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Way Ahead Volume 19 Part 3 (July 2015)

​Lost to follow up? Finding people with MS in need of services

Geraldine Mynors, GEMSS Facilitator, MS Trust

Looks at the approaches taken in two areas of the UK, by participants in the GEMSS project, to identify people with MS who are not known to, and may benefit from, their MS service.


Disease modifying drug monitoring for patients with multiple sclerosis – use of iPads to improve access

Heledd Tomos, Physiotherapist, Morriston Hospital, Swansea

Individuals with multiple sclerosis (MS) who live in rural areas may experience difficulties in accessing care. Telemedicine is being increasingly utilised to improve the delivery of healthcare. The use of a tablet device was piloted to monitor disease modifying drugs (DMTs) in MS with strict information governance procedures, and the outcomes for telemedicine were evaluated.


'To live every moment': exploring the concept of psychosocial flourishing in a group of single women with multiple sclerosis

Jane Stuchbury, MSc Student, School of Psychology, University of East London, London

Study explores the lived experience of single women with MS who consider themselves to be living 'flourishing' lives, and the processes by which this was achieved.


Supporting children when a parent has MS: why it's important, why we often hold reservations about this work and some ways to overcome these

Rachel Tams, Consultant Clinical Neuropsychologist, Oxford Centre for Enablement, Oxford

Article discusses the importance of considering children's needs when MS enters the family. Also looks at the experiences and reservations of health professionals working in this field, and some ways to overcome them.


 

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