4 - 10 May 2019
These are links to news stories about multiple sclerosis from the last week that may be of interest to people affected by MS in the UK. The link beneath each item will take you to the original story.
Please note that the MS Trust did not write the original items and does not endorse their content nor any claims made in them.
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Ocrevus approved for PPMS
The first disease modifying drug for people with primary progressive MS in England has been approved by NICE. Ocrevus (ocrelizumab) will be available for prescription for people with early, inflammatory primary progressive MS. Talks are underway about availability in the rest of the UK.
MS Trust link: Good news! NICE approves Ocrevus (ocrelizumab) for primary progressive MS (includes the eligibility criteria for the drug)
Lack of services for people with advanced MS
David Martin of the MS Trust talks about the injustice of the two tier system for people with MS, where people who are eligible for a disease modifying drug are more likely to get a good service than those who aren't. He discussed the Advance MS Champions project that is trying to start to address this problem
MS Trust link: Advanced MS Champions
MS in the Media
17 May 2019
- Statin has potential as SPMS drug
- EastEnders MS storyline
My Vespa adventure for the MS Trust
13 May 2019
For his next fundraising adventure, our supporter Nick Jolly will be riding 2,500 miles to Hungary on his Vespa scooter. He tells us about the inspiration behind his challenge.
"When you lose something, it makes you appreciate what you have"
13 May 2019
Danielle MacGillivray stars in our new film, Danielle. Here she tells us about her MS diagnosis, why she wanted to share her story in the film and learning to "appreciate the little things" every single day.