Living with multiple sclerosis is challenging, but it can be even more difficult if you are a member of the LGBTQ+ community. In this article, we look at why that might be and speak to Mavis, a Lead MS Specialist Nurse, who describes how she makes sure everyone feels welcome at her clinics.
Studies have shown that LGBTQ+ people are more likely to experience discrimination within the healthcare system than cisgender heterosexual people. Stonewall charity states on its website that seven in ten trans people (70%) report being impacted by transphobia when accessing general health services and one in seven LGBTQ+ people (14%) have avoided medical treatment for fear of discrimination.
With that in mind, if you are a member of the LGBTQ+ community, it’s understandable that you might feel nervous about being open with your health professional about your sexuality or gender.
Fear of discrimination
One of the biggest challenges you may face as a member of the LGBTQ+ community is fear of discrimination. This is understandable as your fears may be based on previous experiences.
Lack of Awareness
Another challenge you may face is a lack of awareness of your specific needs. For example, as an LGBTQ+ person with MS, you are more likely to experience depression and anxiety. Raising awareness of your needs with health professionals is central to ensuring the correct treatment is prescribed.
Inaccessibility
You may find some healthcare settings inaccessible to LGBTQ+ people. This can make it difficult to get the help you need. For example, some clinics may not have gender-neutral bathrooms, which can present a barrier. Additionally, some settings may not have LGBTQ+-friendly staff, which can also make you feel uncomfortable when seeking care.
Despite these challenges, it is important for you to be open with your health professionals. This enables your care provider to put in place the most appropriate care possible.
Mavis, a Lead MS nurse at Southampton University Hospital, told us there is generally a very mixed response from LGBTQ+ people with MS in clinics, some are much more open than others about their sexuality.
Being open with healthcare professionals about sexuality is crucial for receiving inclusive, personalised, and effective healthcare. It promotes trust, enables accurate diagnosis and treatment, facilitates access to appropriate preventive care, and ensures the provision of LGBTQ+ friendly services.
Clinics are becoming more inclusive, and there is now much more awareness of the issues people from the LGBTQ+ community face. But Mavis admits there is still work to be done.
