent.
  • Household chores: Does it need to be done or can someone else do it for you? If not, try and get the kids involved and make it fun. Lots of little ones love a duster or broom in their hands.
  • Shopping: Internet shopping is the way to go. You can also avoid the delivery charges with click and collect and pick up last minute things.
  • Drop offs: Could you share school drop-offs with other parents? If walking and parking is an issue for you, you could try talking to the school to see if they have any parking spaces you could use.
  • The Great North Run: “The most positive experience imaginable”

    11th November 2014 by Nicola Pates

    Andy Porter and his son and daughter at the Great North Run

    Andy Porter from Chester (pictured with his daughter Hannah and son Josh) has run the Great North Run six times in aid of the MS Trust, raising more than £7,600 to help people with MS. Here he reflects back on his fond memories of the world’s greatest half marathon

    A 46-year-old who had barely run since my mid-twenties, I signed up for my first Great North Run back in 2007 because it felt like a good thing to do. A way I could at least help raise a little awareness and money for the MS Trust, a charity I’d only got to know as a result of my wife Kathy’s diagnosis with MS four years previously.

    I’ve never really stuck to a fitness regime. My idea of a warm down is a pint of Guinness in Durham City on the way home, and fish and chips at the Coast 2 Coast chippie in Kirkby Stephen. But I played a bit of five-a-side and I walked the dog most days. Surely a half marathon couldn’t be too bad!

    This September was my sixth Great North Run, our son Josh’s third and daughter Hannah’s second. The atmosphere on race day is incredible. People waving and smiling on bridges and by the roadside. It’s like one gigantic Geordie family and they all seem to be rooting for you. Every note is positive, every voice encouraging. Exhilarating and unforgettable.

    The guy up on top of his shed with his garden hose spraying down the runners in Hebburn to keep them cool. The strictly unofficial Elvis impersonator belting out ‘Suspicious Minds’. The kids handing out lollies or jelly babies. Everyone looking out for each other; everyone doing it for a reason.

    When you think the finish may never come, the road drops and the North Sea is in front of you. One mile to go. One flat, wonderful mile. Then 800m, 600, 400… You find yourself breaking into a sprint.

    Then as suddenly as it started, it’s over. A mug of hot sweet tea at the MS Trust tent in the Charity Village, a Mars Bar, banana, more smiles, more Red Arrows. Pure euphoria and a sense of real achievement. And I keep coming back, to recapture that feeling, do it again and again.

    It is the most positive experience imaginable: so worthwhile in every way. There is something about the heady mix of north-east hospitality and warmth, flawless organisation and that fantastic finale by the sea that make the Great North Run very special indeed. If you are thinking about it, do it. You’ll love it.

    Finally, always remember why you are doing it: to help the MS Trust continue to offer hope, support and information for people like my amazing wife, and Josh and Hannah’s amazing mum, Kathy.

    Book your place!

    We currently have earlybird booking offers for next year’s Great North Run and also for the British 10K London Run. Book before December to secure your place at our special rates!

    Find out more about all our upcoming running events at mstrust.org.uk/run

    Staying smart: research into MS and memory

    11th November 2014 by Shan Teo

    About half of all people with MS have problems at some time with aspects of memory, attention span or concentration. However, there is more and more evidence that cognitive rehabilitation – such as brain-training exercises – can make a real difference in helping you deal with these problems. Dawn Langdon, Professor of Neuropsychology at Royal Holloway, University of London, looks at promising research into MS and memory

    MANY PEOPLE WITH MS experience cognitive difficulties, and these can impact on a range of activities. Perhaps most seriously, they can affect how well a person can function at work. They can also make disease management harder, including adherence to medication regimes, symptom management, and medical decision making. They can also affect safety when driving and increase the risk of falls. For several decades researchers have investigated what kinds of programmes might be beneficial for cognition in MS and there have been some encouraging hints that rehabilitation by therapists and computer training programmes have positive effects.

    However, it is only recently that a study of an intervention to benefit memory in MS has been judged to reach the highest scientific standards, which means the results are convincing. The MEMREHAB trial from the Kessler Foundation has been accepted as Class 1 evidence by the prestigious journal Neurology. The design was a randomised controlled trial, which means that MS patients were allocated on a chance basis to either the MEMREHAB treatment or to a comparison group that met with a therapist, but did not get the key ingredients (imagery and context).

    Both groups met twice a week for five weeks. Sessions lasted 45 to 60 minutes. The intervention was called Story Memory Technique. The treatment group was taught to use imagery to remember things, such as visualisation and pictorial cues. They were also taught to use context. The whole programme closely followed a manual. The last two sessions focussed on applying the techniques to everyday situations.

    By the end of treatment, the treatment group was better at learning word lists, on measures of everyday memory and their families reported they were more engaged and organised (formally, apathy and executive function). The memory improvements were maintained at six-month follow up.

    A small number of people from both the treatment and comparison group underwent MRI investigations of brain activity. Increased brain activation was demonstrated in the treatment group members immediately after treatment and at six month follow up. The areas of the brain that showed increased activation were the visual cortex, involved in visualisation, and the medial temporal lobe, involved in information acquisition.

    It has been known for a while that physical rehabilitation in MS can improve physical function and now strong evidence exists that cognitive retraining can improve memory function in MS. Although MS is a progressive disease, treatments can help maintain function to support independence and effectiveness.

    Dawn Langdon is a trustee of the MS Trust.

    Find out more:

    StayingSmart

    Why we’re rowing across the Atlantic for the MS Trust

    10th November 2014 by Stephen

    Charlie Hayward and his friends Dave, Joe and Matt are the Atlantic Lions. Together they have entered the 2015 Talisker Whisky Atlantic Challenge, which will see them row 3,000 miles across the Atlantic Ocean. By taking part in this race, the Lions hope to raise £100,000 to support the work of the MS Trust. In his first post for the MS Trust blog, Charlie explains exactly why they’ve set themselves this huge challenge

    7 July 2014

    Dave, Charlie, Matt and Joe: the Atlantic LionsA day we won’t forget. At 1:00pm we officially paid our entry deposit for the Talisker Whiskey Atlantic Challenge, the toughest rowing race on earth. We, the Atlantic Lions, would be undertaking what will undoubtedly become the wildest adventure of our lives. Excitement was the emotion of the hour.

    3 November 2014

    Fast forward three months and, with now just over a year until we set out from La Gomera, across the wild Atlantic with nothing but our arms and oars to carry us to the shores of the Caribbean, excitement is still very much present within the pride. Excitement, however, is not the only emotion we have right now. It has been joined by that everyday responsibility, organisation.

    Almost all ocean rowers will say that making it to the start line of a race is just as much of a challenge as crossing the water itself and we are certainly starting to share that opinion. Preparing for an ocean row is very unique and requires endless administration, effort and time: much more than most other challenges.

    Once you’ve entered an ocean rowing race, the task of capturing your team spirit in a brand, setting up a website, generating PR activity, training, finding a boat, buying a boat, obtaining the relevant safety qualifications, organising fundraisers to meet our charity target of £100,000, all becomes pretty daunting. On top of all this we also have the small task of raising nearly £100,000 in sponsorship money just to cover our costs.

    Finding the time to do all of this, along with a fulltime job (two of us are junior doctors) only adds to the complexity of it all. However, we’ve got a great brand behind us, we undertook our first fundraising ergathon a few weeks ago and we’ve made good contacts in the sponsorship field. We are, however, still looking for that elusive lead sponsor!

    Why we’re rowing the Atlantic

    Dave, Charlie, Joe and Matt: the Atlantic LionsPeople still ask us why we want to do it: why do we want to cross an entire ocean in a small rowing boat? Three reasons really. First, the sense of adventure that only the high seas can bring. Second, the challenge in pushing the human body to the endurance limits. But third, and most important, to make a real difference to a charity so close to our hearts.

    We knew that our challenge could inspire some very generous donations and we wanted to ensure that this money would make a real difference. We know it will with the MS Trust. What they do for people and families dealing and managing with multiple sclerosis is truly inspiring and it’s this example that drives us on.

    Our own inspiration for taking on the Atlantic Ocean comes from the life of David’s uncle, Gary Maryrick. Gary was a man who loved the outdoors. He worked most of his life as a mountain rescuer and lived life simply to appreciate the wonders that our planet has to offer. When Gary was struck down by MS, his ability to help others and explore the Scottish Highlands was suddenly taken away from him.

    It’s very rare in this world to see people helping others by doing what they love, every single day of their lives – but Gary managed this. He worked simply to survive and have enough money to enjoy the Highlands, and to help others share his outdoor passion. Our passion is to help the MS Trust by doing what we love, by undertaking the adventure of a lifetime, and by learning from Gary’s life.

    How you can help us raise £100,000 for the MS Trust

    Please share our adventure and story. We want to raise as much money as we can for the MS Trust in memory of Gary, but we won’t be able to do it without your help and support. Our main priority right now is to acquire sponsors who can help get our financial campaign up and running. We’ve got some fantastic opportunities for companies and individuals looking to partner with us. To find out more visit our website and if you know anyone who might be interested in our sponsorship opportunities please do pass on our details.

    To find our more about how you can support the MS Trust’s Atlantic Lions visit our fundraising page. Thank you very much for your time and support!