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Way Ahead

ISSN 1446-559X

This newsletter is produced quarterly for nurses and health professionals who work with people with MS. Apart from general news and updates, each edition has two or three articles which, it is hoped, explore an area of interest in clinical management.

Way Ahead Volume 18 Part 4 (October 2014)


Anticipation builds for the new MS Clinical Guideline

Expectations about the new NICE Guideline have been running high within the MS community and many have been looking forward to an updated document to support the continued development of MS services. Based on what we have seen in drafts of the Guideline, we suspect the reality may fall short of that.

Download the draft MS Clinical Guideline news as a PDF (124 KB)


Research news

  • Availability of new disease modifying therapies
    • Dimethyl fumarate(BG-12, Tecfidera)
    • Pegylated interferon beta 1a(Plegridy)
    • DMTs at a glance: With 11 DMTs now licensed for relapsing remitting MS, the prescribing situation is becoming increasingly complicated.
  • Nabiximols (Sativex)
  • DMT use in fathers to be
  • Flu vaccines, DMTs and MS

Download the Research news as a PDF (116 KB)


Information news

  • Making Sense of MS: new resources for people recently diagnosed with MS

    Getting the right information around the time of diagnosis can help someone learn about MS, adjust to the news of their diagnosis and then live as well as possible with the condition.

  • Managing your bowels commended at BMA awards
  • Disease modifying drug therapies – new edition available
Download Our latest Information news articles as a PDF (104 KB)

Policy and campaigning

More than just the cost of treatment? Value based assessment and NICE

We all know that NICE (National Institute for Health and Care Excellence) chooses which high-cost treatments for MS are 'value for money' and which are not. NICE approval makes the difference between treatments being available on the NHS and only being available on private prescription.

You may be less aware that NICE was set up to only consider the cost-effectiveness of a treatment in terms of 'health quality gained for the money spent' when making their assessments. Decisions are based solely on whether the cost to the NHS, or the improvement to the individual's health, will be greater than the cost of providing the drug treatment.

Download our Policy and campaigning article "Value based assessment and NICE" as a PDF (91 KB)


Adapting mindfulness courses to the needs of people with MS

People affected by multiple sclerosis (MS) are faced with uncertainty about the future; unpleasant and unpredictable symptoms, treatment regimens and drug side effects. People with MS have been found to exhibit a higher prevalence of mood disorders compared to individuals with other chronic medical or neurological conditions. The prevalence rate for depression in MS is 18.5% and for anxiety 44.5%. Despite a number of upsetting and debilitating challenges, many people respond in ways that mean they can maintain an acceptable, or good, quality of life. Supporting people who have difficulties adjusting to MS challenges is important.

Download the "Adapting mindfulness courses to the needs of people with MS" article as a PDF (94 KB)


Auditing services: development of a standardised data collection tool

Burrswood Hospital and the University of Brighton have successfully completed a standardised data collection audit of their physiotherapy and aquatic physiotherapy services for people with multiple sclerosis (MS). The aim of this article is to give a brief overview of how we developed the tool used for the audit and how it is intended to benefit the larger MS population.

Download the "Auditing services: development of a standardised data collection tool" article as a PDF (181 KB)


Experiences of UK health care services for people with MS: a systematic narrative review

The NHS recently implemented a policy aiming to improve patient experiences through more flexible, patient led health care services. As part of a PhD investigating the experiences of UK health services by people with MS, a literature review was carried out on the topic. Systematic reviews on pharmacological treatments and rehabilitation for MS were located, however none had been completed on the health care experiences of people with MS in the UK and therefore that was the aim of this review.

Download the "MS specialist nursing survey" article as a PDF (104 KB)


Way Ahead Volume 18 Part 3 (July 2014)


Concerns about draft MS Clinical Guideline

The MS Trust is deeply concerned about some of the recommendations made, omissions from the Guideline and how usable the document will be. We are also concerned it may give those who commission services the impression they can reduce service levels.

Download the draft MS Clinical Guideline news as a PDF (124 KB)


Research news

Multiple sclerosis research news including:

  • Dimethyl fumarate(BG-12, Tecfidera)
  • Alemtuzumab (Lemtrada)
  • Pegylated interferon beta 1a(Plegridy)
  • Laquinimod (Nerventra)

Download the Research news as a PDF (108 KB)


Highlights from the RIMS 2014 Conference

In early June, the MS Trust co-hosted the 2014 RIMS(Rehabilitation in MS) Conference alongside University College London Hospitals Foundation Trust.

  • Factors influencing behaviour change: the conference opened with Jared Bruce, University of Missouri, USA. He discussed the poor adherence rates to MS treatment, with 40-50% of patients failing to adhere after two years.
  • The patient perspective: what is behavioural change about and how does it manifest in 'real life'?
  • RIMS Honorary Lecture by Professor Alan Thompson, Dean, UCL Faculty of Brain Sciences, University College London

Download Highlights from the RIMS 2014 Conference as a PDF (116 KB)


Setting up an alemtuzumab(Lemtrada) service: the Cardiff experience

Alemtuzumab is an anti-CD52 humanised monoclonal antibody treatment for relapsing remitting multiple sclerosis (MS) that works by depletion, and subsequent repopulation, of circulating T lymphocytes and B lymphocytes1. It demonstrated significant efficacy as a treatment for relapsing remitting MS in open label, phase II and the phase III CARE-MS I trial, and demonstrated superiority over interferon beta 1a in the phase III CARE-MS II trial2. Administered over the course of two years, the treatment requires infusions over five consecutive days in the first year, followed by three consecutive days a year later.

This article aims to:

  • provide information on setting up the service
  • explore patient selection and pre-treatment counselling
  • discuss infusion-related, and long-term, side effects
  • outline monitoring requirements
  • identify potential challenges.

Download Setting up an alemtuzumab(Lemtrada) service as a PDF (128 KB)


Introducing FACETS into practice: an evidence-based group fatigue management programme

Up to 92 per cent of individuals with multiple sclerosis (MS) experience severe fatigue, many daily.

The primary aim of the FACETS programme is to provide participants with knowledge, tools and strategies to self-managetheir fatigue. The objectives of the group are:

  • To normalise the experience of fatigue.
  • Learn ways to use available energy more effectively
  • Learn ways to develop 'helpful thinking styles'about fatigue.

Introducing FACETS into practice article as a PDF (104 KB)


Life on hold: the experience of living with neuromyelitis optica


Until recently, neuromyelitis optica (NMO) was viewed as a severe form of multiple sclerosis (MS) and was treated similarly. However, Lennon et al identified a specificantibody against the antigen aquaporin-4 (found in 70% of people with NMO) which has led to an increased understanding and the knowledge that NMO is a separate disease to MS.

Download the neuromyelitis optica article as a PDF (124 KB)


MS specialist nursing in the UK: results of a survey

Between the 10 March and 10 April 2014, the MS Trust carried out a self-report survey of all specialist nurses working in MS recorded on their database.

The survey was conducted to:

  • confirm the number of MS specialist nurses in the UK
  • clarify any differences between the number of posts(headcount) and whole time equivalent (WTE) workforce
  • indicate whether there is a shortfall in MS specialist nurse posts
  • describe the balance of funding for MS specialist nurses between the NHS and other sources
  • identify the current challenges facing UK MS specialist nursing
  • identify regional variations in the provision of MS specialist nursing across the UK.

Download MS specialist nursing survey as a PDF (104 KB)

Way Ahead Volume 18 Part 3 (July 2014)


Concerns about draft MS Clinical Guideline

The MS Trust is deeply concerned about some of the recommendations made, omissions from the Guideline and how usable the document will be. We are also concerned it may give those who commission services the impression they can reduce service levels.

Download the draft MS Clinical Guideline news as a PDF (124 KB)


Research news

Multiple sclerosis research news including:

  • Dimethyl fumarate(BG-12, Tecfidera)
  • Alemtuzumab (Lemtrada)
  • Pegylated interferon beta 1a(Plegridy)
  • Laquinimod (Nerventra)

Download the Research news as a PDF (108 KB)


Highlights from the RIMS 2014 Conference

In early June, the MS Trust co-hosted the 2014 RIMS(Rehabilitation in MS) Conference alongside University College London Hospitals Foundation Trust.

  • Factors influencing behaviour change: the conference opened with Jared Bruce, University of Missouri, USA. He discussed the poor adherence rates to MS treatment, with 40-50% of patients failing to adhere after two years.
  • The patient perspective: what is behavioural change about and how does it manifest in 'real life'?
  • RIMS Honorary Lecture by Professor Alan Thompson, Dean, UCL Faculty of Brain Sciences, University College London

Download Highlights from the RIMS 2014 Conference as a PDF (116 KB)


Setting up an alemtuzumab(Lemtrada) service: the Cardiff experience

Alemtuzumab is an anti-CD52 humanised monoclonal antibody treatment for relapsing remitting multiple sclerosis (MS) that works by depletion, and subsequent repopulation, of circulating T lymphocytes and B lymphocytes1. It demonstrated significant efficacy as a treatment for relapsing remitting MS in open label, phase II and the phase III CARE-MS I trial, and demonstrated superiority over interferon beta 1a in the phase III CARE-MS II trial2. Administered over the course of two years, the treatment requires infusions over five consecutive days in the first year, followed by three consecutive days a year later.

This article aims to:

  • provide information on setting up the service
  • explore patient selection and pre-treatment counselling
  • discuss infusion-related, and long-term, side effects
  • outline monitoring requirements
  • identify potential challenges.

Download Setting up an alemtuzumab(Lemtrada) service as a PDF (128 KB)


Introducing FACETS into practice: an evidence-based group fatigue management programme

Up to 92 per cent of individuals with multiple sclerosis (MS) experience severe fatigue, many daily.

The primary aim of the FACETS programme is to provide participants with knowledge, tools and strategies to self-managetheir fatigue. The objectives of the group are:

  • To normalise the experience of fatigue.
  • Learn ways to use available energy more effectively
  • Learn ways to develop 'helpful thinking styles'about fatigue.

Introducing FACETS into practice article as a PDF (104 KB)


Life on hold: the experience of living with neuromyelitis optica


Until recently, neuromyelitis optica (NMO) was viewed as a severe form of multiple sclerosis (MS) and was treated similarly. However, Lennon et al identified a specificantibody against the antigen aquaporin-4 (found in 70% of people with NMO) which has led to an increased understanding and the knowledge that NMO is a separate disease to MS.

Download the neuromyelitis optica article as a PDF (124 KB)


MS specialist nursing in the UK: results of a survey

Between the 10 March and 10 April 2014, the MS Trust carried out a self-report survey of all specialist nurses working in MS recorded on their database.

The survey was conducted to:

  • confirm the number of MS specialist nurses in the UK
  • clarify any differences between the number of posts(headcount) and whole time equivalent (WTE) workforce
  • indicate whether there is a shortfall in MS specialist nurse posts
  • describe the balance of funding for MS specialist nurses between the NHS and other sources
  • identify the current challenges facing UK MS specialist nursing
  • identify regional variations in the provision of MS specialist nursing across the UK.

Download MS specialist nursing survey as a PDF (104 KB)

Way Ahead Volume 18 Part 2 (April 2014)


Research news

Multiple sclerosis research news including:

  • Availability of new DMTs (Teriflunomide, Dimethyl fumarate, Laquinimod)
  • Cochrane review: Management of faecal incontinence and constipation in adults with central neurological diseases
  • Review of MS Clinical guideline by NICE

Download the Research news as a PDF (42 KB)


Policy and Campaigning

Our latest policy and campaigning news including:

  • Update on our web-based resource for MS nurses, based around six common threats
  • Other policy news - including information on Scotland's Peer Approved Clinical System (PACS), a major new strategy from Wales - Together for health: the neurological conditions delivery plan, and the UK-wide Disability and health employment strategy

Download the Policy and campaigning news as a PDF (42 KB)


Providing effective risk communication to patients


This article discusses the challenge of providing effective risk communication to patients and reviews the strategies that can help healthcare professionals to explain risks to patients effectively.

Download Providing effective risk communication to patients as a PDF (242 KB)


Information news

  • The 2014 edition of 'Disease modifying drug therapy - what you need to know' is now available.
  • New publications leaflet which lists all the resources the MS Trust provides for people with MS
  • Keep up to date with our research update and news alert e-newsletters

Download the Information news as a PDF (59 KB)


Functional neurological symptoms and MS


Functional neurological symptoms is the umbrella term for a variety of symptoms of apparent neurological origin which can't be medically explained, either psychologically or organically, and are not consciously produced by the patient.

Functional neurological symptoms are one of the commonest reasons for referral to neurology outpatients.

Download Functional neurological symptoms and MS as a PDF (51 KB)


Do you hear what your patient is telling you?

Illness narratives are the stories of health and illness, and their effect on an individual's life. Typically they are the story of the person with the condition, but they can include the narratives of relatives about the effects the illness has had on their own life and their relationship with the person who is ill.

By sharing, listening and valuing different narratives, neurological physiotherapists are able to assist their patients' psychological recovery alongside their physical recovery.

Download Do you hear what your patient is telling you? as a PDF (54 KB)

Download a table detailing the typology of narratives as a PDF (111 KB)

Way Ahead Volume 18 Part 1 (January 2014)

Read Way Ahead Volume 18 Part 1(January 2014) as a PDF (1.19 MB)

Research news
Multiple sclerosis research news including oral DMT update, NICE guideline on neuropathic pain and ECTRIMS Congress report.


Defining the values of allied health professionals
Findings of MS Trust report commissioned to advance understanding about allied health professionals in MS.


Pilates based training for MS
A randomised controlled trial to assess the effects of Pilates based core stability training in MS.


Shared decision making
The use of Option Grids to support shared-decision making.


How the care team can help at the end of life
Reflecting on anticipatory care discussions towards end of life with a particular focus on preferred place of death.


Highlights from the MS Trust 2013 Annual Conference
Overview of some of the plenary and seminar sessions at the recent MS Trust Conference.

Way Ahead Volume 17 Part 4 (October 2013)

Read Way Ahead Volume 17 Part 4 (October 2013) as a PDF (1.19 MB)

Research news
Including updates on oral DMTs, MS-SMART, BICAMS and an opinion piece on the Cochrane review of DMTs.


Rehabilitation in people with multiple sclerosis
Exploring the value of rehabilitation in people with MS, including assessment, goal setting, treatment and evaluation.


Measuring and improving the experiences of care for people with MS
Reflecting on the new NICE patient experience guideline and how the MS Trust GEMSS patient survey can be used as a tool to help implement it.


Exercise for life: evidence based, specialist provision in the community
Exploring the development and benefits of a community-based exercise class for people with MS in Shetland.


Applications invited to join phase II of the GEMSS project
We are looking for ten teams of MS specialists to take part in the second round of our GEMSS project: Generating Evidence in Multiple Sclerosis Services.

Way Ahead Volume 17 Part 3 (July 2013)

Read Way Ahead Volume 17 Part 3 (July 2013) as a PDF (708 kb)

Research news


Policy and campaigning news


GEMSS: the next stage


Oswestry standing frames
Dr Wendy Hendrie, Specialist Physiotherapist in MS, Norwich MS Centre, Norwich, Norfolk.


Palliative care in advanced MS
Debi Adams, Clinical Nurse Specialist in Palliative Neurology, St Catherine's Hospice, Scarborough; Dr Colin Campbell, Palliative Medicine Consultant, St Catherine's Hospice, Scarborough.

Way Ahead Volume 17 Part 2 (April 2013)

Read Way Ahead Volume 17 Part 2 (April 2013) as a PDF (4.4mb)

Research news


Broadening horizons for MS caregivers: Launching MS Nurse PROfessional
Launch of new accredited educational tool, MS Nurse Professional, for those working with people with multiple sclerosis


Policy and campaigning news


Two MS services are better than one
New model for neuro services in Bolton with a regional diagnostic/early management service, but a local needs-based service.


Focusing on unplanned admissions in MS through clinical audit
Clinical audit of unplanned hospital admissions in people with MS at Brighton and Sussex University Hospitals NHS Trust .


Development of a self management programme for people with a neurological condition
The establishment of a self management programme for people with a neurological condition including multiple sclerosis

Way Ahead Volume 17 Part 1 (January 2013)

Read Way Ahead Volume 17 Part 1 (January2013) as a PDF (990 KB)

Research news


Policy and campaigning news


TONiC quality of life study: inviting professionals to contribute
Benjamin O'Sullivan, Academic Foundation Doctor, Walton Centre Foundation Trust, Liverpool; Carolyn Young, Professor of Neurology and Consultant Neurologist, Walton Centre Foundation Trust, Liverpool


NICE to produce vitamin D guidance


Speech, swallowing and language needs in MS
Heather Whitehouse, Specialist Speech and Language Therapist, Independent Practitioner.


Psychologists in MS: the missing dinner guests?
Lorraine Maher-Edwards, Counselling Psychologist; Annette Schwartz, Consultant Clinical Neuropsychologist; Liz Wilkinson, MS Specialist Nurse; Central Surrey Health

Way Ahead Volume 16 Part 4 (October 2012)

Read Way Ahead Volume 16 Part 4 (October2012) as a PDF (1.11 MB)

Research news


Policy and campaigning news


MS Trust reserach; The information needs of the newly diagnosed


Patient-centred care: What's the problem?
Alison Smith, Rehabilitation Specialist Nurse MS; Christopher Ward, Consultant Neurologist; University of Nottingham Division of Rehabilitation Medicine and Department of Rehabilitation Medicine, Royal Derby Hospital.


My experience of working with Nice in Guideline Development Group
Noreen Barker, MS Specialist Nurse, Hertfordshire Neurological Service, Abbots Langley, Herts.

Way Ahead Volume 16 Part 3 (July 2012)

Read Way Ahead Volume 16 Part 3 (July 2012) as a PDF (1.38mb)

Research news


Government policy round-up
Alice Hamilton, Policy Officer, MS Trust


Project launched: Generating Evidence in Multiple Sclerosis Services (GEMSS)
Geraldine Mynors, Independent Healthcare Consultant and Analyst, Mynors Suppiah, UK


How to manage your own stress
Barbara Lynch, Psychotherapist, Dublin, Ireland


Osteoporosis in MS
Vicki Matthews, MS specialist nurse and MS Trust nurse advisor, MS Trust, Letchworth, UK


MS Nurse PROfessional – an update
Vicki Matthews, MS specialist nurse and MS Trust nurse advisor, MS Trust, Letchworth, UK.


The MS Trust keeps you up-to-date with research

Way Ahead Volume 16 Part 2 (April 2012)

Read Way Ahead Volume 16 Part 2 (April 2012) as a PDF (1.37mb)

Research news


Celebrating ten years of the UKMSSNA
Sam Colhoun and Huseyin Huseyin, MS Specialist Nurses


How many MS specialist nurses do we need – a caseload survey?
Alison Leary, Healthcare Analyst, London


Setting the trend: a course in self-management
Emma Manchester, MS Specialist Physiotherapist; Emma Matthews, MS Specialist Occupational Therapist; Liz Watson, MS Specialist Nurse


Secondary progressive MS: the transition
Stephen Wilson, Cognitive Behavioural Psychotherapist and Wendy Hartland, MS Specialist Nurse


Using the StayingSmart online resource in clinical practice
Pauline Shaw and Joan Regan, MS Specialist Nurses

Way Ahead Volume 16 Part 1 (January 2012)

Read Way Ahead Volume 16 Part 1 (January 2012) as a PDF (1.18mb)

Way Ahead Volume 15 Part 4 (October 2011)

Read Way Ahead Volume 15 Part 4 (October 2011) as a PDF (1.18mb)

Way Ahead Volume 15 Part 3 (July 2011)

Read Way Ahead Volume 15 Part 3 (July 2011) as a PDF (1.38mb)

Research news


RIMS 2011 conference report
Vicki Matthews, MS Trust


The basis of good commissioning
Lesley Humber, formerly Director of Operations and Locality Development, Southwark PCT


Core stability training in MS
Margaret Gear, Helen Hunter, Dr Jenny Freeman, physiotherapists


Risk communication: why we need understandable information
Wolfgang Gaissmaier, Harding Center for Risk Literacy

Way Ahead Volume 15 Part 2 (April 2011)

Read Way Ahead Volume 15 Part 2 (April 2011) as a PDF (1.52mb)

Way Ahead Volume 15 Part 1 (January 2011)

Read Way Ahead Volume 15 Part 1 (January 2011) as a PDF (1.35mb)

Way Ahead Volume 14 Part 4 (October 2010)

Read Way Ahead Volume 14 Part 4 (October 2010) as a PDF (1.25mb)

Research news


NHS white paper - what does it mean for you?
Nicola Russell, MS Trust


Engaging people with MS in decision-making
Sascha Köpke, Christoph Heesen, Institute of Neuroimmunology and Clinical MS Research, Hamburg


Neuromyelitis optica in the UK
Jon Revis, NMO nurse specialist

Way Ahead Volume 14 Part 3 (July 2010)

Read Way Ahead Volume 14 Part 3 (July 2010) as a PDF (1.3mb)

Research news


The new coalition: Its implications for people with MS and the health professionals who work with them
Nicola Russell, MS Trust


MS and identity
Dr Louise Woods, Dr Julia Boot, Dr Jane Simpson


Improving vocational support for people with long-term conditions
Dr Andy Tyerman, Community Head Injury Service Buckinghamshire PCT, Gail Townsend, occupational therapist


Local clinical pathway for MS
Susie MacAllister, physiotherapist

Way Ahead Volume 14 Part 2 (April 2010)

Research news


European MS Nurse Survey
Vicki Matthews, MS Trust


A vision for the future of MS services
Nicola Russell, MS Trust


Setting up an infusion service
Caroline D'Arcy, MS specialist nurse


Occupational therapy services
Dr Jenny Preston, Lynn Lamont, occupational therapists


A study into the effects of whole body vibration in MS
Françoise Schyns, physiotherapist

Way Ahead Volume 14 Part 1 (January 2010)

Way Ahead Volume 13 Part 4 (September 2009)

Research news


MS services and the Risk-sharing Scheme


Neurological commissioning support: 'putting service users at the heart of commissioning'
Sue Thomas, Head of Neurological Commissioning Support


A commissioning pathway for MS specialist services
Vicki Matthews, MS Specialist Nurse Advisor


This one's personal
Brian Belle-Fortune


Fatigue: an overview of causes and management
Helen Rowlands, occupational therapist, Fran Jackson, MS specialist nurse


MS Trust expands the map of MS services

Way Ahead Volume 13 Part 3 (June 2009)

Research news


MS Trust launches StayingSmart


NICE guidance for functional electrical stimulation for dropped foot
Geraldine Mann, consultant physiotherapist


Advanced multiple sclerosis (MS) and family relationship processes
Anna MacLehose, research psychologist, Dr Ceri Bowen, research fellow


Promoting patient-centred care: the development of a communication tool for people with MS
Caroline Pollington, Sarah White, MS specialist nurses


Is leisure a luxury?
Alison Johnson, MS specialist occupational therapist

Way Ahead Volume 13 Part 2 (March 2009)

Research news


Government policy 2009 - why clinicians need to take the lead
Nicola Russell, Director of Services, MS Trust


Competencies for MS specialist services
Victoria Matthews, MS Specialist Nurse Advisor, MS Trust


The Recognition Model: a new sexual health model of practice for use by disability teams
Lorna Couldrick. physiotherapist


Lost to follow up: what are the implications?
Dr Yogendrainh Jagatsinh, specialist registrar rehabilitation medicine

Way Ahead Volume 13 Part 1 (January 2009)

MS Trust looks to the future
Nicola Russell, Director of Services, MS Trust


In the news


Research news


MS nursing: more of the same or maintaining the best?
Vicki Matthews, MS Specialist Nurse Advisor, MS Trust


Investigating safe and effective exercise for people with MS
Dr Johnny Collett


A UK consensus on the management of the bladder in MS
Professor Clare Fowler, consultant urologist


Secondary progressive MS: meeting the challenge of person centred care
Alison Smith, rehabilitation nurse specialist


Men are from Mars: building a group for male relatives of people with MS
Lisa Black, MS specialist nurse, Jo Johnson, consultant neuropsychologist


Conference report


Information news

Way Ahead Volume 12 Part 4 (September 2008)

Way Ahead Volume 12 Part 3 (June 2008)

Policy and campaigning update


Research news


The effect of Pilates classes on balance and well-being in people with multiple sclerosis: a pilot study
Lucia White, clinical specialist physiotherapist, Dr Margaret Mayston, Senior Teaching Fellow


Management of diplopia in MS
Val Trimble, MS specialist orthoptist


Developing an information resource: an update on the Leeds initiative
Rhona MacLean, lecturer-practitioner in MS, Tracy Sharp, MS specialist nurse


MS Trust: past and future!
Chris Jones, MS Trust

Way Ahead Volume 12 Part 2 (April 2008)

Way Ahead Volume 12 Part 1 (January 2008)

Way Ahead Volume 11 Part 4 (October 2007)

Way Ahead Volume 11 Part 3 (June2007)

Policy update


In the news


Research news


Developing a business case to improve services for people with MS
Sarah Rollinson, senior strategic planning manager


An inter-disciplinary private rehabilitation provider
Helen Hobbs, clinical specialist physiotherapist in neurological rehabilitation


The sexual experience: revelations from women with multiple sclerosis
Shaniff Esmail, associate professor of occupational therapy


Professional education


Information team news

Way Ahead Volume 11 Part 2 (April 2007)

Way Ahead Volume 11 Part 1 (January 2007)

Policy and campaigning news


In the news


The European Committee for Treatment and Research in MS (ECTRIMS)
Nicola Russell, MS Trust


Exploring the relationship between people with MS and their confidants
J Springham, post-graduate research student, H Skirton, University of Plymouth, JA Freeman, Institute of Neurology, London


Working with children and adolescents with MS in the US
Maria Milazzo, nurse practitioner


The value of information


Health and Social Care Pathway for people with multiple sclerosis living in West Berkshire
Annette Leach, MS nurse specialist, Ros Edwards, MS specialist occupational therapist


10 years of making a difference
report on the MS Trust's Tenth Annual Conference

Way Ahead Volume 10 Part 4 (October 2006)

Way Ahead Volume 10 Part 3 (July 2006)

Support for MS specialist posts


In the news


'Moving on': the transition to living well with chronic illness
Debbie Kralik, senior research fellow


To boldly go: MS therapy services for the 21st Century
Christine Singleton, physiotherapist


Community based exercise for individuals with MS
Cindy Davis, physiotherapist


Relapse management in multiple sclerosis
Alan Izat, Nicola MacLeod, Debbie McCallion, Norma McIndoe, MS specialist nurses

Way Ahead Volume 10 Part 2 (April 2006)

Is education good for your health?
Christopher D Ward, professor of rehabilitation medicine


MS nursing: the first six months in post
Hazel Daniel, MS specialist nurse


21st century health care; what the future holds
Emily Harrison, MS clinical nurse specialist


New White Paper for primary care in the NHS in England

Way Ahead Volume 10 Part 1 (January 2006)

Way Ahead Volume 9 Part 3/4 (October 2005)

The development of newly diagnosed information groups in Lambeth, Southwark and Lewisham
Fiona Barnes, MS specialist nurse


MS nursing in Rotterdam
Carolien van 't Hoff, neurology nurse specialist


Augmentative and alternative communication: barriers to introducing AAC to MS clients
Beth Spicer-Freeman, speech and language therapist

Way Ahead Volume 9 Part 2 (July 2005)

Transcutaneous electrical nerve stimulation (TENS)
Amanda Howarth, lecturer, The University of Sheffield


Stand and deliver: how an Oswestry standing frame helped restore sitting balance and improve function in an individual with secondary progressive MS
Wendy Hendrie, clinical specialist physiotherapist


The North West regional link interest group
Fiona Lynch, MS specialist nurse


Ethics Committee approval and how to survive it!
Gail Townsend, research occupational therapist


Presenting a poster at the MS Trust Conference: a personal perspective
Gail Griffiths, clinical specialist physiotherapist

Way Ahead Volume 9 Part 1 (April 2005)

Change the policy: change the practice!


PEG feeding in MS
Christine Collin, consultant in Neurological Rehabilitation Medicine; Rachel Botell, specialist registrar in Neurological Rehabilitation Medicine


The UK Multiple Sclerosis Tissue Bank
Dr Abhi Vora, Manager, The UK Multiple Sclerosis Tissue Bank


Issues around pain in MS
Kathryn Johnson Hoffman, research psychologist

Way Ahead Volume 8 Part 4 (January 2005)

Way Ahead Volume 8 Part 3 (October 2004)

New decision aid website for patients considering disease-modifying drugs
Geraldine Mynors, Medicines Partnership; Dr Duncan Short, Keele University


Hospice based community specialist neurology support service
Janet Johnson, neurology support nurse


Maintaining the momentum: developing a self-management group for people with multiple sclerosis
Susan Stutely, MS & MND nurse specialist; Margaret Hewett, clinical specialist physiotherapist; Pat Wheeler, senior occupational therapist

Way Ahead Volume 8 Part 2 (July 2004)

From guidelines to practice: getting started
Bernadette Porter, MS nurse consultant


Practical management of cognitive impairments associated with MS
Patrick Carroll, clinical specialist occupational therapist


Aerobic exercise for people with multiple sclerosis
Joanna Kileff, senior physiotherapist


Disability assessment in multiple sclerosis
L Nicholl, JC Hobart, L Dunwoody, AFL Cramp, AS Lowe-Strong

Way Ahead Volume 8 Part 1 (April 2004)

Working with MS from both sides of the fence
Alison J Dunsmore, senior radiographer


The oral health of people with multiple sclerosis
Wendy Baird, Dept of Epidemiology & Public Health, University of Leicester


Bladder dysfunction and multiple sclerosis: a novel approach
Doreen McClurg, Robin Ashe, Kaye Marshall, Andrea Lowe-Strong

Way Ahead Volume 7 Part 4 (January 2003)

Way Ahead Volume 7 Part 3 (October 2003)

Way Ahead Volume 7 Part 2 (July 2003)

The immunology of multiple sclerosis
Alasdair Coles, neurologist


'What does it all mean for the health professional at the coalface?'
Steven Bloch, lecturer/clinical tutor, Human Communication Science


The early introduction to alternative methods of feeding including percutaneous endoscopic gastrostomy (PEG)
Rachael Marsden, MND Care Centre coordinator

Way Ahead Volume 7 Part 1 (April 2003)

Way Ahead Volume 6 Part 4 (January 2003)

Beta interferon therapy in multiple sclerosis: an audit of patients in North Staffordshire Hospital Trust
Nikki Embrey, MS specialist nurse


Quality of life and people with MS: patients' and proxies' ratings
Elina Tripoliti, speech & language therapist


Functional Electrical Stimulation in MS
Department of Medical Physics, Salisbury District Hospital

Way Ahead Volume 6 Part 3 (October 2002)

Way Ahead Volume 6 Part 2 (June 2002)

Way Ahead Volume 6 Part 1 (March 2002)

Does early treatment of multiple sclerosis prevent the progression of disability later on?
Alasdair Coles, neurologist, Amanda Cox, research fellow


Audit into the effectiveness of gabapentin in multiple sclerosis pain
Nikki Embrey, MS specialist nurse, Claire Lowndes, MS specialist nurse


Carer stress scales: are they valid for the caregivers of younger disabled people?
Liz Hatch, Gail Hayes, Carol Griffith, John Burn, Roger Baker

Way Ahead Volume 5 Part 4 (December 2001)

Challenging assumptions of care
Lynda Hind, neurological nurse specialist


Addressing the dying issue
Gail Hayes, MS specialist nurse

Way Ahead Volume 5 Part 3 (September 2001)

Premenstrual worsening of MS symptoms
Sally Wilson, MS research co-ordinator


Homoeopathy and multiple sclerosis
Tom Whitmarsh, Glasgow Homoeopathic Hospital

Way Ahead Volume 5 Part 2 (June 2001)

Taking Control - a pack to facilitate teaching people newly diagnosed With MS
Megan Burgess, Melissa Brechin, Jill Dunk, Nikki Embrey, Fiona Lynch, Julie O'Sullivan


Classifying disability: does it make a difference?
Steven Bloch, speech & language therapist

Way Ahead Volume 5 Part 1 (March 2001)

Providing neurorehabilitation services to people with MS
D Thomas, L Jarrett, B Porter, C Jewell, A Holland, L Turkington, ED Playford


Personal views of rehabilitation
Two users of rehabilitation services

Way Ahead Volume 4 Part 4 (November 2000)

Physiotherapy for people with MS
Liz Betts, senior physiotherapist


Personal exercise training for people with MS: a case study
Michael Hills, sport and exercise science consultant

Way Ahead Volume 4 Part 3 (August 2000)

Stress management through meditation
Steve Brisk, counsellor


Acupuncture and MS: practical applications
Jill Brookes, acupuncturist

Way Ahead Volume 4 Part 2 (June 2000)

The Role of the UK Multiple Sclerosis Tissue Bank
Dr Abhi Vora, manager of the UK MS Tissue Bank


Acupuncture and MS: theory and practice
Jill Brookes, acupuncturist

Way Ahead Volume 4 Part 1 (March 2000)

Pain in multiple sclerosis
Amanda Howarth, clinical nurse specialist - pain management


Maintaining mobility - a physio perspective
Sally Atkinson, senior physiotherapist