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NICE consultation on CCSVI closes 21 September

Author: MS Trust

The National Institute for Health and Clinical Excellence (NICE) consultation process on use of percutaneous venoplasty for CCSVI in MS will close tomorrow (21 September).

The Interventional Procedure Advisory Committee of NICE has met, examined the evidence for use of this intervention in CCSVI in MS and made draft recommendations. These have been available for public comment though the NICE website since 24 August.

Anyone with an interest is invited to comment on the draft recommendations published on the NICE website.

Chronic cerebro-spinal venous insufficiency (CCSVI) is a theory developed by Paolo Zamboni, a vascular surgeon at the University of Ferrara in Italy. His theory is that stenosis (an abnormal narrowing or obstruction) in blood vessels that take blood from the brain allows a build up of iron. This is then able to cross the blood-brain barrier and cause inflammation and damage to cells in the central nervous system, leading to MS symptoms. It has been proposed that CCSVI can be treated by surgical procedures either by inflating balloons (balloon venoplasty) to open the narrowed veins or by inserting a stent (mesh tube) to support the vein.

Multiple sclerosis can be a distressing and disabling condition with a lack of effective treatments. This means that it is really important to find out whether percutaneous venoplasty is clinically effective and safe for use in the NHS.

Professor Bruce Campbell, Chair of the independent committee that develops NICE's Interventional Procedures guidance
NICE draft guidance for consultation
NICE factsheet on commenting on consultations - (PDF 26Kb)
CCSVI - A to Z of MS

User submitted comments

Name: Mike whte
Comments:
I am a sufferer of MS and it is a debilitating condition with not many treatment options.
Please consider at least adopting testing techniques using the doppler ultrasound.
I have processive MS and their is no treatment avaiable and this provides me with a great deal of hope. Many thanks

Name: Lynne Heal
Comments:
why is no funding being done in UK for UK or any sponsers to fund procedures?