Way Ahead
ISSN 1446-559X
This newsletter is produced quarterly for nurses and health professionals who work with people with MS. Apart from general news and updates, each edition has two or three articles which, it is hoped, explore an area of interest in clinical management.
Way Ahead Volume 12 Part 4 (September 2008)
- Policy and campaigning update
- Research news
- A commissioning pathway for MS
- Psychological support for MS: what does a clinical psychologist contribute to an MS service?
- Julia Boot, clinical psychologist, Kerry Mutch, MS specialist nurse, Mike Boggild, consultant neurologist
- Imaging brain plasticity in multiple sclerosis
- Valentina Tomassini
- Sexual expression, physical disability and professional practice
- Lorna Couldrick, physiotherapist
- The outcome measure minefield
- Derik Laidler, senior lecturer
- MS Trust Annual Conference
- Information news
Way Ahead Volume 12 Part 3 (June 2008)
- Policy and campaigning update
- Research news
- The effect of Pilates classes on balance and well-being in people with multiple sclerosis: a pilot study
- Lucia White, clinical specialist physiotherapist, Dr Margaret Mayston, Senior Teaching Fellow
- Management of diplopia in MS
- Val Trimble, MS specialist orthoptist
- Developing an information resource: an update on the Leeds initiative
- Rhona MacLean, lecturer-practitioner in MS, Tracy Sharp, MS specialist nurse
- MS Trust: past and future!
- Chris Jones, MS Trust
Way Ahead Volume 12 Part 2 (April 2008)
- Policy and campaigning update
- Research news
- Prescribing assistive devices to people with MS: how do the views of patients and professionals compare?
- Dr Brian Buckley, National University of Ireland, Galway
- The sexual experience: the lived experience of women whose partners have been diagnosed with multiple sclerosis
- Shaniff Esmail, Meghan Leakey, Jane Huang, University of Alberta
- Working with MS: experiences of people with MS and professionals
- Gail Townsend, research occupational therapist
Way Ahead Volume 12 Part 1 (January 2008)
- Policy update
- In the news
- Research news
- Conference report: Change is one thing, progress is another
- The contribution of complementary and alternative medicine on symptoms and quality of life for people with multiple sclerosis
- Fiona Tait, MS specialist nurse
- Psychosocial interventions in people with multiple sclerosis: a review
- Kathryn Malcomson, Lynn Dunwoody and Andrea Lowe-Strong, University of Ulster
- The sexual experience: the lived experience of men who have been diagnosed with multiple sclerosis
- Shaniff Esmail, Meghan Leakey, Jane Huang, University of Alberta
Way Ahead Volume 11 Part 4 (October 2007)
- Policy update
- In the news
- Move it for MS!
- The sexual experience: revelations from men whose partners have multiple sclerosis
- Shaniff Esmail, associate professor, Meghan Leakey
- Night-time postural support for people with multiple sclerosis
- Pauline Pope, consultant physiotherapist
- Managing MS patients: assessing the case for the district nurse
- Cherie Weightman, lecturer in Adult Nursing
- Mind matters: study day report
- Gail Townsend, Research OT
- CMSC 21st Annual Meeting report
- Elizabeth Disney, MS nurse specialist
- At work with MS: managing life and work
Way Ahead Volume 11 Part 3 (June2007)
- Policy update
- In the news
- Research news
- Developing a business case to improve services for people with MS
- Sarah Rollinson, senior strategic planning manager
- An inter-disciplinary private rehabilitation provider
- Helen Hobbs, clinical specialist physiotherapist in neurological rehabilitation
- The sexual experience: revelations from women with multiple sclerosis
- Shaniff Esmail, associate professor of occupational therapy
- Professional education
- Information team news
Way Ahead Volume 11 Part 2 (April 2007)
- Policy update
- In the news
- A team approach to evaluating the need for assistive technology reduces equipment abandonment
- R Verza, occupational therapist, M Messmer Uccelli, Italian MS Society
- The importance of choosing an appropriate data collection method in research into stigmatised or embarrassing symptoms
- Brian Buckley, researcher in primary care
- Group therapy to improve communicative participation in people with multiple sclerosis and dysarthria
- Clare Laing, speech and language therapist
- Skills development programmes for MS specialist nurses
- Vicki Gutteridge, MS Trust
- Clinical trial updates
Way Ahead Volume 11 Part 1 (January 2007)
- Policy and campaigning news
- In the news
- The European Committee for Treatment and Research in MS (ECTRIMS)
- Nicola Russell, MS Trust
- Exploring the relationship between people with MS and their confidants
- J Springham, post-graduate research student, H Skirton, University of Plymouth, JA Freeman, Institute of Neurology, London
- Working with children and adolescents with MS in the US
- Maria Milazzo, nurse practitioner
- The value of information
- Health and Social Care Pathway for people with multiple sclerosis living in West Berkshire
- Annette Leach, MS nurse specialist, Ros Edwards, MS specialist occupational therapist
- 10 years of making a difference
- report on the MS Trust's Tenth Annual Conference
Way Ahead Volume 10 Part 4 (October 2006)
- Improving MS services: more still to be done
- Policy and campaigning news
- Research news
- Lycra orthoses and their use in MS
- Liz Betts, physiotherapist
- Engaging patient groups in the debate on stem cell research
- Sandrine Soubes, Centre for Stem Cell Biology, Sheffield
- Interferential therapy: could it be more effective than TENS in the management of MS-related symptoms?
- Gareth Noble, lecturer
- Exercise literature review
- TiMS research group
- New from the MS Trust
Way Ahead Volume 10 Part 3 (July 2006)
- Support for MS specialist posts
- In the news
- 'Moving on': the transition to living well with chronic illness
- Debbie Kralik, senior research fellow
- To boldly go: MS therapy services for the 21st Century
- Christine Singleton, physiotherapist
- Community based exercise for individuals with MS
- Cindy Davis, physiotherapist
- Relapse management in multiple sclerosis
- Alan Izat, Nicola MacLeod, Debbie McCallion, Norma McIndoe, MS specialist nurses
Way Ahead Volume 10 Part 2 (April 2006)
- Is education good for your health?
- Christopher D Ward, professor of rehabilitation medicine
- MS nursing: the first six months in post
- Hazel Daniel, MS specialist nurse
- 21st century health care; what the future holds
- Emily Harrison, MS clinical nurse specialist
- New White Paper for primary care in the NHS in England
Way Ahead Volume 10 Part 1 (January 2006)
- MS in the family: breaking the silence for young people when multiple sclerosis enters the family
- Kerry Mutch, MS specialist nurse
- NICE guidelines: implementing the NICE Guideline on the management of MS
- Nikki Embrey, MS specialist nurse
- Multiple Sclerosis Pathway at UCE
- Illuminating the Way Ahead: working together to improve MS care
- report on the MS Trust's Ninth Annual Conference
Way Ahead Volume 9 Part 3/4 (October 2005)
- The development of newly diagnosed information groups in Lambeth, Southwark and Lewisham
- Fiona Barnes, MS specialist nurse
- MS nursing in Rotterdam
- Carolien van 't Hoff, neurology nurse specialist
- Augmentative and alternative communication: barriers to introducing AAC to MS clients
- Beth Spicer-Freeman, speech and language therapist
Way Ahead Volume 9 Part 2 (July 2005)
- Transcutaneous electrical nerve stimulation (TENS)
- Amanda Howarth, lecturer, The University of Sheffield
- Stand and deliver: how an Oswestry standing frame helped restore sitting balance and improve function in an individual with secondary progressive MS
- Wendy Hendrie, clinical specialist physiotherapist
- The North West regional link interest group
- Fiona Lynch, MS specialist nurse
- Ethics Committee approval and how to survive it!
- Gail Townsend, research occupational therapist
- Presenting a poster at the MS Trust Conference: a personal perspective
- Gail Griffiths, clinical specialist physiotherapist
Way Ahead Volume 9 Part 1 (April 2005)
- Change the policy: change the practice!
- PEG feeding in MS
- Christine Collin, consultant in Neurological Rehabilitation Medicine; Rachel Botell, specialist registrar in Neurological Rehabilitation Medicine
- The UK Multiple Sclerosis Tissue Bank
- Dr Abhi Vora, Manager, The UK Multiple Sclerosis Tissue Bank
- Issues around pain in MS
- Kathryn Johnson Hoffman, research psychologist
Way Ahead Volume 8 Part 4 (January 2005)
- What drives Quality of Life in MS?
- A 'Mums and Tots' group with a difference: an MS specific support group
- MF Jackson, MS specialist nurse
- Action on Neurology
- MS Trust/ MS Society Care staff course
- Emma Tatnall, care assistant
Way Ahead Volume 8 Part 3 (October 2004)
- New decision aid website for patients considering disease-modifying drugs
- Geraldine Mynors, Medicines Partnership; Dr Duncan Short, Keele University
- Hospice based community specialist neurology support service
- Janet Johnson, neurology support nurse
- Maintaining the momentum: developing a self-management group for people with multiple sclerosis
- Susan Stutely, MS & MND nurse specialist; Margaret Hewett, clinical specialist physiotherapist; Pat Wheeler, senior occupational therapist
Way Ahead Volume 8 Part 2 (July 2004)
- From guidelines to practice: getting started
- Bernadette Porter, MS nurse consultant
- Practical management of cognitive impairments associated with MS
- Patrick Carroll, clinical specialist occupational therapist
- Aerobic exercise for people with multiple sclerosis
- Joanna Kileff, senior physiotherapist
- Disability assessment in multiple sclerosis
- L Nicholl, JC Hobart, L Dunwoody, AFL Cramp, AS Lowe-Strong
Way Ahead Volume 8 Part 1 (April 2004)
- Working with MS from both sides of the fence
- Alison J Dunsmore, senior radiographer
- The oral health of people with multiple sclerosis
- Wendy Baird, Dept of Epidemiology & Public Health, University of Leicester
- Bladder dysfunction and multiple sclerosis: a novel approach
- Doreen McClurg, Robin Ashe, Kaye Marshall, Andrea Lowe-Strong
Way Ahead Volume 7 Part 4 (January 2003)
- The use of a driving audit to assist service planning
- Michelle Ennis, MS Team occupational therapist
- The role of the specialist physiotherapist in the management of spasticity
- Louise Lockley, clinical specialist physiotherapist
- Pressure ulcer risk in seated persons: report on a study to evaluate factors for inclusion in a new self-administered risk assessment tool
- Jenny Wall, senior lecturer
Way Ahead Volume 7 Part 3 (October 2003)
- Going down under
- Vicki Gutteridge, MS specialist nurse
- A pilot evaluation of an interactive website for people with multiple sclerosis: the participants' perspective
- Jill Fyfe
Way Ahead Volume 7 Part 2 (July 2003)
- The immunology of multiple sclerosis
- Alasdair Coles, neurologist
- 'What does it all mean for the health professional at the coalface?'
- Steven Bloch, lecturer/clinical tutor, Human Communication Science
- The early introduction to alternative methods of feeding including percutaneous endoscopic gastrostomy (PEG)
- Rachael Marsden, MND Care Centre coordinator
Way Ahead Volume 7 Part 1 (April 2003)
- Multiple sclerosis in black Caribbean patients born in the UK: Is it the same illness or different to that seen in a similar white population?
- Pauline Shaw, MS specialist nurse
- Abnormal mental states in multiple sclerosis
- Hugh Rickards, consultant in neuropsychiatry
- The management of indwelling catheters for people with multiple sclerosis using bladder irrigation
- Pauline Howard, continence advisor
Way Ahead Volume 6 Part 4 (January 2003)
- Beta interferon therapy in multiple sclerosis: an audit of patients in North Staffordshire Hospital Trust
- Nikki Embrey, MS specialist nurse
- Quality of life and people with MS: patients' and proxies' ratings
- Elina Tripoliti, speech & language therapist
- Functional Electrical Stimulation in MS
- Department of Medical Physics, Salisbury District Hospital
Way Ahead Volume 6 Part 3 (October 2002)
- A randomised controlled trial comparing rehabilitation against standard therapy in multiple sclerosis patients receiving intravenous steroid treatment
- Jenny Craig, physiotherapist
- Group therapy for people with multiple sclerosis improves compliance with home exercise programme
- Sonia Somers, senior physiotherapist
Way Ahead Volume 6 Part 2 (June 2002)
- Patient-centred outcome measures
- Afsane Riazi
- Generalists and specialists: identifying roles within interdisciplinary teams
- Fiona M Shield, project director, Institute of General Practice & Primary Care
- The role of an orthoptist in an MS multidisciplinary team - a personal view
- Val Trimble, orthopist
Way Ahead Volume 6 Part 1 (March 2002)
- Does early treatment of multiple sclerosis prevent the progression of disability later on?
- Alasdair Coles, neurologist, Amanda Cox, research fellow
- Audit into the effectiveness of gabapentin in multiple sclerosis pain
- Nikki Embrey, MS specialist nurse, Claire Lowndes, MS specialist nurse
- Carer stress scales: are they valid for the caregivers of younger disabled people?
- Liz Hatch, Gail Hayes, Carol Griffith, John Burn, Roger Baker
Way Ahead Volume 5 Part 4 (December 2001)
- Challenging assumptions of care
- Lynda Hind, neurological nurse specialist
- Addressing the dying issue
- Gail Hayes, MS specialist nurse
Way Ahead Volume 5 Part 3 (September 2001)
- Premenstrual worsening of MS symptoms
- Sally Wilson, MS research co-ordinator
- Homoeopathy and multiple sclerosis
- Tom Whitmarsh, Glasgow Homoeopathic Hospital
Way Ahead Volume 5 Part 2 (June 2001)
- Taking Control - a pack to facilitate teaching people newly diagnosed With MS
- Megan Burgess, Melissa Brechin, Jill Dunk, Nikki Embrey, Fiona Lynch, Julie O'Sullivan
- Classifying disability: does it make a difference?
- Steven Bloch, speech & language therapist
Way Ahead Volume 5 Part 1 (March 2001)
- Providing neurorehabilitation services to people with MS
- D Thomas, L Jarrett, B Porter, C Jewell, A Holland, L Turkington, ED Playford
- Personal views of rehabilitation
- Two users of rehabilitation services
Way Ahead Volume 4 Part 4 (November 2000)
- Physiotherapy for people with MS
- Liz Betts, senior physiotherapist
- Personal exercise training for people with MS: a case study
- Michael Hills, sport and exercise science consultant
Way Ahead Volume 4 Part 3 (August 2000)
- Stress management through meditation
- Steve Brisk, counsellor
- Acupuncture and MS: practical applications
- Jill Brookes, acupuncturist
Way Ahead Volume 4 Part 2 (June 2000)
- The Role of the UK Multiple Sclerosis Tissue Bank
- Dr Abhi Vora, manager of the UK MS Tissue Bank
- Acupuncture and MS: theory and practice
- Jill Brookes, acupuncturist
Way Ahead Volume 4 Part 1 (March 2000)
- Pain in multiple sclerosis
- Amanda Howarth, clinical nurse specialist - pain management
- Maintaining mobility - a physio perspective
- Sally Atkinson, senior physiotherapist
